Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reactor And Nonreactor


aldociao

Recommended Posts

aldociao Rookie

A question keeps coming to mind whenever I read about the different reactions we are having to the same foods. Like today, when one post was recommending McGann's Irish Oatmeal because the poster never has a reaction to it and therefore considers it safe, and another post quickly offered the observation that she had a severe and unmistakable reaction soon after eating the oatmeal and so for her it was off limits.

The usual explanation--correct me if I'm wrong--is that we are different. Some can tolerate what others cannot. I'm not sure what this means, but I'm guessing that it means our digestive systems are different, that is, more or less damaged by the gluten, and possibly by food allergies, and so we can have a more or less (or no) reaction to the questionable food, or ingredient. If the condition is a food allergy I can understand one not bothering too much about the possible damage that is being done because our antibodies are doing supposedly their job. And apart from an elavated rise in antibodies there is no damage being done to the body, outside of, I would guess, a certain amount of wear and tear. (Is this so?)

My real concern is about those of us, probably most of us, who have celiac disease. Being an autoimmune disorder, isn't it slowly, and maybe not so slowly for some, wrecking havoc with our insides, whether we know it or not? And no matter how little gluten gets into our bodies? Or so I have been led to believe by reading the posts on this Board. If this is so, how can we be sure when ingesting a food that most would consider risky, like oatmeal--at least to the extent that nothing conclusive has been found either way--that we are not damaging our bodies? Especially if you're mostly a non-reactor, with only minor reactions. And isn't it possible for those who normally are very sensitive to gluten, or to certain forms of it, like in wheat, to be less sensitive to the form of gluten in other grains so that they are not visibly reacting but may be doing damage nonetheless. Is it possible to get a definitive answer to this? Or is it just one more troubling uncertainty that we will have to live with, along with everything else? --Aldo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Aldo,

I don't know the answers to the questions you have posed (although I will say that your understanding of allergies concurs with mine), but I did have a thought to share. I wonder if celiacs who react to oats have the less common gene for celiac disease (or even a third, as a recent post here indicated DOES exist!). It would be really interesting to see this factor addressed in a future study. In the meantime, I am choosing to avoid oats for now. Back in the days when I was wheat-free but not gluten-free, I had huge reactions to barley but none (that were obvious, at least) to oats. Possibly, after a few years on the gluten-free diet and after a stool test from Enterolab indicates that I am doing acceptably well, I may decide to test oats and see what happens to my antibody levels. I hope I can eventually have them because I really enjoy them, but I am certainly doing fine without them.

I hope you're doing well!

clare Newbie

My body seems to have a love/hate relationship with oatmeal. Granted, the only kind I've been able to find here consistently (Korea) is the giant Costco pack of instant flavoured oatmeal. I gave it up for a while but after two months straight of brown rice flakes for breakfast, decided to give it another try since they had a different variety of flavours when I was at Costco last week. It's my suspicion that the cinnamon&spice variety was the culprit, since I haven't had any reaction yet. If it starts causing trouble again, I guess I'll have to resign myself to the brown rice flakes (a.k.a cardboard bits) till I move back to Canada.... :huh:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,876
    • Most Online (within 30 mins)
      7,748

    Karin Majdecki
    Newest Member
    Karin Majdecki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.