Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Borborygmi

Katsby

By Katsby
in Coping with Celiac Disease

Recommended Posts

Katsby Apprentice
Katsby
Posted

The one way I always know I've been glutened is when the sound of small animals trying to claw their way out of my gut start. Seriously it is really loud. It's always accompanied with a lot of pain too besides the ever annoying gas, bloating, and D. I am pretty good about not ingesting accidental gluten. I check all my labels, but recently I was accidentally glutened by cc and it's the first time since the beginning (about 3 months ago) I've been glutened.

The problem is that this noise is really hard to deal with on top of everything else. Other people can hear it. People ask me if I'm hungry. How do you guys deal with this if you do get glutened? Do you just wait it out? is there something you take for it? I haven't found a gas pill that will really take it away. It usually lasts a few days. I tried a probiotic yesterday thinking maybe somehow it would help, but no it didn't.

I hope I don't get glutened again. I am pretty careful. I guess I am just stuck with this for the next few days :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I can definately identify with this :D Even as a child I realized that when I ate breakfast before school my tummy would be louder not quieter. By adulthood the constant rumblings were always present and I usually carried a coat or at least a big purse to put on my lap if I was going somewhere quiet. The only thing that stopped the noise was being gluten-free and when glutened like you I deal with the rumbles again for a couple of days. I haven't found anything that will stop them but wanted to let you know your not alone in this. Hopefully someone else will come on with some more helpful advice.

jerseyangel Proficient
jerseyangel
Posted

I have this problem too. Like Ravenwood, when I was a child I would eat breakfast (usually cereal) and my stomach would growl in school by mid morning. It was embarassing and I remember trying to tighten up my abdominal muscles in order to try and stop it.

Now, when I get glutened (by CC), I get the rumbling, along with cramping and D.

I don't know how to stop them, only prevent them by being completely gluten-free.

Juliebove Rising Star
Juliebove
Posted

I get this from eggs. Took me a very long time to make the connection. Mostly it would be when I was on vacation and eating differently than at home. Often I would have a muffin or donut because they were free. I thought it was the sugar in them or something that was making me feel so bad.

Then when my daughter was diagnosed with food allergies, I stopped eating eggs. The problem went away. Then I got some egg salad one day and it started up again, followed by my being violently ill.

I can remember it happening at work, but I can't remember what I ate on those days. Could have been boiled eggs or egg noodles or something else with eggs in it.

I just went to the allergist and she said what I have is not an allergy but I clearly can't eat eggs, dairy or almonds without a problem.

gfmolly Contributor
gfmolly
Posted
The one way I always know I've been glutened is when the sound of small animals trying to claw their way out of my gut start. Seriously it is really loud. It's always accompanied with a lot of pain too besides the ever annoying gas, bloating, and D. I am pretty good about not ingesting accidental gluten. I check all my labels, but recently I was accidentally glutened by cc and it's the first time since the beginning (about 3 months ago) I've been glutened.

The problem is that this noise is really hard to deal with on top of everything else. Other people can hear it. People ask me if I'm hungry. How do you guys deal with this if you do get glutened? Do you just wait it out? is there something you take for it? I haven't found a gas pill that will really take it away. It usually lasts a few days. I tried a probiotic yesterday thinking maybe somehow it would help, but no it didn't.

I hope I don't get glutened again. I am pretty careful. I guess I am just stuck with this for the next few days :(

Again more sympathy.....I have the same issue. It is so much better now that I have been gluten free for over a year, but that is my telltale sign that I have been glutened. It sometimes happens when I consumer dairy as well. I do take a probiotic daily as a way to maintain balance in my gut. That seems to help.

Molly

ohsotired Enthusiast
ohsotired
Posted

Mine does it too, on a regular basis (I'm not gluten free - yet). My family members say things like "the aliens are talking again" or "are you hungry already?" (just depends on who it is).

The most horrifying incident was when I was in a staff meeting, and my boss finished talking about one subject, and was in that dead silence before beginning the next subject........"grblglgrlrohl" (or something like that). Thankfully it was right before lunch and I was able to play it off - but it wasn't because I was hungry!

I feel for ya too!

Katsby Apprentice
Katsby
Posted
  • Author
Mine does it too, on a regular basis (I'm not gluten free - yet). My family members say things like "the aliens are talking again" or "are you hungry already?" (just depends on who it is).

The most horrifying incident was when I was in a staff meeting, and my boss finished talking about one subject, and was in that dead silence before beginning the next subject........"grblglgrlrohl" (or something like that). Thankfully it was right before lunch and I was able to play it off - but it wasn't because I was hungry!

I feel for ya too!

It always happens at the worst time doesn't it?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ohsotired Enthusiast
ohsotired
Posted

It really does!

I just remembered another horrifying incident, but this one is really funny, looking back. I was mortified at the time.

My daughter was probably 3 or so, and we were at a restaurant........she hears the grumblies and mistakes it for something else. At the top of her lungs "Oh my gosh mommy did you just FART?!" :lol:

Calicoe Rookie
Calicoe
Posted

Yeah, I get these too. I am really dreading having to sit in a very quiet place with someone, or in class.

JNBunnie1 Community Regular
JNBunnie1
Posted
Yeah, I get these too. I am really dreading having to sit in a very quiet place with someone, or in class.

I get this, but not from gluten. I get it when I eat beans. We've established that beans are not allowed on work nights..............

Calicoe Rookie
Calicoe
Posted

That must explain my own recent grumblings this week.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748
    Jamie0230
    Newest Member
    Jamie0230
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      7yo struggling!

      By JForman · Posted

      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...