Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sticking With It


hacilar666

Recommended Posts

hacilar666 Newbie

I was diagnosed over a year ago. I have been gluten free and enjoying it and found some great alternatives, but this last week I have been so fed up with all the things I can't eat and how hard it is to maintain. If I'm out late at night I can't just stop at a fast food joint and get something quick. I can't have the cookies my friends make. I can't have crusty sourdough bread. Those are the things I really miss. I finally gave up and indulged in allsorts of gluten-filled delights at a dinner party and now I'm paying for it. I have terrible intetinal pains and I know I'll be in an impenetrable fog tomorrow at work especially since I'm not getting sleep, but I just don't know how strong I can be. I try so hard to be careful about cc and eating good things, but then I get accidentally glutened anyway. I'm feeling really worn out and frustrated with the gluten-free lifestyle. I think the hardest part is snacks and instant lunches and the need for food on the go. Does anyone have any suggestions to make this easier?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFNoleGirl Newbie
I was diagnosed over a year ago. I have been gluten free and enjoying it and found some great alternatives, but this last week I have been so fed up with all the things I can't eat and how hard it is to maintain. If I'm out late at night I can't just stop at a fast food joint and get something quick. I can't have the cookies my friends make. I can't have crusty sourdough bread. Those are the things I really miss. I finally gave up and indulged in allsorts of gluten-filled delights at a dinner party and now I'm paying for it. I have terrible intetinal pains and I know I'll be in an impenetrable fog tomorrow at work especially since I'm not getting sleep, but I just don't know how strong I can be. I try so hard to be careful about cc and eating good things, but then I get accidentally glutened anyway. I'm feeling really worn out and frustrated with the gluten-free lifestyle. I think the hardest part is snacks and instant lunches and the need for food on the go. Does anyone have any suggestions to make this easier?

I definitely know how you feel. It is really hard when everyone else is enjoying food with ease and you have to stay away from almost everything. I have my ups and downs, but I find it better if I just keep telling myself that the consequences are just not worth it ( I am sure you are feeling it now). I have found some gluten-free snacks in Publix. They have a Organic section. Also for snacks, I usually have raisins, Tostito corn chips, fruit (fruit cups are easy to take with you) and Nut Thins are really good and great for snacking! For lunches I have been making chicken salad, or a corn wrap with cheese, ham or turkey. Salads are kind of easy once you find a gluten-free dressing (Newman's Own has several gluten-free dressings). Gluten-free food on the go is kind of hard to find, but these foods I find pretty fast and easy to make. I call myself "the bag lady" now because when I go out anywhere I make sure I have something I can eat in my purse. You never know when you will be stuck with absolutely nothing you can eat! I hope this helps! :)

Phyllis28 Apprentice

gluten-free NoleGirl "the bag lady" has it correct, always have food with you. Other strategies for food on the go are:

1) Research the fast food restaurants in your area Chick-fil-a and Wendys both have gluten free menus

2) Know where you can get a safe meal or even a partial meal such as a baked potato.

3) Carry gluten free salad dressing and know where you can get a safe salad. I make my own salad dressing from rice vinegar, sunflower oil, ground oregono, salt. pepper and garlic powder. It does not need to be refrigerated. I keep one serving (about 2 oz) in my purse in a leak proof container

4) Plan, when possible - If I know I am going to be out for an extended period of time I pack a meal and snacks in a soft sided lunchbox with blue ice. I simply bring out my own meal while everyone else orders their food.

Hope you feel better soon.

missy'smom Collaborator

We all feel like that sometimes. I don't have a problem most of the time because I'm not around people when they're eating but it's hard at potlucks and when my family eats really good stuff in front of me(which thankfully doesn't happen often). They had a pizza the other day that looked SO good. In situations like that I want to grab a piece and say"the hell with it" but I was very sick for so many years and saw family members really suffer, that I just look away and don't act on it. I know that having my health now and as I age is worth it.

Wendy's chili is gluten-free and they are located on the routes I take when I am out so it's my "tide me over 'till the next meal" thing if I need it. I'm not crazy about it but it serves it's purpose. I always have a larabar in my bag. Planning ahead is key for me as is having a few coping strategies. I like to eat on somewhat of a regular schedule so I loosely schedule my day around meal times. I'll often run a few errands, come home, eat and go out again for more errands in the afternoon if need be. I take food everywhere. Plan what I'm bringing the night before. We have suitable containers, silverware just for the lunches(real or disposable)ice packs, and lunchboxes and reusable lunch bags on hand. When I have time I make and freeze main dishes that can defrosted and slightly warmed, just to freshen, put in the container and eaten without warming-up(eaten at room temp). I add some rice from the automatic rice cooker(minimal effort) and add fresh veg and fruit. It takes me about 10 min. in the morning to throw a lunch together. The contents vary but the method is fairly consistant so I can do it even when I'm slow and groggy in the am. If you're a salad person, come up with a few basic salads, varying the toppings and meats, you can prep the toppings the night before and cook and freeze some meats(grilled or breaded chicken or steak) ahead of time. Buy some small containers and fill them with dressings in advance and keep a stash. Then just assemble in the am. That could be your basic method. The standard American sandwich, chips and fruit lunch is easy not only because it requires little or no cooking but also because it is a method, the ingredients vary a little but the method is consistant so requires less mental energy.

I make and freeze choc. cupcakes, unfrosted and brownies, cut up. I grab pretzels and put some in a ziplock as I'm heading out the door sometimes.

There are some indian and thai instant meals if you have access to a microwave or hot water when you are out. Tasty Bite is one of the Indian ones, Some of them come with a rice and a curry in the box.

I preprep pizzas. I buy Kinnikinnick premade pizza crusts, put sauce, cheese, and pepperoni on then place on a baking sheet and freeze until sauce is no longer wet. Wrap individually and put back in the bag. When ready just pop into a preheated oven. Can do this in the am for a lunch to go.

Print out the gluten-free menues from websites and put them in a folder and keep in the car. I use a portfolio with clear plastic pages that you can slide the print out down into.

Im sure I could list many more things. Hang in there and take care of yourself.

ericajones80 Newbie

Wendy's chili has been a fast food staple of mine

Jestgar Rising Star

Instead of stopping at a fast food place I stop at a grocery store and get some meat and cheese to eat. Bonus if they have some gluten-free crackers or rice cakes.

Hummingbird4 Explorer

Wow - some great ideas here! THANKS! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.