Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Low


cymrudenver

Recommended Posts

cymrudenver Apprentice

I got a bunch of labs back yesterday and my Vitamin D is low so my PCP has started me on 50,000iu once a week for 12 weeks then re-check.

I meet with a hematologist on Thursday for an IV Iron therapy plan and maybe B12 shots too.

Am I alone? Anyone been though this and seen huge improvements? I just want to not feel tired 24/7.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dksart Apprentice

Not that I was tested, I have no insurance right now, but after tons of research and comparing symptoms of other celiacs on this site, I take sublingual B-12(cobalamin), vitamin D, Magnesium, Calcium and Iron supplements. My energy level and stamina have been much improved and my weird eye twitch is gone. The nightly unbearable leg cramps and muscle spasms have also almost all dissappeared.

I used to become completely fatigued after only a few minutes of any kind of physical activity and now I can even garden or walk the mall. My 2 and 3 year old niece and nephew sleeping over still causes me to be in bed some of the following day, but I can pretty much keep up with them while they are here!

Pro-Biotics daily have helped keep my C and/or D and other digestive issues in check.

I have just started taking a joint fluid blend including glucosamine, chondroitin, Hylauronic Acid and MSM. I am also considering getting some sam-E. All of those are supposed to help with my arthritis and poly-fibromyalsia symptoms which have become worse lately. Although, I do think much of that is because I have rA and have not seen a doctor for it.

For digestion and energy/well-being, I am trying a combintion of noni juice and goji berries......we'll see how that goes!

lobita Apprentice
I got a bunch of labs back yesterday and my Vitamin D is low so my PCP has started me on 50,000iu once a week for 12 weeks then re-check.

I meet with a hematologist on Thursday for an IV Iron therapy plan and maybe B12 shots too.

Am I alone? Anyone been though this and seen huge improvements? I just want to not feel tired 24/7.

I haven't been tested for low Vitamin D, but this past winter I was sick for almost two months (really tired, I generally didn't feel good and was losing hair), and I thought some kind of light exposure might perk me up (I live in Chicago). So I started indoor tanning, and right away I noticed a difference. My health grew stronger, and sixth months later, I still tan every week and feel great (and people say I look good too, heh). Of course, one has to consider the possibility of skin cancer, which is always a health consequence of indoor tanning.

I know that sounds really weird, but it worked for me. And I'm not saying it'll help everybody, but just sharing my experience.

Ursa Major Collaborator
I got a bunch of labs back yesterday and my Vitamin D is low so my PCP has started me on 50,000iu once a week for 12 weeks then re-check.

I meet with a hematologist on Thursday for an IV Iron therapy plan and maybe B12 shots too.

Am I alone? Anyone been though this and seen huge improvements? I just want to not feel tired 24/7.

The problem with prescription vitamin D is, that it is usually the artificial kind (D2), which is almost useless, and some studies show it to be dangerous to your health.

What you need is vitamin D3, which is in cod liver oil. My vitamin D was quite low when tested almost three years ago. I started taking Carlson's cod liver oil (two tablespoons a day), and when re-tested a year later, my vitamin D levels were getting too high, so I had to cut back on my dosage.

Carlson's cod liver oil is considered to be one of the very best, and it actually doesn't taste gross.

Iron IVs and and B12 shots are an excellent idea. With all that, I am sure you'll improve very quickly.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,519
    • Most Online (within 30 mins)
      7,748

    jaimelok24
    Newest Member
    jaimelok24
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.