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Best Doctor Ever!

betsyabailey

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betsyabailey Rookie
betsyabailey
Posted

Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

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*lee-lee* Enthusiast
*lee-lee*
Posted

wow - that's awesome! i'm very happy for you. if only we could all be so lucky as to encounter wonderful doctors like yours.

ShayFL Enthusiast
ShayFL
Posted

A good doctor is a gem to treasure. Hold on to him!

dilettantesteph Collaborator
dilettantesteph
Posted
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

My son's(11 years) doc (ped) was equally wonderful. I wonder if I didn't even need to do the gluten challenge

with him, which also made him really sick. We only lasted 3 days. Maybe the fact that going gluten free

made him stop throwing up would have been good enough.

She also probably saved my life by suggesting that it might be celiac disease that was making him

throw up. I was more and more often not making it to the toilet. My docs had all said that it is IBS.

My mom died at 47 of lymphomia and I finally went gluten free at 49. All sorts of problems went away. I hadn't even heard of celiac disease.

She has been so incredibly understanding and helpful with problems with the school. She understands immediately all the problems with food, CC, medications containing gluten etc. I think I am in love. My son

was always so skinny and now he is getting a bit fat!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'm so glad you found a great ped!

I'm wondering if you are aware that lupus has a strong link with gluten intolerance? Many of us here believe that lupus is one of the things that can happen when you have gluten intolerance without screamingly obvious GI symptoms (which does happen to a lot of us), and therefore continue to eat gluten.

If you are not already gluten-free, please try the gluten-free diet ASAP, and see if it helps your symptoms (you will likely find that giving up dairy will help, too). You might also look up the Lyme disease thread on this board, and/or google "Lyme Disease and lupus" and see what comes up.

Best of luck to you! (And welcome aboard!)

CeliacAlli Apprentice
CeliacAlli
Posted
Hi, so I posted a few months ago about a preschool that required a diagnosis for an alternative diet. I decided to try a gluten challange on my son then 18 mo. 4 days later he was sick as a dog and had a diaper rash up to his ears (no joke) so I stopped it and talked to our ped. He reffered us to the best doc I have seen (I have lupus so I've seen my fair share) Dr Kelts in Santa Barbara Rocks! He got us in in 4 days from our referral, was personalble and totally on top of it. I've been reading these books where they say docs make you do multiple gluten challanges and was worried sick about my kid being miserable. He sat and listened and diagnosed him with NO TESTS! not even a blood draw. He said it's not always that easy but Aidan, my son, is classic celiac, I knew when I was breastfeeding. He gave me a note for his school and a bunch of local resources and sent us on our way. He said his philosophy is "do no harm" why get a baby sick if the treatment is working already! (that's what i was thinking) He also said if he ever gets into some gluten and gets a reaction that if we want he could test him then but that he'll never ask for a chalange! Just want to let everyone know, at least one thing was easy!

I'm so happy that you have a great doctor! =]

betsyabailey Rookie
betsyabailey
Posted
  • Author

Yeah I'd heard about the correlation between both and lupus. I had Lyme as a kid... grew up in Ct actually. And have been gluten-free since I started breast feeding my son. (Largely) I did test neg to Celiac though. I find it's easier to tell my kid to eat something I'm eating myself.

Thanks!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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