Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused More Than Ever - Enterolab Results


jasonhoutx

Recommended Posts

jasonhoutx Newbie

Hi everyone! Newbie to the forums & this new experience.

had stomach trouble most of my life (32 now). diarrhea and GERD. Had upper GI done and found hiatal hernia and barrett's esophagus (crazy dr didn't check for c. sprue). Been on nexium for 3 years and stopped a month ago due to new side effects (aches, very tired) and b12 defficiency.

Decided to be my own MD since my dr doesn't want to listen to me (They herd me out like I am cattle), so I got the full range of test from Enterolab

got my test back today from enterolab and it looks like I am allergic to everything. I am shocked. :o

I have been gluten free for a couple of months and saw great intestinal improvement (no more loose poo). I still had issues after some meals and started cutting out milk and it helped some more. Then i thought soy was a problem, so I cut my jiff penut butter and helmans mayo (both contained soy), that helped more. I am confused now because I tried a beer the other day at the baseball game (Go Astros) and I didn't get a reaction. I then tried whole milk with some rice chex and didn't have a reaction either. How come I was able to handle that? I am so confused!

Boils down to I seem to only be able to eat a few things now and life is bland and boring. I am pissed off now.

can anyone help me understand why I can't eat anything anymore? I am getting a bit depressed over my lack of flavor in eating anymore. Thanks for letting me vent!

Test results:

A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value

Fecal Antigliadin IgA 32 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 22 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow's milk) IgA antibody 22 Units (Normal Range <10 Units)

HLA-DQB1 Molecular analysis, Allele 1 0301

HLA-DQB1 Molecular analysis, Allele 2 0609

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

C) Egg, Yeast, and Soy Food Sensitivity Stool Panel

Fecal anti-ovalbumin (chicken egg) IgA antibody 12 Units (Normal Range <10 Units)

Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 9 Units (Normal Range <10 Units)

Fecal Anti-Soy IgA 26 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

You may just have a threshold level for these irritants. 1 beer fine. 3 beers not fine.

I have not eaten soy or dairy for YEARS. I cut out Gluten about 4 months ago. I dont eat yeast and rarely eat eggs and my diet is more exciting and colorful than it ever was. Anything but bland and boring.

Im also not eating grains.

Tonight I had Cumin/Cilantro chicken, mixed veggies and baked plantains for dinner. Delicious!

It is harder if you do not cook, but there are some great places online where you can order food free of all of your intolerant foods and they are delivered to your door. Just heat them up.

jasonhoutx Newbie
You may just have a threshold level for these irritants. 1 beer fine. 3 beers not fine.

I have not eaten soy or dairy for YEARS. I cut out Gluten about 4 months ago. I dont eat yeast and rarely eat eggs and my diet is more exciting and colorful than it ever was. Anything but bland and boring.

Im also not eating grains.

Tonight I had Cumin/Cilantro chicken, mixed veggies and baked plantains for dinner. Delicious!

It is harder if you do not cook, but there are some great places online where you can order food free of all of your intolerant foods and they are delivered to your door. Just heat them up.

Thanks for the reply. I am sure that I can make this work. I love to cook, but guess I am going to learn to do it more often. Any chance you have the links to those internet sites for the delivered foods just in case?

Thanks

ShayFL Enthusiast

There are quite a few of them:

Open Original Shared Link

https://www.celiac.com/catalog/index.php?cPath=27

Open Original Shared Link

There are likely to be more, hopefully others will chime in. I dont use them. I enjoy cooking and what I make tastes better than anything I get anywhere else including restaurants.

But these could be helpful for "in a pinch".

lizard00 Enthusiast

To hijack for a second.... B)

Shay

How'd you cook the plantains??? Love them, but my African friends make l'aloco (their word for it) FRIED. And while I can eat my fair share, I just can't cook them at home.

Did you put anything on them? How long did you bake them?

Ok... you may resume to your thread again. :lol::lol:

And to the OP... I wish I had a website for you, but Shay pretty much summed it up. Veggies add LOTS of color, and spices add the flavor. I eat better now than I ever have, and I don't do dairy or gluten, and I'm allergic to eggs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.