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Gluten Free[dom]


Live2BWell

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Live2BWell Enthusiast

So, I have been so hesitantabout going gluten free. I joined this forum a while ago, and have a plethora of diagnoses which include Diabetes II,Hashimotos,IBS,GERD,Dysphagia,Restless Leg Syndrome, ADD/ADHD, and the list goes on; I have tested positive for food sensitivity to Whole Milk, Egg, Wheat (non-glutenated), Soy, Yeast, Cocoa Bean, Mixed Nuts, & Shellfish.

I had a colonoscopy over a week ago, and and my biopsies came back okay (which it's my understanding that doesn't mean much in ways of gluten intolerance.)

Up until recently, I have been feeling so sick - not only GI wise, but many symptoms from which I am told stem from the autoimmune disorder(s) I have been diagnosed with. I am also told they will "even-out" once I get my thyroid under control, and if they don't, then they have to explore the other conditions such as Fibromyalgia, CFIDS, or Dysautonomia - medical mumbo jumbo if you ask me ~ I don't care what I have, I do care how I feel though!

It goes without saying that feeling poorly physically, has certainly contributed to my feeling poorly emotionally, and I have been depressed. Now that I feel a bit better, I also feel a bit more about taking care of myself better (it could have to do with the fact that I have some energy back and I do not hurt so bad I'm confined to the couch.)

So this morning I woke up, and decided today I was going to go Gluten Free, to see if I feel any better. I have heard so many positive things, and if anything it can't hurt me ... So why am I being so stubborn? I have been fighting it for a while now, but literally woke up this morning and said "why not?," and... so far, I have been successfully gluten free (and it's almost 5pm) - okay, so maybe that's not all that much to be gung ho about, but it makes me proud nonetheless. Ask me again in a few days, and I may feel differently :P

I am also almost done with the book "Living Gluten Free For Dummies" by Danna Korn, and I have to say that it has been my personal cheerleader, and an excellent read on "gluten freedom," as Ms. Korn calls it (I highly suggest it!)

So, here's to DAY #1 of being gluten-free .....


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ohsotired Enthusiast

Jess!

YAY FOR YOU!!!!

I really, really hope that this helps you! Just be strong, and remember to take baby steps - one day at a time.

(((HUGS))) You can do it! ;)

curlyfries Contributor

Jessica,

I am so glad you have decided to take the leap! You won't regret it! Just remember........some symptoms may show an immediate response, others will take longer. If you have any problems or questions, let me know. It takes time to get it right, but it's worth it! :D

Hummingbird4 Explorer

Hi there Jessica! I officially started gluten-free today too. Although I have eaten gluten-free the past few days, but today is my OFFICIAL start-date.

Best of luck to you - and I hope this is the answer you have been looking for! I have the Gluten-free for Dummies book too; also, the Gluten-Free Bible (which I just started reading). I have learned a ton from the books, and this site as well as others. I met with a dietician earlier this week, and it seemed I knew more about celiac disease and the gluten-free diet than she did. :rolleyes:

Live2BWell Enthusiast

ohsotired ~ Hey Chick! It was great talking to you tonight, thanks for the support! I am so excited to hear how you enjoy the book, and for you to get all this figured out too! Have a great night, hon :)

curlyfries ~ Thanks so much! I've already posted a few questions here and there around the forum, feel free to answer any of them (or all of them, LoL !!!) Thanks again for your encouragement B)

hummingbird4~ Yay for you on DAY #1 ! How'd it go?

sickchick Community Regular

Congratulations Sweetheart! Keep positive and optomistic! B)

ohsotired Enthusiast

It was great talking to you too! You need to get really good at this gluten free thing so you can give ME pointers once I start it up again! LOL I'm gonna go pick up the book tomorrow so I can psych myself up for starting the diet again once I'm done with all my stupid tests. Hope tomorrow is another successful day for you!


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gfpaperdoll Rookie

Keep us posted on your progress!!!! Yea for gluten-free!!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
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