Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy A Problem?


puggirl

Recommended Posts

puggirl Apprentice

I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



countrypenny Newbie
I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...

All celiacs are different, but when you read the posts, you are correct that many have problems w/dairy. I had problems w/dairy before the celiac problems. I bake w/soy milk, but many here have problems w/soy. Unfortunately, have never been able to eat chocolate so my sweets take on a different note. Since you are new to the gluten free diet (and good for you) you will need to have some ready made sweets to curb your desire for the gluten ones. I found it was just as easy to shop for the correct flours as it was searching for gluten free goodies (and just try reading that small print) and freezing them. Recipe conversions taste different not necessarily bad. My g/daughter is always ready to try 1 of my treats. The participants on this sight offer many interesting recipes. Continued success on your gluten free diet journey.

Guest goldie

Hi

I am a vegetarian who loved chees e/dairy products but seemed to be having problems so went dairy free for a couple of years. My sister was diagnosed coeliac about 17 years ago and I was diagnosed ( still sort of in denial ) last year. Following the diagnosis I returned to dairy but to be honest although I love the taste etc don't feel it is helping. It's a bit of a chicken and egg situation. I have been told that some of the gut damage makes dairy intake difficult initially.

Comments welcome

MissyH Newbie

I don't have mush of a problem with dairy..

But..having said that when I went gluten-free over 5 years ago I decided not to have milk just in case.

I kept off it for about 2 years, then found some lactase drops by Biocare which take out/reduce the lactose in milk..so I stuck with that if I wanted milk.

Now, 5 years down the line I can drink milk, normal milk aand I do get a slight reaction but nothing to worry about.

I just found that quitting it altogether until:

A: my tum had recovered

and

B: I had much more of an idea what was safe for me to eat..just getting to know products which contain gluten

..was the best thing to do.

But in this time I would eat cheese and have chocolate and they didn't seem to cause me much harm..but then I would only have a small amount..maybe 2 cubes of a bar per week or something.

purple Community Regular

Someone posted that they ate the really dark chocolate and so only needed to eat a little to curb their chocolate craving. You could chop it up for cookies ;) Just be sure its "allergy free".

Bake a bunch of cookies and freeze them. You know you can have them anytime without having to bake often. Lots of good recipes on the "baking/cooking" section. If you need a recipe, meet us over there and post it, we "bakers" can find you some.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    2. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    3. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

    4. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    5. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,653
    • Most Online (within 30 mins)
      7,748

    daweesa
    Newest Member
    daweesa
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.