Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Develop Lactose Intolerance?


Blueberry

Recommended Posts

Blueberry Newbie

Hi everyone. I've been gluten-free for about 6 years now, self-diagnosed. I have heard and read that celiac disease and lactose intolerance go hand in hand, and that after being diagnosed with celiac, you can develop a lactose intolerance. I love diary, (ice cream, chocolate, etc.) and eat alot of it, since it is something that I can eat. Well, until recently that is. Just before the summer, I started noticing symptons similiar to celiac, but different. I am very strict with the glunten, since I am very sensitive, and even the tiniest bit will bother me. I finally traced it back one day to dairy, since the only thing I had eaten that was different, was chocolate milk. I also started noticing it with ice cream, since about 5 min after eating it, I would get terrible shooting pains in my stomach, then have to run to the bathroom shortly afterwards. I have been noticing these symptons more with other diary products, but it is hard to give up, since it will be another thing I can't eat. I have no idea if this is lactose, or something else? Has anyone had any experience with this? Will lactaid pills help me? Or is it like the celiac, where I just have to stay away from it? Should I go see my doctor, and have a test done? Any suggestions, advice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

It can be lactose, casein, or dairy in general. However, the best thing you can do for yourself is to give your digestive system a break, by not eating any dairy for awhile. A number of people find that over time, they regain the ability to handle dairy to some degree.

However, have you checked that the ice cream, chocolate, etc you've been eating is gluten-free? There are dairy-free chocolate products too, though many contain soy, which many find they cannot eat. There have been many threads about that, which a search should bring up for you. Also, there are dairy-free ice creams, like the ones made with coconut, which are very yummy. You can of course make your own too. A soft sort of ice cream can be made in minutes, using a blender, and it works well dairy-free too.

ShayFL Enthusiast

I agree. Cut the dairy for a trial period of at least a few months to see if those symptoms go away. You can then challenge dairy by eating some pure dairy like milk or cheese. Stay away from processed foods like chocolate milk and ice cream for the challenge (because they have other ingredients you could react to). This way you can know for sure if dairy is a problem.

I myself just last week have challenged dairy. Yogurt. And now I have vertigo again. It is the only new thing I added back in within the last 2 weeks. So I am off dairy again and likely forever. I do fine without it. The Coconut ice cream by Turtlemountain is delicious!!

aikiducky Apprentice

If you haven't had problems with dairy before, and it has just started, I doubt if it is connected to celiac. Some celiacs are lactose intolerant in the beginning of the gluten free diet because their intestines aren't healed yet but in your case that wouldn't make as much sense I'd think. So it could very well be just plain old lactose intolerance which you can also develop with age just because you're getting older and producing less of the enzyme that breaks down lactose.

So I'll just disagree slightly with the previous posts... If you are just simply lactose intolerant it could well be that you are fine with milk products as long as you take lactaid or a similar product with the lactase enzyme that you lack. So you could start with trying that, and then if the issues don't resolve, try cutting out milk completely.

Pauliina

JulesNZN Newbie

I was told by several physicians that the ingredients in grain assist in the digestion of dairy. I have been lactose intolerant since I went totally gluten free, it was about a year later that it became obvious to me that it was the problem. Try a lactose medication when you eat dairy, see if it helps. It takes about 2 or 3 days to see results, but it works for me.

Good luck! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.