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Dh Question?

Colinsmom

By Colinsmom
in Dermatitis Herpetiformis

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Colinsmom Newbie
Colinsmom
Posted

I am still convinced that the rash I have is DH, even though the biopsy I had was negative. I'm going back to the dermatologist and am going to try to get her to do another one in case the first one wasn't done correctly. I have a question about the appearance of the rash that I'm hoping someone can answer. When the blisters start to heal up and scab, do they actually leave a little hole in your skin until they are completely healed? This is what mine does and sometimes they take forever to completely go away. My rash looks exactly like some of the photos of DH I have seen, and nothing like the "urticarial vasculitis" that I was diagnosed with.

  • 2 weeks later...
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Colinsmom Newbie
Colinsmom
Posted
  • Author

Anyone??

babs-652006 Newbie
babs-652006
Posted
Anyone??

Hi, This is my first post here. Have been gluten free since Dec.2006. I wanted to tell you. My DH does leave holes in my skin. It has cleared up for 18 mos. Then I ate something not sure what. It came back with a vengeance. Mine is on my ankles and lower leg. Not sure if this helps but I have had several holes and then when it finally heals scars.... have a great week, babs

Colinsmom Newbie
Colinsmom
Posted
  • Author

Thanks for your reply Babs! I had another biopsy done last Wednesday and will get the results next week so we'll see if it shows anything different than the first one. The dermatologist took two samples, one from a blister and one from the adjacent skin, so at least I know it was done correctly this time. I'll let you know when I get the results.

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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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