Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Gluten Intolerance Be Connected To Pancreatitis?


lmrf

Recommended Posts

lmrf Newbie

I recently have discovered I have a gluten intolerance after suffering for many years and been mis-diagnosed with other ailments. I have been gluten free for about 6 months now. After a colonoscopy was told I have developed diverticula, but have not actually had any problems with that (not yet). This week I had an acute pancreatitis attack. A CT scan showed an enlarged pancrease. Can the pancreatitis and the diverticula be related to my gluten-free diet? I did not have these before. Now, I've been told to eat a high carbohydrate diet for my pancrease while staying on a seed and nut free diet for the diverticula. How can I manage this high carb diet while managing a gluten free diet? I though that gluten foods are carb foods. What choices do I have left? I'm confused!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MyMississippi Enthusiast

Gluten FREE baked goods (bread, buns, pizza crusts, cookies, cakes, bagels, etc) are HIGH carb foods---- so are potatoes and rice, ice cream, etc. You will have NO trouble finding HIGH carb foods. :) They are everywhere !

But I don't know why high carbs are good for prancreatitis----- ???????? I'll have to look that one up .

tiffjake Enthusiast

I JUST read something about this....and now I can't remember where. I think it was in the GIG Quarterly magazine (put out by the Gluten Intolerance Group). I don't know if you can call them (or go to their website, www.gluten.net, and request a copy). I have a yearly membership, so I got it in the mail.

Anyway, if you are eating gluten-free pancakes, cake, cookies, bread, etc, you are probably getting a very high carb diet!

ravenwoodglass Mentor

Both diverticuli and pancreatitis are often seen in folks with celiac but not because of the diet. The diverticuli may resolve after you have been gluten-free for a while. I had them throughout my entire large intestine when I was diagnosed but a followup colonoscopy 5 years after diagnosis showed they were for the most part gone.

Could you have gotten glutened? I have had two bouts with pancreatitis since I was diagnosed one was caused by a severe glutening the other by a really bad reaction to a med. The gluten free diet is not going to 'cause' pancreatitis but a slip up while on it might. Do also be sure to avoid alcohol as this will cause the pancreas to flare right back up. It can also in itself cause pancreatitis especially if it is not a gluten safe beverage.

Do check also with a dietician about the nuts and seeds issue with the diverticuli. More current research does show that they can be safely consumed. Past thinking was that they could get 'caught' in the outpouches and cause an infection but that has not really been shown to be the case.

  • 8 years later...
nagual Newbie

Actually it is very connected. 

Pancreas is very sensible and you need to have a diet that does not overcharge it.

Try to spent 1 month only eating *well cooked* vegetables and grilled meat.

Do not eat fresh fruits/vegetables

do not eat oil, nuts

do not eat milk/dairy foods

do not eat pepper, garlic, onion.

do not eat anything cold.

I know it may sound strange, because all those fresh fruits, olive and condiments are related to good heatlhy food. Adn they are, but first you need to put your pancreas on a calm state again.

I can assure you that after 1 month eating only well cooked vegetables, grilled/cooked meat, well cooked grains, without pepper/oil/ fried onion, you will fell a Lot better.

In fact many of the gluten bad reactions you used to feel are way more related to those foods that overcharge your pancreas than you reaction to gluten. The truth is if your pancreas is good, you can even tolerate a gluten pizza once in a month, belive me.

plumbago Experienced
On 8/23/2008 at 0:25 PM, lmrf said:

A CT scan showed an enlarged pancrease. Can the pancreatitis and the diverticula be related to my gluten-free diet?

At first, I thought you were asking if there is a connection between celiac disease and pancreatitis to which I was going to say the following-

The short answer is yes, there does seem to be an increased risk of pancreatitis among people with celiac disease. Short answers are so unsatisfactory, though. Is that only in untreated celiac disease? Is there less likelihood of pancreatitis in treated celiac disease? If so, for how long? And oh, just what is the pathophysiology behind all this?

Ah —

Sadr-Azodi et al overlooked earlier observations when they report that, '…the effect of celiac disease on pancreatic function is poorly understood'.
Open Original Shared Link

but
The association of EPI and chronic pancreatitis with celiac disease has been known for over 50 years. And 30 years ago, DiMagno et al.[11] determined the underlying pathophysiology of these associations. They demonstrated subnormal outputs of enzymes and failure of increasing bile outputs (lack of gallbladder contraction), following infusion of intraluminal essential amino acids or eating but normal outputs occurred after exogenous cholecystokinin (CCK), leading to the hypothesis that CCK secretion is lacking in celiac disease

Anyway, it’s enough to get started. There appears to be a three-fold increase of pancreatitis in celiac disease patients. Really, it’s all about the endocrine system, if we widen the scope out.

I would guess it is not about the gluten-free diet, but I suppose it could depend on just what that gluten-free diet is.

 

EDIT TO ADD: Postprandially, these abnormalities resulted in maldigestion of fat because of the asynchronization between transit of the meal and delayed and reduced secretion of pancreatic enzymes and bile into the small intestine that occurred during the first 30 min after eating. After the initial 30 min, postprandial dilution of intraluminal content secondary to abnormalities of fluid and electrolyte absorption/secretion also contributed to impaired fat digestion. Fat maldigestion was worse after a second meal. In a second study,[12] they showed that in 31 celiac patients, CCK stimulated enzyme outputs were decreased in 42% and 3 (10%) had severe EPI contributing to malabsorption.

(FWIW, I would recommend not eating a gluten pizza if you have celiac disease.)

artistsl Enthusiast
On 8/23/2008 at 0:25 PM, lmrf said:

I recently have discovered I have a gluten intolerance after suffering for many years and been mis-diagnosed with other ailments. I have been gluten free for about 6 months now. After a colonoscopy was told I have developed diverticula, but have not actually had any problems with that (not yet). This week I had an acute pancreatitis attack. A CT scan showed an enlarged pancrease. Can the pancreatitis and the diverticula be related to my gluten-free diet? I did not have these before. Now, I've been told to eat a high carbohydrate diet for my pancrease while staying on a seed and nut free diet for the diverticula. How can I manage this high carb diet while managing a gluten free diet? I though that gluten foods are carb foods. What choices do I have left? I'm confused!!

My son is very gluten intolerant and we were referred to allergy. I read recently about Eosinophilic disease which is a food intolerance that causes inflammation in generalized areas of the body. I believe there is a condition called eosinophilic pancreatic disease. I read about a 6 food elimination diet to treat the disorder, which includes gluten, but also dairy, egg, peanut and shellfish. You may want to consider other possible food sensitivities.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
5 hours ago, nagual said:

Actually it is very connected. 

Pancreas is very sensible and you need to have a diet that does not overcharge it.

Try to spent 1 month only eating *well cooked* vegetables and grilled meat.

Do not eat fresh fruits/vegetables

do not eat oil, nuts

do not eat milk/dairy foods

do not eat pepper, garlic, onion.

do not eat anything cold.

I know it may sound strange, because all those fresh fruits, olive and condiments are related to good heatlhy food. Adn they are, but first you need to put your pancreas on a calm state again.

I can assure you that after 1 month eating only well cooked vegetables, grilled/cooked meat, well cooked grains, without pepper/oil/ fried onion, you will fell a Lot better.

In fact many of the gluten bad reactions you used to feel are way more related to those foods that overcharge your pancreas than you reaction to gluten. The truth is if your pancreas is good, you can even tolerate a gluten pizza once in a month, belive me.

You are responding to someone from 2008.

"s if your pancreas is good, you can even tolerate a gluten pizza once in a month, belive me."  As this statement goes against what all the Celiac centers and doctors say, you need to provide your sources to this new and incredible  discovery.  Or at least give us your CV and some info about your clinical research that proves this.

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,925
    • Most Online (within 30 mins)
      7,748

    Linda Stark
    Newest Member
    Linda Stark
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.