Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused More Than Ever - Enterolab Results


jasonhoutx

Recommended Posts

jasonhoutx Newbie

Hi everyone! Newbie to the forums & this new experience.

had stomach trouble most of my life (32 now). diarrhea and GERD. Had upper GI done and found hiatal hernia and barrett's esophagus (crazy dr didn't check for c. sprue). Been on nexium for 3 years and stopped a month ago due to new side effects (aches, very tired) and b12 defficiency.

Decided to be my own MD since my dr doesn't want to listen to me (They herd me out like I am cattle), so I got the full range of test from Enterolab

got my test back today from enterolab and it looks like I am allergic to everything. I am shocked. :o

I have been gluten free for a couple of months and saw great intestinal improvement (no more loose poo). I still had issues after some meals and started cutting out milk and it helped some more. Then i thought soy was a problem, so I cut my jiff penut butter and helmans mayo (both contained soy), that helped more. I am confused now because I tried a beer the other day at the baseball game (Go Astros) and I didn't get a reaction. I then tried whole milk with some rice chex and didn't have a reaction either. How come I was able to handle that? I am so confused!

Boils down to I seem to only be able to eat a few things now and life is bland and boring. I am pissed off now.

can anyone help me understand why I can't eat anything anymore? I am getting a bit depressed over my lack of flavor in eating anymore. Thanks for letting me vent!

Test results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 32 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 22 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 22 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0301

HLA-DQB1 Molecular analysis, Allele 2 0609

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal anti-ovalbumin (chicken egg) IgA antibody 12 Units (Normal Range <10 Units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 9 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 26 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You may just have a threshold level for these irritants. 1 beer fine. 3 beers not fine.

I have not eaten soy or dairy for YEARS. I cut out Gluten about 4 months ago. I dont eat yeast and rarely eat eggs and my diet is more exciting and colorful than it ever was. Anything but bland and boring.

Im also not eating grains.

Tonight I had Cumin/Cilantro chicken, mixed veggies and baked plantains for dinner. Delicious!

It is harder if you do not cook, but there are some great places online where you can order food free of all of your intolerant foods and they are delivered to your door. Just heat them up.

jasonhoutx Newbie
You may just have a threshold level for these irritants. 1 beer fine. 3 beers not fine.

I have not eaten soy or dairy for YEARS. I cut out Gluten about 4 months ago. I dont eat yeast and rarely eat eggs and my diet is more exciting and colorful than it ever was. Anything but bland and boring.

Im also not eating grains.

Tonight I had Cumin/Cilantro chicken, mixed veggies and baked plantains for dinner. Delicious!

It is harder if you do not cook, but there are some great places online where you can order food free of all of your intolerant foods and they are delivered to your door. Just heat them up.

Thanks for the reply. I am sure that I can make this work. I love to cook, but guess I am going to learn to do it more often. Any chance you have the links to those internet sites for the delivered foods just in case?

Thanks

ShayFL Enthusiast

There are quite a few of them:

Open Original Shared Link

https://www.celiac.com/catalog/index.php?cPath=27

Open Original Shared Link

There are likely to be more, hopefully others will chime in. I dont use them. I enjoy cooking and what I make tastes better than anything I get anywhere else including restaurants.

But these could be helpful for "in a pinch".

lizard00 Enthusiast

To hijack for a second.... B)

Shay

How'd you cook the plantains??? Love them, but my African friends make l'aloco (their word for it) FRIED. And while I can eat my fair share, I just can't cook them at home.

Did you put anything on them? How long did you bake them?

Ok... you may resume to your thread again. :lol::lol:

And to the OP... I wish I had a website for you, but Shay pretty much summed it up. Veggies add LOTS of color, and spices add the flavor. I eat better now than I ever have, and I don't do dairy or gluten, and I'm allergic to eggs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.