Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Newbie In Town


Tsunami

Recommended Posts

Tsunami Newbie

Well...I was just diagnosed w/ celiacs and I'm full of questions. The dr will bring me in next week to discuss things, but in the meantime, I'm lost.

When I read food labels, some will say "natural thickeners." What does that mean? Is this ok to eat? The label says nothing about gluten free, but no wheat or wheat product is listed, so I'm a bit onfused.

Oats....what is up with oats? Are they ok to eat or not. I keep hearing both sides.

Finally, milk...should I give it up, or slow down on consumption. I've already slowed down on my milk intake, to just the occasional bowl of cereal, cream in coffee...yogurt and ice cream...I just feel overwhelmed and I'm not sure what to do until my dr. appt.

Thanks for any help...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

It is very overwhelming in the beginning. I remember having a breakdown in the middle of Walmart because I had no idea what my poor son was going to eat. I would stick to whole foods until you have a chance to speak to your doctor. Meats, fruits, and veggies are gluten free and there are no ingredient lists to stress over. Celiac's are told to stay away from oats due to contamination during processing. While your body is healing, Celiacs are also told to avoid dairy. You can slowly add it back in time. There is a link (and I'm sure someone will post it for you - I'm not that computer savvy) that lists all safe and unsafe ingredients. It's a big list and it will seem impossible to learn it all but it does get easier. Many companies will fully disclose gluten in their products (there is a link to this list too but I know Kraft is one of them) so it pays to learn these company names. My family is very brand loyal due to that. Walmart's Great Value brand states Gluten-Free on their products that are free of gluten. This forum has helped me so much. Danna Korn's book Living Gluten Free for Dummies also helped me. Good luck to you!

Tsunami Newbie

Hi Amyleigh...

Thank you for the advise....That is basically what I've been doing...with those occasional flings w/ dairy. I am going to hit walmart today, take a look around the place....

I was also wondering, just as an off the wall question if you know much about sushi? I imagine the sauces and flavorings are things to avoid, but I was wondering about the wasabi and the sea weed wrap. I already know most soy sauces are out.

Thanks again...and hang in there...

It is very overwhelming in the beginning. I remember having a breakdown in the middle of Walmart because I had no idea what my poor son was going to eat. I would stick to whole foods until you have a chance to speak to your doctor. Meats, fruits, and veggies are gluten free and there are no ingredient lists to stress over. Celiac's are told to stay away from oats due to contamination during processing. While your body is healing, Celiacs are also told to avoid dairy. You can slowly add it back in time. There is a link (and I'm sure someone will post it for you - I'm not that computer savvy) that lists all safe and unsafe ingredients. It's a big list and it will seem impossible to learn it all but it does get easier. Many companies will fully disclose gluten in their products (there is a link to this list too but I know Kraft is one of them) so it pays to learn these company names. My family is very brand loyal due to that. Walmart's Great Value brand states Gluten-Free on their products that are free of gluten. This forum has helped me so much. Danna Korn's book Living Gluten Free for Dummies also helped me. Good luck to you!
missy'smom Collaborator

The lists of safe and undafe ingredients are on this page.

https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Remember that wheat is required to be listed by law but barley and is not.

Some nori(seaweed paper) is gluten-free, others are not. The one that they use for sushi is supposed to be unseasoned and gluten-free, but you should ask. The kind that is not gluten-free has soy sauce or teriyaki sauce in it. Fake crab meat is not gluten-free, ask to substitute with fresh real crab meat. The egg can sometimes have a broth or other non-gluten-free ingredients in it so ask about that too. There are many threads about sushi on the forum. Check them out before you go.

Here is the link to the list of companies that will disclose all gluten.

Open Original Shared Link

When in doubt, go without. And don't be afraid to call the 800 numbers. Most are helpful. You can also find info. on the company or product websites. Look in Contact Us or FAQ's.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748

    AnnaLousGFBakery
    Newest Member
    AnnaLousGFBakery
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.