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Maybe I Had A False Negative?

MinKat

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MinKat Newbie
MinKat
Posted

I have had an ongoing list of Celiac symptoms for the last 14 years, and 6 years ago a Kinesiologist performed a muscle strength test... he declared me allergic to wheat, and told me to only eat what "my ancestors" would eat... nuts, fruit, veggies, meat... That seemed like just too much for me to handle at that point (I was 18)... However things have gotten progressively worse, and I felt like I was going around living with all these issues, that there was no concrete reason for.

My doctor tested me, via the blood tests for Celiac, even after I had told him I had been gluten free for 6 weeks. My results came back negative... He said the antibodies would still be present, and that if I had it it would be positive. Why would our bodies keep making an antibody it didn't actively need?

I feel like, although my husband is super duper supportive and has thrown himself into being as gluten free with me as possible, that maybe I am "forcing" him to do all this, for no reason. Is there any chance of this being a false negative, or am I just being too hopeful?

Help please!!! <_<

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Lisa Mentor
Lisa
Posted
  MinKat said:
I have had an ongoing list of Celiac symptoms for the last 14 years, and 6 years ago a Kinesiologist performed a muscle strength test... he declared me allergic to wheat, and told me to only eat what "my ancestors" would eat... nuts, fruit, veggies, meat... That seemed like just too much for me to handle at that point (I was 18)... However things have gotten progressively worse, and I felt like I was going around living with all these issues, that there was no concrete reason for.

My doctor tested me, via the blood tests for Celiac, even after I had told him I had been gluten free for 6 weeks. My results came back negative... He said the antibodies would still be present, and that if I had it it would be positive. Why would our bodies keep making an antibody it didn't actively need?

I feel like, although my husband is super duper supportive and has thrown himself into being as gluten free with me as possible, that maybe I am "forcing" him to do all this, for no reason. Is there any chance of this being a false negative, or am I just being too hopeful?

Help please!!! <_<

The blood tests for Celiac are not as reliable as we would like. There is some talk these days that the ranges that we consider positive is too narrow.

Many here are self diagnosed and feel quite comfortable with that conclusion. A dietary response is also an accepted diagnosis. You can test yourself by being as close to 100% gluten free as possible for a couple months and then do a gluten challenge for a couple of weeks. You may find your answer.

My husband does not feel deprived since I cook gluten free. He has his bread, cereal and pasta and I have mine. We eat well. ;)

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