Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Reaction Question


SuperBeck

Recommended Posts

SuperBeck Apprentice

Hi,

I was wondering if someone with DH could share their experiences with skin reactions after gluten exposure. Here's a little background: Celiac runs in our family but we all tested negative. I've been gluten free for about 4 months b/c my children are gluten-free due to other non-celiac issues. I didn't get biopsied but noticed since going gluten-free a rash on my knees and elbows has completely gone away. It wasn't the typical DH type of rash--and it never bothered me--so it surprised me when it cleared up. I'd had it since I was a kid, and I'm now 37.

Well, funny thing, the past 2 weeks I've had gluten a couple times (since I don't think I have a medical necessity) and I've had several blister type of rashes (Look like poison ivy but it's not) come up on the inside of my foot. They seemed to happen 12 hours after eating gluten. I abstained from glutenous food for 3 days and had some again today, and sure enough the blister is back up and swolen. The bump is severely itchy and small, but doesn't spread. Is it possible that consuming gluten can cause a DH type of rash so soon after exposure?

Many thanks for any info you can share.

Becky

Raleigh, NC


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yes. When I was newly diagnosed DH breakouts would occur within a few hours of exposure. If you want to have it checked to see if it is DH for sure then a trip to a derm would be in order. Make sure the derm understands the biopsy procedure, he would need to biopsy the tissue next to the lesion to look for antibodies in the surrounding skin. A positive biopsy for DH is a diagnosis of celiac, you would need no more testing for celiac diagnosis after that.

SuperBeck Apprentice

Thanks so much for your reply. Is it common to get a rash on inside of foot? I've read a lot about legs and arms, but not foot. I plan to make a derm appt. Will I have to have rash active for the area to be biopsied? Also, should I be on gluten foods at the time or doesn't it matter? I've been gluten-free for 4 months except a few times.

Beck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,167
    • Most Online (within 30 mins)
      7,748

    jill.p.liken
    Newest Member
    jill.p.liken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...