Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy A Problem?


puggirl

Recommended Posts

puggirl Apprentice

I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



countrypenny Newbie
I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...

All celiacs are different, but when you read the posts, you are correct that many have problems w/dairy. I had problems w/dairy before the celiac problems. I bake w/soy milk, but many here have problems w/soy. Unfortunately, have never been able to eat chocolate so my sweets take on a different note. Since you are new to the gluten free diet (and good for you) you will need to have some ready made sweets to curb your desire for the gluten ones. I found it was just as easy to shop for the correct flours as it was searching for gluten free goodies (and just try reading that small print) and freezing them. Recipe conversions taste different not necessarily bad. My g/daughter is always ready to try 1 of my treats. The participants on this sight offer many interesting recipes. Continued success on your gluten free diet journey.

Guest goldie

Hi

I am a vegetarian who loved chees e/dairy products but seemed to be having problems so went dairy free for a couple of years. My sister was diagnosed coeliac about 17 years ago and I was diagnosed ( still sort of in denial ) last year. Following the diagnosis I returned to dairy but to be honest although I love the taste etc don't feel it is helping. It's a bit of a chicken and egg situation. I have been told that some of the gut damage makes dairy intake difficult initially.

Comments welcome

MissyH Newbie

I don't have mush of a problem with dairy..

But..having said that when I went gluten-free over 5 years ago I decided not to have milk just in case.

I kept off it for about 2 years, then found some lactase drops by Biocare which take out/reduce the lactose in milk..so I stuck with that if I wanted milk.

Now, 5 years down the line I can drink milk, normal milk aand I do get a slight reaction but nothing to worry about.

I just found that quitting it altogether until:

A: my tum had recovered

and

B: I had much more of an idea what was safe for me to eat..just getting to know products which contain gluten

..was the best thing to do.

But in this time I would eat cheese and have chocolate and they didn't seem to cause me much harm..but then I would only have a small amount..maybe 2 cubes of a bar per week or something.

purple Community Regular

Someone posted that they ate the really dark chocolate and so only needed to eat a little to curb their chocolate craving. You could chop it up for cookies ;) Just be sure its "allergy free".

Bake a bunch of cookies and freeze them. You know you can have them anytime without having to bake often. Lots of good recipes on the "baking/cooking" section. If you need a recipe, meet us over there and post it, we "bakers" can find you some.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    2. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    3. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

    4. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      24

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,668
    • Most Online (within 30 mins)
      7,748

    Hope Durbin
    Newest Member
    Hope Durbin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      It's important to correct the B12 deficiency first, replenishing the stores of B12 in the body within organs and tissues.    As more B12 becomes available, the body will adjust how much folate to absorb from the diet.  Dietary folate sources include leafy greens, broccoli, and Brussels sprouts, and liver.  (Avoid spinach due to high oxalates and risk of kidney stone formation.). Folate level should be checked in future just in case Celiac malabsorption affects it.   Thiamine deficiency can be found with B12 deficiency.  B12, Pyridoxine B6, and Thiamine B1 all are involved with nerve health and nerve transmission.  These three vitamins together to improve nerve health better than just one of them alone.  They relieve neuropathy and pain, and improve brain function.  You're being an amazing mom for advocating for your daughter's health!  Hurrah! Interesting Reading: B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pmc.ncbi.nlm.nih.gov/articles/PMC6930825/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Thiamin metabolism in vitamin B6 or vitamin B12 deficient rats https://pubmed.ncbi.nlm.nih.gov/859042/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/#:~:text=The neurotropic B vitamins -B1,neuropathies [3%2C 4].
    • Scott Adams
      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.