Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Week With Gluten And No Symptoms?

betsyabailey

Recommended Posts

betsyabailey Rookie
betsyabailey
Posted

Hi everyone! I posted last week about lab work and gluten and got some great advice, thanks! My DH decided that he wanted to go ahead and do the labs now AND find a different preschool. So Aidan, my son has been having a pretty significant amount of gluten for about a week now with absolutely no symptoms that we can see. Is it normal for the gastro problems to take awhile when adding gluten back to diet? I figured it would be at least close to immediate, like before. Thanks!

Betsy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

It can take a while for gluten to build up in his system, before he will have symptoms. Or he might not get any obvious symptoms now, like diarrhea, but rather stop growing. In fact, failure to thrive is the most common symptom in babies and toddlers with celiac disease.

Also, since he didn't have gluten since he was a tiny infant, it will likely take years to destroy his villi and make him sick enough to test positive. By then he will probably have stunted growth and be nutritionally deficient.

It is obviously your choice to go ahead with this gluten challenge. But it will likely result in negative tests, even if you keep feeding him gluten for several months. Still, the tests will mean nothing if negative. They are notoriously unreliable in children under six to begin with, and in a child who didn't have gluten for as long as your son they will probably be completely useless.

But the doctor will look at those tests and declare your son 'healed' of celiac disease or gluten intolerance, and will tell you that he can eat gluten now.

Too many people on this forum had that happen to them. Only to get seriously ill in their adult years, and ending up having other autoimmune diseases triggered by the gluten they consumed.

You don't outgrow a gluten intolerance. Your son had severe reactions to gluten as a baby. When removing the offending food, often the symptoms will be different when reintroduced and many times are not recognized as symptoms at all.

ShayFL Enthusiast
ShayFL
Posted

I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

purple Community Regular
purple
Posted
I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

I am glad you posted this. My friend has many of the symptoms of celiac but has never been tested. Endometriosis, hysterectomy, other stomache troubles, surgeries....lots more...for at least 15 years. Her last surgery was on her thyroid. I can't remember if they removed some of it or what exactly. I keep telling her to get checked. I have been studying it on this forum for only 4 months to learn all the symptoms. About 12 years ago she had multiple surgeries on her gut but they couldn't figure it out. She had to fly to another town to see a specialist. Then they removed something else and now she can eat again. She still has celiac symptoms though. Not one doc has said to check her for celiac..hmmm. Her latest problem is a shooting pain down her leg.

She is only 38. What a terrible thing to go through that doesn't have to happen if only the docs could figure it out. I took my 19 year old to an osteopath and he knew on the first visit.

This forum is such a blessing to everyone!!! Thanks to all for all your input!!!

gfp Enthusiast
gfp
Posted

What Ursa said ....

and like Shay said ... you can 'lose' lots of good years and get complications ... which is a big risk.

all this vs just not eating gluten ....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748
    CE1963
    Newest Member
    CE1963
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.