Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Starving!

Lori L.

By Lori L.
in Coping with Celiac Disease

Recommended Posts

Lori L. Rookie
Lori L.
Posted

I've been on a gluten free/dairy free diet for 2 months now. I did not have positive blood tests for celiac disease, but responded extremely well to the diet. One problem I have, is that I can eat a huge, well balanced meal, and 30 minutes later I feel like I'm starving...not just hungry - starving! I know I can't be truly hungry again. Anyone else have this problem? What is causing it? What can I do about it? I'm not gaining any weight, if anything I may be losing a little, but not much. Any suggestions? I've even tried to make sure I have extra protein, but nothing seems to help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

I had this for the first 6 weeks gluten-free.....it did calm down thankfully. You just seem to be going a little longer, so hopefully it will end for you soon too. I didnt gain weight either, but I was eating TONS. I think the body is trying to make up for lost time and trying to absorb as many nutrients as possible (so requesting as much food as possible). You might try a good gluten-free multi so you can give your body those extra nutrients faster.

luvs2eat Collaborator
luvs2eat
Posted

Sorry, can't help! I was diagnosed very quickly (w/ in 3 months of symptoms) and spent the next few years eating tons of stuff I COULD eat to make up for what I could no longer eat... gained about 30 lbs. Ugh!!

Juliebove Rising Star
Juliebove
Posted

My daughter has this problem. She does not have celiac, but an allergy. Alas, she is gaining weight. Mainly I try to get her to drink more water and to eat fruits and vegetables between meals if she is hungry. Popcorn also makes a filling snack that is low in calories.

gfpaperdoll Rookie
gfpaperdoll
Posted

You might need to rethink the amount of fat & protein that you need.

despite what the general population thinks, meat fat is good for you, so eat bacon & use the fat that is rendered. Also good is coconut milk, coconut oil, advocadoes, olive oil on your salads or drizzled on your plate of food (olive oil when heated becomes a bad fat), & nuts. My favorite nuts are pecans, walnuts & almonds. It is good to eat some on a daily basis.

double check & make sure you are getting enough fat & protein at each meal & you should have a mid morning & mid afternoon snack during this transition...

mysecretcurse Contributor
mysecretcurse
Posted

I agree fat is important and I have this same hunger. Must be because of the body trying to absorb nutrients, I agree.

purple Community Regular
purple
Posted

Don't rule out possible parasites...they make you hungry too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kauk Rookie
Kauk
Posted
I've been on a gluten free/dairy free diet for 2 months now. I did not have positive blood tests for celiac disease, but responded extremely well to the diet. One problem I have, is that I can eat a huge, well balanced meal, and 30 minutes later I feel like I'm starving...not just hungry - starving! I know I can't be truly hungry again. Anyone else have this problem? What is causing it? What can I do about it? I'm not gaining any weight, if anything I may be losing a little, but not much. Any suggestions? I've even tried to make sure I have extra protein, but nothing seems to help.

Eating smaller amounts sooner....Every three hours . I eat alot of protein...Shakes with water I guess if you can have milk. Your body will adjust, it does take some time. Hang in there. Snack..and keep snacks with you...

HUGS

K

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.