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Joint/muscle Pain With Celiacs


souzahanson

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souzahanson Apprentice

Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.


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Lisa Mentor
Has anyone ever had severe joint and muscle pain and been placed on steriods? Has anyone ever had these pains but no stomach/stool issues. My MD is trying to say that my current symptoms are related to celiac, but I doubt his diagnosis.

Sure, it can be very common for Fibromyalgia and Rheumatoid and OsteoArthritis to be associated with Celiac. Many here have those issues. I, after three years gluten free have OsteoArthritis. My doctor has not prescribed steroids, but rather two Aleves in the am and two in the pm. For the time being it seems to work.

I am not sure that I can pinpoint my arthritis on Celiac or just the aging process. Either way, I've got it.

Here is some information you may be interested in:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

Nancym Enthusiast

Gluten gave me awful joint pain, but I also had intestinal issues too. Diary actually seems to make my muscle spasm oddly enough.

Why not try giving it up for a while and see what happens?

ajewel Newbie

I actually dont have celiac disease but i have a wheat/gluten allergy .. my primary issue is server joint pain.. achyness all over.. Been told i have fibrya milga.. because of the issues i have .. My naturlist doc believes that is not my issue she strongly believes i have a horrible allergy to wheat.. I know beening off it i have felt so much better ... until recetnly been having issues again cause my body is reacting to dairy now witch is normal from what I been told and read. I do totally understand the frustration of pain been living with it for six years and it basically makes you misreable and depressed.. I still have alot of healing to go 6 years of being in pain and only three months gluten free .. But it is worth it end :)

*lee-lee* Enthusiast

i had joint pain in my hips which also consisted of general leg aches for about 8-10 months before i suspected i had Celiac. i was tested numerous times for mono, Lyme's Disease, arthritis, thyroid, etc (all negative, of course) and also went through a month of physical therapy and multiple cortisone injections before being diagnosed with trochantaric bursitis. i was told to stretch better before going to the gym/extensive walking.

after nearly a year, my pain finally subsided. then i began to suspect Celiac (chronic D for a few months among other symptoms)...positive blood, negative biopsy, positive reaction to the diet. after reading this board, i've come to the conclusion that my joint pain was just another symptom of the Celiac.

i was never put on steroids but for some time i was on 800mg 3x/day of Motrin in addition to a few cortisone injections. the cortisone didn't too a whole lot - actually nothing really helped...i recovered on my own and i make sure i stretch my legs well before going to the gym just to be safe.

i'd try gluten free just for kicks...

ravenwoodglass Mentor

I also had severe joint and muscle pain, and they developed in childhood although the severe arthritic damage didn't start till much later. I also had neuro impact in childhood. I did have C, at times bad enough to impact but constant daily GI distress in the form of D did not happen until much later after my children were born.

There is a gluten sensitive gene, mine DQ9 that is considered an RA gene here. My joint and muscle pain and the resulting damage to the joints has been in remission now since a couple of months into the diet. The only time I flare now is if glutened, which is now rare.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
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    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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