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Provigil?

munchkinette

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munchkinette Collaborator
munchkinette
Posted

What's the deal with Provigil? I just got a prescription for it today, but some of my searches indicate that it has gluten. What are some alternatives? What responses have come back so far from the manufacturer?

  • 3 weeks later...
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evansmommie Newbie
evansmommie
Posted

I called the manufacturer of Provigil last July (2007, so it's been a while). They told me it has 54mg of gluten. So, my doctor wouldn't give it to me. I take ritalin and it does help some. I think you can also take adderall, which is a lot like ritalin. It took me a few days to adjust to the medicine, but I don't notice any side effects now.

  • 2 months later...
one more mile Contributor
one more mile
Posted
What's the deal with Provigil? I just got a prescription for it today, but some of my searches indicate that it has gluten. What are some alternatives? What responses have come back so far from the manufacturer?

I told CVS that I am need Gluten free meds and they now check for me.

Mtndog Collaborator
Mtndog
Posted

CVS is pretty good about it- still wish Provigil was gluten-free- I called last week and it's not. Argh!

  • 1 month later...
april22 Newbie
april22
Posted
I called the manufacturer of Provigil last July (2007, so it's been a while). They told me it has 54mg of gluten. So, my doctor wouldn't give it to me. I take ritalin and it does help some. I think you can also take adderall, which is a lot like ritalin. It took me a few days to adjust to the medicine, but I don't notice any side effects now.

OMG- didn't even occur to me that medications have gluten in it! Thank you! My doctor recommended I consider Provigil. I am temporarily on Xyrem- which I am fairly convinced has no gluten, as I feel great. I was on ritalin for years and later on dexedrine. Ritalin is far better of the two. How much Ritalin do you take?

I think Dexedrine messed me up. I quit cold turkey when I graduated school. Gained 45 lbs in two months and have had a few miserable years. It has taken me years to realize that the main cause of my narcolepsy attacks is gluten and possible msg. None of that - no narcolepsy. The repair of my metabolism has been slow and painful...so my advise to you is that if you ever plan on coming off of it- follow the orders of tapering off slowly, maybe you can avoid my struggles.

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      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
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      GI DX celiac despite neg serology and no biopsy

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      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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