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Found This On Another Message Board


stef-the-kicking-cuty

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stef-the-kicking-cuty Enthusiast

Yes, I know and I already apologized. I just don't think it's a good idea anymore for me to hang out there. Maybe anybody else does it. I sure don't want to be a prick and if anybody askes me for help i sure won't say no. But on my own i'm not doing anything anymore. I'll stay on this message board here, where we know each other. I'm just sick of helping anywhere else. That's all...

Hugs, Stef


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Jessica36 Newbie

No problem, but I may come bug you if people ask about Celiac ;) And I have been meaning to post this over here. It is an awesome way to help explain anything and everything about having our multiple issues.

Open Original Shared Link

HUGS

~J~

stef-the-kicking-cuty Enthusiast

That's nice. The spoon theory :lol: . That's a very good way to say it. Thanks for sharing.

Hugs, Stef

Twister2 Contributor

celiac3270, I just read in your signature that you are having surgery for malrotated intestines??? Best of luck and i'll keep you in my prayers. Let us know how you are doing post-surg ok?

Hugs,

Twister

celiac3270 Collaborator

I will :). It'll be tough to leave, cause as you can probably tell, I live on this board! When I'm not doing homework or sleeping or eating, I'm on here posting--I'm going to go through withdrawl being away for a few days :lol:

mommida Enthusiast

Steph,

You have helped me. I learned about something new.

It just so happens a mother at school approached to ask me about Celiac. Her daughter has the peanut allergy at school. Her younger child at home is now going through the symptoms of Celiac or maybe E.E. I could only tell her about Celiac at the time, because I never heard of E.E. I will tell her about E.E. If the information helps her, I will let you know if I hear anything. You may have helped a child get an earlier diagnoses, for something we know the are very painfull symptoms.

Maybe things didn't go the way you hoped, but you may have helped more people than you ever imagined. You acted from your heart.

Thank you,

Laura

stef-the-kicking-cuty Enthusiast

Thanks, that's awesome to know :D . But i'm still sad, i pissed of some other people <_< .

Hugs, Stef


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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