Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Question?


Colinsmom

Recommended Posts

Colinsmom Newbie

I am still convinced that the rash I have is DH, even though the biopsy I had was negative. I'm going back to the dermatologist and am going to try to get her to do another one in case the first one wasn't done correctly. I have a question about the appearance of the rash that I'm hoping someone can answer. When the blisters start to heal up and scab, do they actually leave a little hole in your skin until they are completely healed? This is what mine does and sometimes they take forever to completely go away. My rash looks exactly like some of the photos of DH I have seen, and nothing like the "urticarial vasculitis" that I was diagnosed with.

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Colinsmom Newbie

Anyone??

babs-652006 Newbie
Anyone??

Hi, This is my first post here. Have been gluten free since Dec.2006. I wanted to tell you. My DH does leave holes in my skin. It has cleared up for 18 mos. Then I ate something not sure what. It came back with a vengeance. Mine is on my ankles and lower leg. Not sure if this helps but I have had several holes and then when it finally heals scars.... have a great week, babs

Colinsmom Newbie

Thanks for your reply Babs! I had another biopsy done last Wednesday and will get the results next week so we'll see if it shows anything different than the first one. The dermatologist took two samples, one from a blister and one from the adjacent skin, so at least I know it was done correctly this time. I'll let you know when I get the results.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

    2. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    3. - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    4. - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

    5. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,439
    • Most Online (within 30 mins)
      7,748

    Birdgeek
    Newest Member
    Birdgeek
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
    • trents
      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
    • trents
      @ainsleydale1700, the additional test information you provided is very significant! Here is the important part: "This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG." It looks to me that you may be a "seronegative" celiac. The frontline diagnostic tests for celiac disease are IGA tests, especially the tTG-IGA. However, another IGA test ("total IGA") was done to check you for IGA deficiency and you were found to be deficient. That means that the usual IGA tests done to diagnose celiac disease, such as the tTG-IGA, would not be reliable. That is why the IGG testing was done "reflexively" (which means in response to the results of a previous test, i.e., the total IGA test.). The IGG tests are not quite as reliable as the IGA tests for diagnosing celiac disease, meaning, there are more "other" possible causes for elevated IGG test scores. The IGG test did give a borderline positive result, however, so the physician ordered the endoscopy with biopsy to check for damage to the small bowel lining that would be caused by untreated (continuing to consume gluten) celiac disease. The biopsy showed no damage so the doc concluded you do not have celiac disease. However, the monkey wrench in the gears of the doc's conclusion is that he gave you permission to proceed with the gluten free diet which would have allowed for healing of the small bowel lining to commence. How long were you gluten free before the biopsy was taken? And how much damage to the small bowel lining was there to begin with? If the damage was minimal, it might have been fully healed by the time the biopsy was done. And the symptoms you describe involving vitamin and mineral deficiencies, tooth enamel loss, cessation of menses, neuropathy, constipation alternating with diarrhea . . . IMO all scream of celiac disease as opposed to NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.