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Gene Testing

MyMississippi

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MyMississippi Enthusiast
MyMississippi
Posted

Hi folks,

I am weary of sitting at this computer researching everything on Celiac disease :P I've got a LIFE ---- I need to be living it . HA !

But I am such the CURIOUS person----" Leave no stone unturned," so to speak --------

So, those of you who have already done the research on the gene testing,---- tell me what value is it in determining Celiac disease ????

Thanks for your time and input :)

------------------------GO AWAY FAY------ We've had enough rain, already ! ! ! ! :o

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ShayFL Enthusiast
ShayFL
Posted

It does NOT diagnose Celiac. It only can show a genetic propensity. I had it done because I wanted to know for myself and if I had a gene I could have passed on to my daughter. I do not have the recognized U.S. celiac genes. I have 2 genes recognized by some other countries and Enterolab as being gluten sensitivity genes. One being connected to neuro symptoms (my main symptoms). Since I am neg. with blood, refused biopsy, I did the gene test just to see if I had any real reason to cut out gluten. I did. So I did. And I am better for it. :)

MyMississippi Enthusiast
MyMississippi
Posted
  • Author

I know gene testing isn't used to diagnose celiac. BUT-----

Here's a quote from Dr. Peter HR Green, MD : "As celiac disease is in the genes,it will remain in the genes of families forever.... " my children are negative " is a common refrain. One should also add "for now" because Celiac disease can appear at any age in people who are negative in testing for the disease on previous occasions."

ShayFL Enthusiast
ShayFL
Posted

What he is saying is that if you have Celiac genes, then you can get the disease at anytime. Not that you WILL get the disease. Not everyone with the 2 recognized genes do. You can get tested so you know if you have the genes. For some it helps solidify their commitment to a gluten-free diet. It was for me.

crunchy-mama Apprentice
crunchy-mama
Posted
What he is saying is that if you have Celiac genes, then you can get the disease at anytime. Not that you WILL get the disease. Not everyone with the 2 recognized genes do. You can get tested so you know if you have the genes. For some it helps solidify their commitment to a gluten-free diet. It was for me.

I hope it is ok to ask a question on someone else's thread (I am new to this forum and it seems the etiquette is different at different forums- if I should start a new thread then I will) It is my understanding that you cannot have the disease if you don't have these genes, right? However, I have seen you and others talk about how some genes are not recognized here, but are other places- so how do you get all of them tested? Can any lab do this? I get a huge discount from a local lab that is affiliated w/ dhs work clinic.

For me I think it would be helpful to know if it is a possibility or not. Right now I keep telling myself it is all in my head. I think it would help me w/ keeping the diet as well and seems a good first step.

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      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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