Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thank God, They Found My Problem At Last!

celiac3270

By celiac3270
in Related Issues & Disorders

Recommended Posts

celiac3270 Collaborator
celiac3270
Posted

I am so happy! Yesterday, Feb. 10, I was at the hospital for an upper gi and small bowel follow through. Since I'm still getting sick, despite a small intestine that has been healed for months, he wanted to see if there was a structural problem. Basically, they took photos and looked at my intestines. Then they told me to drink this white liquid that tasted like chalk--disgusting--called barium. They had to wait for it to go through my system, so I walked for about four hours, trying to get it to go through my system. They took x-rays every 30 minutes--they started at 9:00 and I wasn't out of the hospital till about 2:00. When the stuff got through me, they took more x-rays. It sounded like there was a problem since the two radiologists kept questioning where something was or where it led to with my intestines.

The doctor called my mom today: I have malrotation of the intestines. Basically, when I feel stomach pains, it's that my intestines are twisting into a corkscrew and nothing can get through. After awhile, they twist back. Next Tuesday, Feb. 15th, I'm going in for the "surgery"--where they make a small incision at my belly button and do something to correct it.

I'm just so happy that they've found it. My 1 yr. anniversary of diagnosis will be the 18th--and I should be healthy by then! The doctor said I'll feel the results immediately.

I just wanted to share the news and thank everyone who tried to help me find my problem. It's been so long since I've felt healthy!

-celiac3270

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

celiac3270-That is so great that they found that!! :D I had that done before to and had to drink all that chalk like stuff. At least they flavored it but it was still pretty nasty. I hope that makes you feel better when you have the surgery done...I'm so happy for you! :D Good luck

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hey celiac3270, that is so awesome. I'm so happy for you :D. Keep us informed about the outgoing of the "surgery". In germany we press our thumbs to wish you good luck.

:P Now i have to figure out how to make my bread until next tuesday with pressed thumbs :P

Hugs, Stef

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

"The doctor said I'll feel the results immediately." Very wonderful, celiac3270!

Canadian Karen Community Regular
Canadian Karen
Posted

Oh celiac3270, I am soooo happy for you!! That is amazing news!!! You must be on Cloud 9....... finally an answer......

I will be keeping you in my prayers for the "surgery" and pray that you will finally have some relief!!!! I can almost feel your joy over the computer!!!

Have a wonderful day!

celiac3270 Collaborator
celiac3270
Posted
  • Author

Hi again,

More news. First, they've changed it from Tuesday to Monday. Don't have a time yet. Also, I'll have to stay in the hospital for a few days--gosh, didn't realize it was that major--I thought of it kinda like an endo, but with a slight incision. I'm scared to even think of a hospital nutritionist w/ my food and all--after all, I've heard stories here about the dietician who brings you white bread and thinks it's all right since it's white, not wheat. I'd know not to eat it, but I'd be scared of contamination or hidden gluten they wouldn't check out. So I'm bringing my own food. Thank you for the well wishes :D.

I am really excited that they found it--on Cloud 9, as Karen said :) --just kinda scared about the procedure if I need to stay in the hospital for days--darn, that means I'll miss a couple days of posting...lol...I'm on multiple times a day--I'll go nuts :lol:

Guest Leidenschaft
Guest Leidenschaft
Posted

Hey celiac3270, in dogs and horses we call that "bloat"!! :D It's often instantly fatal! :blink:

Good to hear that you've finally learned something concrete AND they can fix it! :P

Hope they don't poison you in the hospital, and that you can thoroughly enjoy your favourite gluten-free meal on your anniversary!

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Oh, i'm so happy for you. That's so cool! :lol: Finally a really good happy end with all of our "scary" stories. Woohoooh! I'm sure, everything will work fine and we will think of you, while your not here. B)

Hugs, Stef

tarnalberry Community Regular
tarnalberry
Posted

That's great they found it!!! Good luck with the surgery, and a speedy recover!

Jessica36 Newbie
Jessica36
Posted

celiac3270 ~ I am so happy they found out what was causing your pain! I will be looking for updates and keeping you in my thoughts next week.

BTW yep I get but what about white bread OR I am sure everyone can appreciate it, But it isn't Wheat flour, it's White Flour. <_< Yep and white flor is BLEACH wheat flour, sigh.

:wub: and Fingers Crossed!

~Jessica

Guest jhmom
Guest jhmom
Posted

celiac3270, I am very happy they found your problem and now you are on the road to GREAT health!!!!! :D We will miss you while your in the hospital!!!!

You will be in my thoughts and prayers.

Happycat Rookie
Happycat
Posted

I'm sooo happy for you!! :D

Lisa

angel-jd1 Community Regular
angel-jd1
Posted

celiac3270-

Congrats, on the diagnosis (is that proper to say when somebody has to have surgery?? ha :blink: ) I have a friend who has that condition. Take care of yourself and you will be in my prayers and thoughts!! Good luck and don't worry about things too much, the added stress isn't good for you.

-Jessica :rolleyes:

bmorrow Rookie
bmorrow
Posted

celiac3270,

I am very happy that the doctors found your problem. We will all be thinking of you and know that you will feel much better after you recover from the surgery! :rolleyes:

Beverly

Carriefaith Enthusiast
Carriefaith
Posted

celiac3270

I am so happy for you... Finally an answer to all your troubles.

You will feel better before you know it! I hope the surgery goes well! B)

Best of luck,

Carrie

FaithInScienceToo Contributor
FaithInScienceToo
Posted

Hi celiac3270,

Don't know if you've had surgery before, but I sure have...many times.

My best advice: As they put you under, sing your favorite song to yourself in your head, and think of your favorite person...you should wake feeling happy :)

Best wishes for a very speedy recovery,

Gina

mommida Enthusiast
mommida
Posted

I am so glad to know my favorite poster is going to feel better soon!

I will be saying prayers and thinking of you.

Good Luck!

Laura

mela14 Enthusiast
mela14
Posted

You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I had surgery in July 2004 for severe adhesions which were keep my intestines stuck to other organs. BM's were horrible....as there was so much pain afterwards. I feel soooooooooooo much better since having everything freed up! but.....I still have to watch my diet with respect to the intolerances.

Hang in there better days are coming!

celiac3270 Collaborator
celiac3270
Posted
  • Author
You must be getting ready for your surgery for tomorrow. Good luck and keep us posted. I'm SURE you'll feel much better once your intestines are unscrewed!!! but remember you will still have to keep up with the gluten-free diet!

I am getting ready--and bringing many gluten-free foods in case I they try to give me white bread and saltines and I decide that I can't trust their food.

I will post when I get out--which will be Wed. or Thurs., I think.

And I know about the gluten-free diet--I'm just thrilled cause this should be the end of my symptoms.

Canadian Karen Community Regular
Canadian Karen
Posted

celiac3270,

I know you are probably already in bed getting a good rest for tomorrow but I wanted to wish you luck and send you healthy vibes..... You will do fine tomorrow and I will be thinking about you all day tomorrow!! A new world is opening up for you!!!!

Good Luck!!!!

Karen

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi celiac3270,

I just thought about you. Positive energy from me also. And get well soon.

Hugs, Stef

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I have ben thinking about celiac3270 lots today.

I hope he didn't forget his walkmen!

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Yeah, I really hope, everything is alright. He's a good kid!

Maggie1956 Rookie
Maggie1956
Posted

celiac3270, I'm so pleased to hear you finally have an answer to your problems. Try not to worry about your hospital stay. We'll all be thinking of you.

Let us all know the next exciting chapter when you can.

Prayers being said for you... :wub:

Maggie1956 Rookie
Maggie1956
Posted

:lol: I just realised that celiac3270's surgery is probably all over by now.

It's going to be good to get that update when he gets home!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    2. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
    5. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.