Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neurological Damage


beachbel

Recommended Posts

beachbel Apprentice

Hello. I want to pose a question. Does anyone have any experience with nerve damage caused by celiac disease? Would anyone recommend seeing a neurologist? I was diagnosed with celiac disease 18mo ago and have been very carefully living on a gluten free diet. I have had a dietician and a person who runs our local support group go through my food, make up, etc to check for gluten and found nothing. I have found that gluten free products that are manufactured in the same plant as wheat are completely out for me as I seem to be very sensitive to cross contamination. I keep my dishes, food, etc separate from my family and wash my hands and surfaces after fixing their food. Anyhow, I am still testing positive for Celiac disease. My Ttg was 16 at last check if that means anything to anybody. I have also been diagnosed with gastroparesis, Raynaud's syndrome, and now have killer headaches from a nerve in my head. My headache started after I tried a new product that I didn't notice was manufactured in the same plant as wheat. I can no longer take any meds for the gastroparesis because I had a bad reaction to the only two available. So I am now living on a liquid diet. I never have the typical celiac symptoms. Does anyone have any ideas? I am wondering if my immune system is in overdrive. Oh, and my thyroid just tested low and my iron levels have dropped dramatically. I would appreciate any help. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



veggienft Rookie

Try cutting out sugar.

Open Original Shared Link

The theory is, you get a fungal overgrowth which includes fungus cells which mimic gluten protein. First you react to the fungus, and then to the gluten. You've cut out the gluten, but you haven't removed the fungus.

Gut fungus thrives on sugar. Try not eating it for a few weeks.

Good luck. Tell us how it comes out.

..

dana.naomi Newbie

Yipes that sounds rough. The only thing I can say is, there's no harm in seeing a neurologist. Why not? Can you get a reccomendation from your GI?

ShayFL Enthusiast

Low thyroid and low iron both can cause neurological symptoms. You need to find a doctor who understands how to treat low thyroid and isnt afraid to try different meds until you find the right one(s) for you. A Osteopath or MD that leans toward holistic is best. And you will need to get that iron up for the thyroid meds to work effectively.

You are on the right track, you just have to work on a few other things.

Blessings Explorer

Here is info on Celiac Neuropathy. Very Interesting

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,538
    • Most Online (within 30 mins)
      7,748

    Josiemc
    Newest Member
    Josiemc
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.