Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Important, Please Read!

jmcbride4291

Recommended Posts

jmcbride4291 Contributor
jmcbride4291
Posted

It has been some time since I posted a meesaage here. I have been very sick. I still am but not as bad as I was. I went down like a brick and so my family followed. Through research I went gluten free and recoverred a lot but not totally. It turns out we had a severe mold problem. Stachybotry's. This is one of the most toxic molds.

We lost everything, even our cat died from it. The reason for this post is that through research I discovered that mold toxins contain very powerful "Protein Synthesizing Inhibitors". Bascically you will have a problem processing protein. Gluten as we all know is a protein that many researchers are stating that no one should consume or at best is a protein that is hard to process. When you mix mold with gluten it is an explosion. Just like with Gluten, mold can cause skin problems, hair loss, teeth and bone problems, sleep problems, fatigue, constipation & diarrea. It can also cause many digestive problems, vision, fibromyalgia, leaky gut, etc. It also compromises and can destroy your immune system. There is a lot more. Sounds very familiar! If , dependending on you DNA, you are having problems with gluten and you stop and still have some problems, take a serious look in your houes for mold. In fact as research has shown, bacteria increases the symtoms that gluten causes. So, it is possibble that your symtoms have become so severe due to a mold problem. Many times in this forum, I have seen people still stating not getting well even though gluten free. I tell you that this is a very good area to look.

We rented a home a were trapped with no money to escape. The landlord did nothing and the town and all the sates agencies were powerless to do anything. Recently the Asbury Park Press did a story on my families plight. They also reported that I have begun work with the legislature getting laws passed to prevent others from getting hurt like this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

How awful.....I hope you continue to heal. And good for you helping others.

Rachel--24 Collaborator
Rachel--24
Posted

Thanks for your post and I'm glad you got to the root of your health problems.

I know of many people with a similar story. Toxic mold is harmful for everyone however, some people are more susceptible due to genetics.

The immune system can become severley compromised (as you mentioned) and this increases the risk of infection. Lyme, candida, viruses, etc....they all become more of an issue once the immune system is overwhelmed by chronic exposure to mold. Also, heavy metals (mercury, cadmium, lead, etc) also tend to accumulate because detoxification is usually impaired when a persons body is not able to handle the mold toxins.

Some people are not able to detox the molds....they continue to build up/circulate...its a heavy burden on the immune system.

Food intolerances are a very common symptom of mold toxicity....or any type of "toxic" illness which puts a heavy burden on the immune system and detoxification pathways.

Has your Dr. put you on any type of binder to "mop up" the mold toxins? There are a couple which are good for people dealing with this. It basically helps the body to eliminate these toxins.

sickchick Community Regular
sickchick
Posted

Add some good ole STRESS to the mix.

:rolleyes:

Living out here in the rainy city I have come across some nasty stuff in my lifetime. It's amazing how deep that stuff can seep into drywall and between floorboards!

Be well and hope you all heal very soon

xxx

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Thank you for posting this. You're right, it's very important for all to know.

I'm awfully sorry you've had to endure such a nightmare, and hope things rapidly and permanently improve for you. I really admire that you are using your experience to help others, too!

Can you recommend some web sites to learn more about mold and how to recognize its nasty presence?

home-based-mom Contributor
home-based-mom
Posted

As I have posted before, I have a customer who is extremely sensitive to molds. After (I think) 2 years on disability she tried to go back to work 3 different times and didn't last a full day in any of them because of mold in the buildings that others were neither aware of nor sensitive to. :blink:

She gave me a couple of web sites for more info.

Open Original Shared Link

and

Open Original Shared Link

Hope these help! :)

home-based-mom Contributor
home-based-mom
Posted
As I have posted before, I have a customer who is extremely sensitive to molds. After (I think) 2 years on disability she tried to go back to work 3 different times and didn't last a full day in any of them because of mold in the buildings that others were neither aware of nor sensitive to. :blink:

She gave me a couple of web sites for more info.

Open Original Shared Link

and

Open Original Shared Link

Hope these help! :)

It's too late to edit this post so I just need to add to it. :blink: If you read some of the info on those two sites, you will recognize a lot of symptoms that are common to people on this forum. Many of these symptoms seem to be the ones that just don't go away.

If you have symptoms that won't go away, even with the gluten free diet, look into this mold situation. It could be either in your homes or in your work place.

Just as many have finally found relief after dealing with parasites or Lyme, perhaps some of you can finally start to get better after dealing with a mold problem. It certainly can't hurt to look into it!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.