Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tcell Lymphocyte - Biopsy Positive

artselegance

Recommended Posts

artselegance Apprentice
artselegance
Posted

I'm new to all this....so I'll make this as brief as possible.

I was diagnosed B12 Deficient in December, 2007. Treatment for this includes Weekly injections, Sublinguals daily, B-complex, folinic acid.

Have had stomach issues off and on for years and have taken stomach meds consistently for last 3-5 years. (prilosec, nexium, protonix). Last several months acid reflux, burping, indigestion, heartburn constant with everything I eat. Gastro did EGD and colonscopy on Aug 8th. Nurse called and Friday for me to come in on Monday to have blood testing done for celiac. She said the biopsy is showing positive for Celiac, but they must do further testing. She said the TCell Lymphoctye is what the biopsy shows.

Is this a sign of lymphoma. I have been reading this site all weekend about celiac and am truly overwhelmed. How long will it take blood tests to come back. I know they have to send them off. Usually if the biopsy is positive, does the bloodwork come back positive?

I'm now beginning to wonder about the cancer end of this.....my mind is running wild.

My tummy is distended, bloated, gurgling......and I guess I will just start gluten free tomorrow and see what happens.

Anyone with any insight please post.....I'm glad I found this wonderful site and look forward to making friends.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

I saw your post and had to respond. I know you are worried. So I did some research online. I found this:

Open Original Shared Link

It sounds like that once you go on a Gluten Free diet your T-Cells will go back to normal. Try not to let complicated medical terms scare you (although I know it hard). I do not think you have cancer.

And regardless of what the blood tests say....you have intestinal evidence of Celiac. You need to be on a gluten-free diet for life. Make sure they test your total IgA. If you are deficient in this antibody, the other blood tests will be invalid, so they will need to do IgG on you.

artselegance Apprentice
artselegance
Posted
  • Author

Thanks for you response Shay. And you are so right about the medical terms. I realize at this point I need to concentrate on the healing and eating the proper foods. These forums help so much.

I have so much to learn because the evidence IS there.

nora-n Rookie
nora-n
Posted

The biopsy is the official test for celiac, was yours just showing increased intraepithelial lymphocytes, or blunted villi, or something not totally conclusive? What did it say?

I guess they want the blood tests too, maybe in order to get a baseline so they can tell later how much the antibodies have gone down on the gluten-free diet. But one does not really NEED them if the biopsy came back positive.

in old times, they just did a repeat biopsy a year later to check how much you improved.

In kids, they did a repeat biopsy, and then the chid had to go back on gluten, and then be biopsied again, and then if they did not find damage this time, the diagnosis was taken away....Nowadays they put you on a gluten-free diet for life.

nora

artselegance Apprentice
artselegance
Posted
  • Author
The biopsy is the official test for celiac, was yours just showing increased intraepithelial lymphocytes, or blunted villi, or something not totally conclusive? What did it say?

I guess they want the blood tests too, maybe in order to get a baseline so they can tell later how much the antibodies have gone down on the gluten-free diet. But one does not really NEED them if the biopsy came back positive.

in old times, they just did a repeat biopsy a year later to check how much you improved.

In kids, they did a repeat biopsy, and then the chid had to go back on gluten, and then be biopsied again, and then if they did not find damage this time, the diagnosis was taken away....Nowadays they put you on a gluten-free diet for life.

nora

Nora, thanks for asking and just now I have requested a copy of the biopsy. The "RUDE" nurse told me yesterday that it would take 7 to 10 days to get the blood tests back. Soon as I get the report I will post. Thanks again.

firegazing Newbie
firegazing
Posted

Sorry that the nurse was rude to you about the blood tests. I've had several such experiences now. Did she mean that it would take 7-10 days for -them- to get the results, or for them to tell you the results? I've had good luck getting a copy of my blood test results sooner when I tell the office that I need a copy for something else (for example, that I missed work/class while I was at the lab and I need to prove where I was).

artselegance Apprentice
artselegance
Posted
  • Author
Sorry that the nurse was rude to you about the blood tests. I've had several such experiences now. Did she mean that it would take 7-10 days for -them- to get the results, or for them to tell you the results? I've had good luck getting a copy of my blood test results sooner when I tell the office that I need a copy for something else (for example, that I missed work/class while I was at the lab and I need to prove where I was).

The lab work is sent to California. So it probably does take several days... I will give it until next Monday, then place another telephone call. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.