Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yikes!


LuvMoosic4life

Recommended Posts

LuvMoosic4life Collaborator

So I saw my primary doc. He referred me to a G.I and a gyno because I have probs in both those ares since going gluten-free. Now my gyno ran some hormone tests on me and referred me to another place to get a transvaginal ultrasound to see why I lost my "friend" and am in discomfort/ horrible mood swings, and constipation.

My G.I appt. is before the ultrasound. I am not diagnosed celiac and I really at this point dont want to go back to eating gluten to find out...I'm REALLLY hoping the G.I doc is understanding of me b/c I still have digestive problems, just nothing like before!!.... I get the sensation to go to the bathroom, but it wont come out!!! it feels like there is something blocking it, even when I take a laxative.....and get to the point of D. I feel it right there, but it gets stuck at one point...... SO I'm wondering if all my problems are linked from reproductive problems (maybe something like endometrieosis growth???) or just strictly digestive.

This all started since going gluten-free. I would rather have the problems I have now than what I had before. lol. BUT STILL, I'm just going crazy trying to figure out whats going on.

Anyone else experience something like this??

it isnt helping that my family is still obbessing over the fact that I wont be able to eat all the same foods at holidays and gatherings....I keep reassring them I can make a gluten-free alternative to everything and anything, but they say "yah, its just not the same" GRRRR!!!!! I wonder sometimes if I am dealing with this better than them. They support me in the fact that I found what m problem is, but they arent supportive of the change...so this makes me feel like they arent really supportive AT ALL!!!!! I started crying trying to explain this to my mom, so I'm hoping she mmust realize I'm not joking around, but she didnt react emotionally to me crying, which makes me just want to move far FAR away from family and just start a new life, which is exactly what I have in mind for after college......

rant over n' out!! :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

WOW my 21 year old cousin thought she had celiac, she was vomitting and having incredible pain, and she was finally diagnosed (during trip to E.R.) endometriosis!

My heart goes out to you. Hope you get it resolved promptly!!! :)

sending blessings

sickchick

LuvMoosic4life Collaborator

thanks!!! Yeah, my mom is thinking that my reproductive problems have been causing all my digestive problems this whole time....either way, I'm still avoiding gluten given the amazing changes I've seen! the positive definitly outwieghs the negatives.

jewi0008 Contributor

I am in you EXACT boat. I have not had my "friend" since April. Since April I haven't consumed gluten, except for the few "messups." I am also in your same boat with the C. I went gluten-free and THEN had all the Celiac tests, which, were negative - no surprise. I had an endo and a colonoscopy. The dr did find a form a colitis - proctitis. This means that when I have a "flare up," I won't be able to get anything through me...not even a laxative, until the bottom of me is softened. So when I make mistakes I get severely backed up and have to do enemas. Have you had a colonoscopy?

My biggest frustration, though, is still that it's been since April with no friend! I'm getting married soon and am getting concerned about children....

thanks!!! Yeah, my mom is thinking that my reproductive problems have been causing all my digestive problems this whole time....either way, I'm still avoiding gluten given the amazing changes I've seen! the positive definitly outwieghs the negatives.
home-based-mom Contributor
it isnt helping that my family is still obbessing over the fact that I wont be able to eat all the same foods at holidays and gatherings....I keep reassring them I can make a gluten-free alternative to everything and anything, but they say "yah, its just not the same"

Agree with them! It's NOT the same! The same was "eat the same food and get the same sick." Now it's better because it's eat different food and, tah-dah! DON'T get sick! The food and the sick are a package deal and you choose Package #2 which is different food and don't get sick. Remind them that you're a big girl now and you get to choose what you eat. B)

LuvMoosic4life Collaborator
I am in you EXACT boat. I have not had my "friend" since April. Since April I haven't consumed gluten, except for the few "messups." I am also in your same boat with the C. I went gluten-free and THEN had all the Celiac tests, which, were negative - no surprise. I had an endo and a colonoscopy. The dr did find a form a colitis - proctitis. This means that when I have a "flare up," I won't be able to get anything through me...not even a laxative, until the bottom of me is softened. So when I make mistakes I get severely backed up and have to do enemas. Have you had a colonoscopy?

My biggest frustration, though, is still that it's been since April with no friend! I'm getting married soon and am getting concerned about children....

OMG!! my mom mentioned colitis! well I'm glad I'm not going insane.

I havent had a colonoscopy or anything. I havent actualy been to the G.I. yet, or ever. I havent had my P since May, and like you I am more concerned about that than the digestive problems. I'v lost my period for being too thin when I was 16, but I wiegh 140 now and am 5'6.....I was 115 when I lost it last time! I'm mostly muscle mass, but I DEFINITLY have healthy fat on me...

thanks so much for responing :)

jewi0008 Contributor

Please keep me updated as to what you find out! I would say that mine is either from the digestive stuff OR because I'm 25 years old, 5'5" and I went from about 125 lb to 117lb? Do you think? I started dieting in April. I'm so confused!!!! I wish it would just come...

OMG!! my mom mentioned colitis! well I'm glad I'm not going insane.

I havent had a colonoscopy or anything. I havent actualy been to the G.I. yet, or ever. I havent had my P since May, and like you I am more concerned about that than the digestive problems. I'v lost my period for being too thin when I was 16, but I wiegh 140 now and am 5'6.....I was 115 when I lost it last time! I'm mostly muscle mass, but I DEFINITLY have healthy fat on me...

thanks so much for responing :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

My "friend" went from 29 day cycle to 34 since gluten free. Weird. I dont understand how it messes with the hormones. Im at a loss.

I hope they get to the bottom of your issues soon. No pun intended.

LuvMoosic4life Collaborator
Please keep me updated as to what you find out! I would say that mine is either from the digestive stuff OR because I'm 25 years old, 5'5" and I went from about 125 lb to 117lb? Do you think? I started dieting in April. I'm so confused!!!! I wish it would just come...

I will definitly post back on hear after my appt.

it sounds like your problem is from wight loss, but probablyl that with a combination of other things.

Do you have any pms symptoms? When I lost my period @ 115 pounds I didnt have any pms symptoms what-so-ever. Right now I've been having constant pms symptoms since april, but no period since may! Most of my body wieght is muscle mass, but I can gain up to 10 ibs in water just in 2-3 days- so frustrating!!! and uncomfortable. BUt nobody ever takes me seriosly because I look thin, like 120, but I am really 140.... I know I have a good balance between fat and muscle, but I dont feel in balance, one day I'll be 135, the next 145!! so i am completely lost....it has to be gluten related....

LuvMoosic4life Collaborator
My "friend" went from 29 day cycle to 34 since gluten free. Weird. I dont understand how it messes with the hormones. Im at a loss.

I hope they get to the bottom of your issues soon. No pun intended.

I think it might be because wheat products have phytoestrogens ( they can mimic estrogen in the female reproductive system) so taking that out may throw the hormones off in some people.....but dont qoute me on that, I've only looked into the phytoestrogen thing a little bit becaue i have tried taking fennel in the past ( before going gluten-free) for my gas problem- (HA, the things I've tried........)

Kauk Rookie

Hugs to you all.

I am stil so new to this..and its been 2 years at least. My moods were so bad, I was on 2 kinds of depression meds and still I wanted kill myself daily, and my rants and rages were bad. After celiac I am on nothing but I suffer from constipation I assume from al my protein intake and I am confused as hell about modifyed starchs...gawd! No one can give me an anwser there. Ugg..

I was tolds to start the Birth control pill which has MS in it...and I have been suffering bad mood swings....I am at a losss....

Rebecca

curlyfries Contributor

Hmmm.....your starting to make me re-think my early menopause theory. I never realized it before, but I went gluten-free in March, haven't had my friend since April or May <_<

It still could be the menopause thing, but this is something to consider.........I have also lost 23 lbs, but it's weight I needed to lose.

LuvMoosic4life Collaborator
Hugs to you all.

I am stil so new to this..and its been 2 years at least. My moods were so bad, I was on 2 kinds of depression meds and still I wanted kill myself daily, and my rants and rages were bad. After celiac I am on nothing but I suffer from constipation I assume from al my protein intake and I am confused as hell about modifyed starchs...gawd! No one can give me an anwser there. Ugg..

I was tolds to start the Birth control pill which has MS in it...and I have been suffering bad mood swings....I am at a losss....

Rebecca

I cant take birth control. Thats what I did last time to start my periods back up. I gained 20 IBS on the pill. retained water so bad it hurt to touch my skin and my muscles would cramp up with charlie horses. I enede up in the ER with a hemoglobin of 8 and then had to go on iron, which made me sick also- blah! My gyno I have now said she wont put me on the pill since there are heart problems in my immediate family and conidering my reaction...

jewi0008 Contributor

My GYNO wants me to go back on the pill for regularity. BUT...I'm getting married in November and we may want to have kids then. So then he said ok then not?! If I don't watch what I eat, I too, will gain like 5 in a day. Mostly bloat. My tummy gets severly distended. That's when my GI will have me do enemas and drink an entire bottle of Mag Citrate to make EVERYTHING get through me. UGH!

I also have many oral problems.

I cant take birth control. Thats what I did last time to start my periods back up. I gained 20 IBS on the pill. retained water so bad it hurt to touch my skin and my muscles would cramp up with charlie horses. I enede up in the ER with a hemoglobin of 8 and then had to go on iron, which made me sick also- blah! My gyno I have now said she wont put me on the pill since there are heart problems in my immediate family and conidering my reaction...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.