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Length Of Discomfort After A Glutening

texas

By texas
in Coping with Celiac Disease

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texas Apprentice
texas
Posted

Whenever I have been glutened, I have all the symptons including brain fog for 4-5 days. Then, when i think all is well it seems like I get fresh symptons. How long does it take for gluten to go through a body? I know I haven't been reglutened because I am extremely careful. I was diagnosed in May. Am I still in the healing phase? Will my reactions get lesser when my gut is healed?

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oceangirl Collaborator
oceangirl
Posted

Yes, it can take up to a week or more if you get glutened and, yes, you are still in the healing stage. This can take awhile to iron out, but know you are not alone. Read back into posts and you will learn a lot! Drink lots of water when glutened and return always to your known safe foods for a bit.Other intolerances may be showing up as well and for this you will need to do an elimination diet to discover what's up. Always remember to check your personal care products for hidden gluten. A food diary is an immense help!

Hang in there; it will get better and easier with time- we've all been there!

lisa

texas Apprentice
texas
Posted
  • Author

Thank you, I think I just needed my own affirmation. I also know how careful I am . Sometimes I think my nerves make the stituation worse or cause the IBS to kick in.

AndrewNYC Explorer
AndrewNYC
Posted
Thank you, I think I just needed my own affirmation. I also know how careful I am . Sometimes I think my nerves make the stituation worse or cause the IBS to kick in.

Could be fructose malabsorption or some other carbohydrate/sugar malasborption involved. Fructose gave me brain fog well after I thought I was over celiac. Whether or not that is the case, you could try an elemental diet formula (Tolerex, Vivonex, E028, etc) for a brief period to see if that helps your symptoms.

Eric-C Enthusiast
Eric-C
Posted

Gluten gives me all kinds of fits.

Brain fog, migraines, you name it. For usually 2 weeks. I went on a hot dog eating binge after discovering they taste great without buns...oops...it was a slow ride down that I didn't catch until I crashed.

Migraines, panic attacks, anxiety, sore muscles, never tired. That lasted 2 weeks with the first 2-3 days being the most intense. Sugar is a big part of it. Gluten sets me off to sugar and I just finished healing up last week and am back to what I enjoy.

Now wheat is different. Wheat puts me in the crapper for the night in bad pain but that clears up in a day or two.

I've taken Alegra of all things that helps calm the histamene response so you don't get the flu feeling but that mostly only helps with wheat.

It takes time...and you have to pay attention to your body. When I had a bad gluten episode which is thankfully only once or twice a year I eat every hour and make sure I keep my sugar levels and all that equal.

The difference between it bothering you 1-2 weeks versus 1-2 months is in you. Just pay attention and learn a food routine that works for you. When its really bad for me I wake up with a racing heart and have the worlds worst nightmares. Thats usually the first 2-3 days. Eating natural sugars regularly seems to help me. I can go a week like that but eating watermelon right before bed usually cuts it down to 2-3 days.

Massages help my migraines and muscle pain.

Personally for all the pain and trouble I find the entire experience fasinating...My recoveries are gradual to a point and then immediate. I literally can feel like crap one hour then the next POOF I'm fine and good until it happens again. Once I recover I can eat and do whatever I want, its like someone flipped a switch.

I've been there where I didn't think I was going to get better...not so much last time because I've been through it. The best thing I can recommend is write it down...all of it.

That way you will be able to track your progress and put together a roadmap.

That helps me the most, I know I will get better and the stages I go through.

To me its a great reminder of how lucky I am to have caught this early on and how much healthier I am because of it.

There is always the light at the end of the tunnel.

I personally am not a big believer in all the vitamins and stuff...you want your body to relearn how to get those things from the food you eat. If your going beyond working to stop your most severe reactions then your not letting your body relearn.

For me I think its about sugar/leaky gut. I have to get my body used to using it properly again. Thats why I eat natural sugar every 1-3 hours deppending on how I feel, that keeps me level in a lot ways why my body heals.

Rya Newbie
Rya
Posted

Texas,

I don't think 2 weeks to feel the effects of a glutening is outrageous at all. It takes your intestines 3 to 6 months to heal each time you are glutened, depending on the extent of your body's reaction and the severity of your disease.

I bet you know this, but other foods that one can generally tolerate become difficult to tolerate after a glutening. I wouldn't assume any extra food sensitivities unless you are experiencing symptoms one month outside of an accidental glutening. Even then, it's usually gluten sneaking in. On the other hand if one food makes you feel bad consistently, cut it out, of course.

oceangirl Collaborator
oceangirl
Posted

I just need to say, in regard to Eric C's post, that gluten is the protein found in wheat, barley and rye that triggers an autoimmune response in folks with celiac. Sometimes it is tricky to weed through people's intended good advice and get to the heart of an issue surrounding this disease. Read, read, read and ask, ask , ask is my best advice.

lisa

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Eric-C Enthusiast
Eric-C
Posted
I just need to say, in regard to Eric C's post, that gluten is the protein found in wheat, barley and rye that triggers an autoimmune response in folks with celiac. Sometimes it is tricky to weed through people's intended good advice and get to the heart of an issue surrounding this disease. Read, read, read and ask, ask , ask is my best advice.

lisa

People's reactions can deppend on the form of the gluten they injest.

A McDonald's hamburger bun used to give me mild discomfort. The bread from Carraba's or Bonefish Grille I'd be lucky to make it to the bathroom sitting 10 feet away.

In a pinch I can have soy sauce...for me wheat products, even though they contain gluten, have a far different reaction than gluten contained in a product in a different manner.

Its not cut and dry.

There was an article that sour dough bread, even though it contains gluten does not effect someone with Celiacs if it is prepared the proper way. I have to dig up the article but something about the heating process of the alcohol causes the gluten not to be processed long enough until its passed the body.

Wheat products, by themselves, give me an immediate and short term reaction.

Other products which are more gluten infused without wheat give me a totally different reaction.

aikiducky Apprentice
aikiducky
Posted

To the original poster - when I get glutened, my most annoying symptoms usually subside after a few days. BUT 6 to 7 days from the glutening I get a flare up.

It used to really confuse me before I figured out that the pattern was always more or less the same. I used to think I had been glutened again. But apparently it's just the way my immune system works.

Also, the first year or so was very much ups and downs for me. It does take time.

Pauliina

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