Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint/muscle Pain With Celiacs

souzahanson

Recommended Posts

souzahanson Apprentice
souzahanson
Posted

Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.

Sure, it can be very common for Fibromyalgia and Rheumatoid and OsteoArthritis to be associated with Celiac. Many here have those issues. I, after three years gluten free have OsteoArthritis. My doctor has not prescribed steroids, but rather two Aleves in the am and two in the pm. For the time being it seems to work.

I am not sure that I can pinpoint my arthritis on Celiac or just the aging process. Either way, I've got it.

Here is some information you may be interested in:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

Nancym Enthusiast
Nancym
Posted

Gluten gave me awful joint pain, but I also had intestinal issues too. Diary actually seems to make my muscle spasm oddly enough.

Why not try giving it up for a while and see what happens?

ajewel Newbie
ajewel
Posted

I actually dont have celiac disease but i have a wheat/gluten allergy .. my primary issue is server joint pain.. achyness all over.. Been told i have fibrya milga.. because of the issues i have .. My naturlist doc believes that is not my issue she strongly believes i have a horrible allergy to wheat.. I know beening off it i have felt so much better ... until recetnly been having issues again cause my body is reacting to dairy now witch is normal from what I been told and read. I do totally understand the frustration of pain been living with it for six years and it basically makes you misreable and depressed.. I still have alot of healing to go 6 years of being in pain and only three months gluten free .. But it is worth it end :)

*lee-lee* Enthusiast
*lee-lee*
Posted

i had joint pain in my hips which also consisted of general leg aches for about 8-10 months before i suspected i had Celiac. i was tested numerous times for mono, Lyme's Disease, arthritis, thyroid, etc (all negative, of course) and also went through a month of physical therapy and multiple cortisone injections before being diagnosed with trochantaric bursitis. i was told to stretch better before going to the gym/extensive walking.

after nearly a year, my pain finally subsided. then i began to suspect Celiac (chronic D for a few months among other symptoms)...positive blood, negative biopsy, positive reaction to the diet. after reading this board, i've come to the conclusion that my joint pain was just another symptom of the Celiac.

i was never put on steroids but for some time i was on 800mg 3x/day of Motrin in addition to a few cortisone injections. the cortisone didn't too a whole lot - actually nothing really helped...i recovered on my own and i make sure i stretch my legs well before going to the gym just to be safe.

i'd try gluten free just for kicks...

ravenwoodglass Mentor
ravenwoodglass
Posted

I also had severe joint and muscle pain, and they developed in childhood although the severe arthritic damage didn't start till much later. I also had neuro impact in childhood. I did have C, at times bad enough to impact but constant daily GI distress in the form of D did not happen until much later after my children were born.

There is a gluten sensitive gene, mine DQ9 that is considered an RA gene here. My joint and muscle pain and the resulting damage to the joints has been in remission now since a couple of months into the diet. The only time I flare now is if glutened, which is now rare.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,723
    • Most Online (within 30 mins)
      7,748
    Kimberly1
    Newest Member
    Kimberly1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.