Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy A Problem?


puggirl

Recommended Posts

puggirl Apprentice

I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



countrypenny Newbie
I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...

All celiacs are different, but when you read the posts, you are correct that many have problems w/dairy. I had problems w/dairy before the celiac problems. I bake w/soy milk, but many here have problems w/soy. Unfortunately, have never been able to eat chocolate so my sweets take on a different note. Since you are new to the gluten free diet (and good for you) you will need to have some ready made sweets to curb your desire for the gluten ones. I found it was just as easy to shop for the correct flours as it was searching for gluten free goodies (and just try reading that small print) and freezing them. Recipe conversions taste different not necessarily bad. My g/daughter is always ready to try 1 of my treats. The participants on this sight offer many interesting recipes. Continued success on your gluten free diet journey.

Guest goldie

Hi

I am a vegetarian who loved chees e/dairy products but seemed to be having problems so went dairy free for a couple of years. My sister was diagnosed coeliac about 17 years ago and I was diagnosed ( still sort of in denial ) last year. Following the diagnosis I returned to dairy but to be honest although I love the taste etc don't feel it is helping. It's a bit of a chicken and egg situation. I have been told that some of the gut damage makes dairy intake difficult initially.

Comments welcome

MissyH Newbie

I don't have mush of a problem with dairy..

But..having said that when I went gluten-free over 5 years ago I decided not to have milk just in case.

I kept off it for about 2 years, then found some lactase drops by Biocare which take out/reduce the lactose in milk..so I stuck with that if I wanted milk.

Now, 5 years down the line I can drink milk, normal milk aand I do get a slight reaction but nothing to worry about.

I just found that quitting it altogether until:

A: my tum had recovered

and

B: I had much more of an idea what was safe for me to eat..just getting to know products which contain gluten

..was the best thing to do.

But in this time I would eat cheese and have chocolate and they didn't seem to cause me much harm..but then I would only have a small amount..maybe 2 cubes of a bar per week or something.

purple Community Regular

Someone posted that they ate the really dark chocolate and so only needed to eat a little to curb their chocolate craving. You could chop it up for cookies ;) Just be sure its "allergy free".

Bake a bunch of cookies and freeze them. You know you can have them anytime without having to bake often. Lots of good recipes on the "baking/cooking" section. If you need a recipe, meet us over there and post it, we "bakers" can find you some.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.