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Been Eating Wheat Now For A Few Months


CuriousOne

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CuriousOne Apprentice

Well I don't know what to say.

I started eating wheat again a few months ago, and basically been eating it everyday.

I guess gluten-free showed me what wheat really can do...

I still think it oddly contributes to depression...but only if I start eating too much of it... I think its just if I eat it too much, and that includes diary too...then it starts clogging me up inside more than my body can clean itself...so I start feeling very stagnant which then can setup depressive feelings. But honestly this has only happened a few times the past few months, and if this happens I know I need to drink some wine, some water... exercise...and just eat cleaner things for the next 4 hours or so...

I am just now more aware of what I'm doing... aware of how it can affect me.

Before I used to just eat wheat almost subconsciously...and dairy... and not only that...but eat it very fast and not even chew it well... most of the time. That is the worst way to eat that stuff...since you can't digest it that way.

So now when I eat dairy or wheat... I just try to eat it very slowly and chew very well...although I've only been doing that the last week or so...it really seems to help. But before when I started eating wheat a few months ago, I would just eat it once a day... drink more wine...drink more fluids and apple cider vinegar...stuff to help clean out the system...

Right now I'm actually trying to eat more raw fruits and veggies...since they digest super well, and don't make you feel any slightest bit tired and make you feel something high in some ways. Its just good. I don't think I'd ever become a raw vegan or anything but I think its good to eat more stuff like that.

Good luck to everyone. I think I'll be okay... but maybe my villi will suddenly go out on me and i'll come crawling back. Haha...but in all honesty I'm glad I went through this journey because at least I have the power of knowledge. I don't think my villi were getting damaged, I just think I may not digest wheat or dairy SUPER well...although I still can digest it. I just have to not be unconscious about my consumption.

Best of luck to you all!!


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Woolygimp Contributor

If you were diagnosed Celiac and you are eating wheat then it's natural selection at it's finest.

On the other hand, I don't see the point in telling a board full of Celiacs about the intricacies of your diet if you weren't diagnosed Celiac. Maybe I'm mistaken, but this is almost like someone going to a peanut allergy forum and making a post saying, "Hey guys, I just ate a peanut butter and jelly sandwhich. It was good and it didn't kill me because I'm not allergic to peanuts."

Jestgar Rising Star

Well, it's your body and its up to you to decide how best to take care of it. If this works for you, then great. If you discover it doesn't work for you, then please come back and catalog your journey so that others can learn from your experience.

aorona Rookie

obviously you are not concerned if wheat [gluten] is killing you or not. How do you know that your villi have not been damaged by eating gluten? I guess giving up gluten is more difficult for some than others. For me it was easy since I finally had an answer to my lifelong illness. Good luck.

GFinDC Veteran

Well, I hope it works out for you Curious. If you were not diagnosed celiac and don't think you have celiac then I suppose it might make sense to go back to that evil grain. Horrors! :(

But of course if you were diagnosed that is entirely different, and very bad for your health to continue eating wheat. I hope you learned some good eating habits on the gluten-free diet. I do believe it is healthier than a wheat based diet. If you do have problems in the future perhaps an elimination diet would be a good thing to try. There are plenty of things that can cause problems and you may have food allergies to something. I have just figured out I have a reaction to yeast and am cutting it out of my diet.

Thanks for stopping in and letting us know your decision. I do hope ti works out well for you. :wub:

ravenwoodglass Mentor

Do bear in mind that some of us after we heal will SEEM to be able to tolerate gluten for a time. This is called the honeymoon effect and was the main reason why they used to think that celiac was a childhood disease that could be outgrown. We now know that was not the reality. It can take time for the antibodies to build up enough for some of us to become symptomatic again. Also you mention depression as one of the features you are seeing. When celiac attacks the brain as a first choice it can be years before the GI symptoms develop and meanwhile your other organs are being damaged. With depression present you are running a big risk to your nervous system if you are celiac. Hopefully you won't develop the brain white matter lesions that I did which severely effected my ability to walk, or the arthritis that made even holding a pen painful, or thyroid issues, or any of the other non-GI presentations.

CuriousOne Apprentice

Well I think for me it isn't necessarily Celiac...but probably a spectrum of intolerance with dairy and wheat.

I think for me its about knowing how to eat these foods...and listening to my body. My problems in the past were from not eating them correctly...gulfing down these foods. If I ate enough of them fast, it literally could put me in a opiate haze... and also just having tons of undigested or slowly digesting food could dull me way down.. so I was using it like a drug.

But I realized from eating different ways over the years how you can do the same thing with a chicken and rice dish.

Right now I just feel pretty good.

But one thing also, is that I was looking for some magic-ticket to be happy all the time... what I really found was that eating certain ways can make you not have so much gunk inside you...so you can feel lighter, and feel things more and get highs from a spiritual level...

What has been helping me the most is to become more social... to get more friends and have good times. To care about other people. These simple things make you feel great, connected... not self-centered. And I eat less because I get nourishment from socializing.

Thanks, good luck to you all.


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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