Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Ready To Fast

DebNC84

By DebNC84
in Dermatitis Herpetiformis

Recommended Posts

DebNC84 Apprentice
DebNC84
Posted

i just want to vent - I have DH - I've managed to do real well since June of 2007 with only a couple mild outbreaks... I have now spent the last 3 weeks itching like a fiend and breaking out all over the place. something is "getting" me and I can't pin point it! I think i'm going to go on a fast - nothing but water for a few days and knock this crap out of my system - I could scream... really. ok - aaaaaaaahhhhhhhhhhhhH! did anyone hear that?

thanks for listening. :) It helps to know someone understands.

Debbie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I can understand your frustration. Those blasted little sores can be a bear and they do last for such a long time. Perhaps instead of starving yourself you could go for a bit with just naturally gluten free foods. Do check all stuff that you come into contact with. It may not be something you are eating but something that you are putting on your skin or feeding a pet. If your significant other isn't gluten free even a kiss can get you. I seemed to even have problems when using household cleaning stuff, since I have no time or inclination to check household cleaning products I learned the hard way to always wear rubber gloves when I dust or use a bathroom cleaner. Check your makeup, shampoos, any art supplies you use or household remodeling stuff. I hope this clears for you soon.

DebNC84 Apprentice
DebNC84
Posted
  • Author
I can understand your frustration. Those blasted little sores can be a bear and they do last for such a long time. Perhaps instead of starving yourself you could go for a bit with just naturally gluten free foods. Do check all stuff that you come into contact with. It may not be something you are eating but something that you are putting on your skin or feeding a pet. If your significant other isn't gluten free even a kiss can get you. I seemed to even have problems when using household cleaning stuff, since I have no time or inclination to check household cleaning products I learned the hard way to always wear rubber gloves when I dust or use a bathroom cleaner. Check your makeup, shampoos, any art supplies you use or household remodeling stuff. I hope this clears for you soon.

Thanks for your suggestions - what happened was I got very comfortable with the fact that I was doing so well and before I knew it I was changing all kinds of products... hair (switched to Dove) - laundry detergent (bought some arm&hammer) - different brand of butter & sugar (generic butter & dixie crystals)- eating things I was pretty sure I wasn't supposed like lays potato chips -

I'm really thinking it was the new laundry detergent - but I'm not sure. So I'm going to rewash all my clothes today - I don't do a lot of cleaning... really - I hate it - so I think I would know if it was the cleaning products. but I should check just in case. since 07 when I would have a small attack - it would only last a couple days and go away- maybe I would have a small breakout but the cream I use would usually make them go away - this time it's constant and progressive - makes me think it's something I'm getting into daily - suspecting also the sugar i'm putting in my coffee - but dixie crystals is supposed to be gluten-free - I'm super sensitive and will have a flare up it seems from the slightest contamination -

I'll take your advice and go strict - no seasons - nothing processed - straight clean food and we'll see - Thanks again - I just needed someone to talk to. :)

ravenwoodglass Mentor
ravenwoodglass
Posted
Thanks for your suggestions - what happened was I got very comfortable with the fact that I was doing so well and before I knew it I was changing all kinds of products... hair (switched to Dove) - laundry detergent (bought some arm&hammer) - different brand of butter & sugar (generic butter & dixie crystals)- eating things I was pretty sure I wasn't supposed like lays potato chips -

I'm really thinking it was the new laundry detergent - but I'm not sure. So I'm going to rewash all my clothes today - I don't do a lot of cleaning... really - I hate it - so I think I would know if it was the cleaning products. but I should check just in case. since 07 when I would have a small attack - it would only last a couple days and go away- maybe I would have a small breakout but the cream I use would usually make them go away - this time it's constant and progressive - makes me think it's something I'm getting into daily - suspecting also the sugar i'm putting in my coffee - but dixie crystals is supposed to be gluten-free - I'm super sensitive and will have a flare up it seems from the slightest contamination -

I'll take your advice and go strict - no seasons - nothing processed - straight clean food and we'll see - Thanks again - I just needed someone to talk to. :)

You can still have seasonings, just use McCormick single ingredient spices and you should be okay. I agree it sounds like something you are getting on a regualr basis. The Arm and Hammer for sensitive skin is for sure okay, it is the only detergent I use. You going about things the right way, it is tough with DH but eventually those pesky antibodies will leave again. Lays for me are like playing Russian Roulette, you may have found your culprit right there. What I do when I suspect something is drop it and then try it again after I am better. Sometimes that helps figure it out. I would agree to drop that brand of sugar, go with an organic even a raw sugar for a bit and then try the crystals again. Sugar should be gluten free but I seem to have had a CC issue with a large container of that brand. I thought it was great cause it came in a reusable plastic canister but I ended up giving it away. I still don't know for sure if that was it because I chose not to challenge it later. I do hope you figure it out soon.

Sometimes we do need to vent and that is perfectly okay. Feel free to PM if you need or want to.

DebNC84 Apprentice
DebNC84
Posted
  • Author

WELL - it turned out it my Dixie Crystals sugar that was causing my skin reaction - it took a few days but when I removed that particular sugar from my daily intake (in my coffee) I got better. AMAZING! I need to be more careful and always on my guard.

ShayFL Enthusiast
ShayFL
Posted

So glad you figured it out!!

I too use Dove for my hair and A&H sensitive for the laundry with NO problems. :)

  • 4 weeks later...
DebNC84 Apprentice
DebNC84
Posted
  • Author
So glad you figured it out!!

I too use Dove for my hair and A&H sensitive for the laundry with NO problems. :)

i'm not so smart after all - it wasn't the sugar. I started having issues again and thought it was something else... now I'm almost positive it was my coffee filters... duh! never thought about it. I always make sure to by bounty and charmin but I NEVER considered my filters - not one time!!

maybe because I have not had any issues for over a year and just didn't get that deep... I got a new package a few weeks back and i've used about half of them - the timeline is perfect..

going to buy a washable filter and probably a new coffee maker today - sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748
    Mhp
    Newest Member
    Mhp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Bitters for digestion?

      By AnnaNZ · Posted

      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By lehum · Posted

      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.