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Help... Postive Blood Neg Biopsy

hawaiimama

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hawaiimama Apprentice
hawaiimama
Posted

My family doc is pretty sure I have celiac. He ran these test and this is the results:

Antigliadin IgA 17 normal is <20

and\ IgG 59 normal is <20

Anti-tissue Transglutaminase Antibody (tTG) IgA 74 normal is <20

When he told me restults, he said you have celiac. Don't ever let anyone ever tell you you don't. He told me I MUST go gulten free ASAP and my SIL who is a doc concurred. He sent me for a biopsy and I really didn't want to go but I did. I told him I was a happy with blood results only but he insisted I needed biopsy. I thought it would take months but it took less than 4 weeks. The resident who was at the biopsy told me I might have to do a gluten challenge but the GI shook his head and said no 4 weeks was not enough ot heal damage. I don't remember ANY of the procedure but I saw the doc's notes afterward that noted scalloping. I called today to make nutritionist appt and get results. Results were "normal" according to secretary. I asked if it was pathology results and she said yes. I don't even get to have an appt with the doc because of the "normal".

I left a msg with nutritionist and she called me back tonight. She said there was a msg from the receptionist that said I needed an appt urgently? WTH? I just don't get it.

I'm completely confused. Family doc is on vacation until after labour day.

I have thyroid issues and have for years. We've been playing around with those meds so I'm not sure if I feel better because of that or going gluten-free. I have never had really bad stomach issues, jsut heart burn. I have had anemia and severe fatigue. The fatigue is all but gone but could be from changing thryoid meds.

Thoughts?

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ShayFL Enthusiast
ShayFL
Posted

Celiac often leads to Thyroid and anemia. Ask around here. Show of hands and most of us have these very issues. There are no "false positives" on the blood. Your Doctor is absolutely right. You are Celiac and you MUST eat gluten-free.

Biopsy has a high rate of false negatives because damage can be spotty. If they dont take samples from damaged areas, it wont show. Plus if you were eating gluten-free even for a few weeks before biopsy it can affect the results.

You are Celiac.

gluten-free will not only heal your insides....it can help heal your thyroid too. Many Celiacs find they can lower their thyroid meds after they heal. Some can get off of them all together.

Welcome.

Beth in NC Contributor
Beth in NC
Posted

Agreeing with Shay. I would also recommend that you call any offices that have done ANY testing on you and have them mail you the results. You need to be the one keeping up with them so you don't fall through the cracks.

hawaiimama Apprentice
hawaiimama
Posted
  • Author

I have copies of the bloodwork from my doc. He's good about that. I have no idea how to get copies form the hospital - the person I talked to was downright rude.

I hoping the nutritionist is good and has copies of my tests ;)

So no false positives from thyroid disease?

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      how much gluten do I need to eat before blood tests?

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