Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Columbia Conference


flagbabyds

Recommended Posts

flagbabyds Collaborator

I was was wondering if anyone is going to this, I am, April 2nd and register @

Just wonderingOpen Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
:( i would love too, but i work on saturdays and since it is a new job i dont feel i can request time off---anyone that goes can fill us in--otay----deb :lol:
celiac3270 Collaborator

That's so cool! Thanks for posting it--I sent the link to my mom and I think I can go :). It might be very interesting and I'll make sure I take scrupulous notes or save brochures so I can share all the information here.

angel-jd1 Community Regular

The only activity that I see on the 2nd is a screening fair. Am I missing something?? -Jessica

I only found this:

April 2, 2005

Celiac Disease Center

flagbabyds Collaborator

YOu have to click on the calendar of events and then you can get the pdf agenda and there are a lot of talks and discussions.

I'm flying out from California on Wednesday and leaving on Sunday and going with my sister who is getting the screening, it's going to be really fun

Wow I keep editing this, ok it is a screening fair but you don't have to get the screening done, there are also talks and sessions if you look on the calendar of events

stef-the-kicking-cuty Enthusiast

Does anybody know, how the screening will be done? Blood test??? And do you need more than one person from one family since it said family screening???

Hugs, Stef

flagbabyds Collaborator

you don't have to have more than 1 person it is just reccomended so you can get your whole family tested, and i think that it is done by blood but i'm not sure, you can email the lady if you want to know


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

I just registered! It's going to be so interesting and fun!

celiac3270 Collaborator

No--you don't need more than one person. It's just marketed that way. My mom and I both registered last night--she's going to do the screening even though she's tested negative for celiac in the past because she seems to have symptoms that match up with celiac: hypothyroidism, bloating/distended stomach after eating particularly gluteny foods, etc.

If you register, you have the option to do the blood screening, for which you need to pick a time frame, such as 8:00-8:15, 8:15-8:30, etc. in which you would like to do the test. I'm not getting tested, obviously, but I'm doing the other option you need to sign up for, the "teen cooking" thing, which you also need to pick a time for: a morning one or an afternoon one at 2:30. Then there are people talking throughout the day--you listen to whichever talks you want and they have a Q and A section after each...lecture? speech? whatever they call it.

To answer your question--simply, get as many people from your family tested as you want--or none.....

flagbabyds Collaborator

I'm not getting tested either... But my sister is even though she has been doing mostly gluten-free, she wants to get tested again, because her Biopsy was negative, but she feels better on the diet. I'm doing the afternoon teen cooking, all teens who are going should do this one ;)

celiac3270 Collaborator

I'm also doing the afternoon teen cooking....yay, I'll meet somebody else from the board! :) Then I'll be able to put a face with the name :P

If your sister is on a nearly gluten-free diet, though, she probably won't get accurate blood results, but I guess if it comes free with going to the event and it only takes a few minutes, it can't hurt.

mela14 Enthusiast

now that I am officially here in NJ I will probably register to go! I just oed in today....everything is in boxes but got to my lap...yeah!

I really need you guys now! I am soooooooooo sick. I have been officially glutenized to the max! I am going to post a new topic just to keep things straight...but the bottom line is I bought a whole rotisserie chicken in Wegman's and am deathly ill from it! I spent an hour crying in the bathroom and feeling like I was poisoned! My gut is raw and painful and distended. I am in AGONY!

I had this same chicken at this same Wegman's 3 weeks ago and did not get sick. I specifically went to this store . the label said whole chicken...nothing else...no added ingredient. . I spoke with the cook and she said nothing was added............. I walked out of a different store that I had gone to before this store because the chicken they had was full of "bad" ingredients!

I am getting worse! I just flew in last night and was still suffering from the Lays Potatoe chips and now this. I did NOT eat on the airplane and had a banana for breakfast....so that wasn't it. I ate the chicken and immediately got sick.......... I had a baked sweet potatoe with it but it wasn't that. I microwaved it myself so it couldn't be that. I ate nothing else! it's not 7 hours later and haven't been able to eat. I feel so ill........

If my stove would have been connected this might not have happened. I had workers in my house during the week and the kitchen should have been in order. I get here only to find my stove in my dining room along with my frig. The ony place that I felt safe to go to was Wegman's and now this. The workers are back tomorrow at 8:00am to do the floors in the kitchen. After that I will have my kitchen back.

So much for a smooth move! I should have stayed in Florida. I am so depressed and still in so much pain.

Help! I thought about slitting my wrists today. I can't do this anymore!

I have so much to do this week and just want to lay down and rest. Make the world go away!

I'll have to call my new GI and move my appt up. At this point he might as well do the biopsy that I've been avoiding............I really need to be sedated (just to get some rest)....even if for a little while. Maybe I won't wake up ...won't that be an added bonus.

So much for putting this in another post. I got it all out right here.

oK.the migraine is setting in and I don't know how I will be able to sleep from this pain..........I dare not even take anything for it.

irishchick04 Newbie

Wow. I wish I could go to this. Luckily it sounds like the people who are getting to go will be able to give us a full review.

Mel,

Hang in there. I know how you are feeling. I just spent the last hour crying on the phone to my mom because I have been feeling so sh*tty.

I had to go on a four day field trip with my college class and I accidently got gluten the day before and I had the worse reaction while I was on the trip. It is so <i>not</i> fun to be out in the field doing research and suddenly need to use the bathroom for like four hours. I know what you mean when you say you feeling like slitting your wrists. But believe me, that's not the solution.

Just hang in there. It's so hard sometimes (actually ALOT of the time). I often feel like I just can't win but you just gotta keep putting one foot infront of the other.

Good luck!

Caryn

KaitiUSA Enthusiast

I think I am going to go too my parents seem interested in taking me but I'm not 100% sure if I'm going yet. I hope to :D

  • 3 weeks later...
celiac3270 Collaborator

The registration deadline for this event has been extended to March 21st. So for anyone who has an interest in going and hasn't registered--you still have two more days!

Kaiti, are you going?

Carriefaith Enthusiast
The admission fee includes screening for celiac disease, test results, educational sessions, cooking classes for teens, exhibits, food sampling and entertainment.

Oh wow... that sounds like fun! I'd love to go but I am insanely busy for the next 3 weeks <_< Hopefully, I can make it to the next event! :)

For those that do go, let us know how it went!

celiac3270 Collaborator

I will :). I'll take scrupulous notes and post them in a new thread. I'll try to make everyone who can't make it feel like they did :D;)

Carriefaith Enthusiast

Thanks celiac3270! That's very nice of you! B)

It would sure be nice if we could all make it to an event like this... It would be like a

Celiac.com reunion :lol:

celiac3270 Collaborator

I know--wouldn't that be amazing?!

I've only met Kristina (mysuicidalturtle) in person...but I'll meet Molly (flagbabyds) at the conference...that'll make two celiacs from the board :D

dreamhouses Newbie

Mela, I hope you feel better soon. We will not be defeated by one funky chicken!! Since you are wondering about that chicken you ate: do you know that sometimes chicken has stuff injected into the meat by the processor, like a some sort of salt solution containing who knows what. I was really surprized to read a label in the grocery on some raw chicken saying it had this stuff, - I don't know if that would have gluten in it, but it makes me suspicious, maybe the place you got it used a product like that the second time.

FYI when I had really bad food allergies(in my early 20's) I was helped the most by sublingual drops which trained my body to tolerate stuff by putting tiny doses under the tongue...and interfering with the IGE reaction. Cool stuff. I'm having a few more food allergies now (much later) ... and I'm about to do the Bioset program with my naturopath - which uses accupressure. I'll post on how that goes, but she says its really effective. Keep your chin up. Valerie

celiac3270 Collaborator

Online registration is extended to Friday, March 25!

There are still openings for celiac disease screening at the Celiac Disease Center Family Screening Fair.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.