Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy A Problem?


puggirl

Recommended Posts

puggirl Apprentice

I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



countrypenny Newbie
I'm just starting a gluten free diet. Today was my First Full gluten free day! haha Im so proud. Just been reading posts, alot of people seem to have problem with dairy that has celiac. Is this something that is developed or something people have had before being diagnosed? I currently dont have a huge issue with dairy products. I really dont want to have to quit that too! and Im dieing for something sweet like chocolate or cookies! any suggestions? that taiste good...

All celiacs are different, but when you read the posts, you are correct that many have problems w/dairy. I had problems w/dairy before the celiac problems. I bake w/soy milk, but many here have problems w/soy. Unfortunately, have never been able to eat chocolate so my sweets take on a different note. Since you are new to the gluten free diet (and good for you) you will need to have some ready made sweets to curb your desire for the gluten ones. I found it was just as easy to shop for the correct flours as it was searching for gluten free goodies (and just try reading that small print) and freezing them. Recipe conversions taste different not necessarily bad. My g/daughter is always ready to try 1 of my treats. The participants on this sight offer many interesting recipes. Continued success on your gluten free diet journey.

Guest goldie

Hi

I am a vegetarian who loved chees e/dairy products but seemed to be having problems so went dairy free for a couple of years. My sister was diagnosed coeliac about 17 years ago and I was diagnosed ( still sort of in denial ) last year. Following the diagnosis I returned to dairy but to be honest although I love the taste etc don't feel it is helping. It's a bit of a chicken and egg situation. I have been told that some of the gut damage makes dairy intake difficult initially.

Comments welcome

MissyH Newbie

I don't have mush of a problem with dairy..

But..having said that when I went gluten-free over 5 years ago I decided not to have milk just in case.

I kept off it for about 2 years, then found some lactase drops by Biocare which take out/reduce the lactose in milk..so I stuck with that if I wanted milk.

Now, 5 years down the line I can drink milk, normal milk aand I do get a slight reaction but nothing to worry about.

I just found that quitting it altogether until:

A: my tum had recovered

and

B: I had much more of an idea what was safe for me to eat..just getting to know products which contain gluten

..was the best thing to do.

But in this time I would eat cheese and have chocolate and they didn't seem to cause me much harm..but then I would only have a small amount..maybe 2 cubes of a bar per week or something.

purple Community Regular

Someone posted that they ate the really dark chocolate and so only needed to eat a little to curb their chocolate craving. You could chop it up for cookies ;) Just be sure its "allergy free".

Bake a bunch of cookies and freeze them. You know you can have them anytime without having to bake often. Lots of good recipes on the "baking/cooking" section. If you need a recipe, meet us over there and post it, we "bakers" can find you some.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,661
    • Most Online (within 30 mins)
      7,748

    Penny W
    Newest Member
    Penny W
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.