Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Overwhelmed By Enterolab Results


mardigan

Recommended Posts

mardigan Apprentice

I just received my 2 year old's Enterolab results today. I was shocked to see that he tested positive for egg, yeast, casein, gluten and soy! He has been soy, dairy and gluten free for the last several weeks (except I just realized today his all natural toothpaste has oat beta-glucan(gluten) in it...) which has been enough of a challenge(especially the whole cross contamination issue)! The gluten free bread I have been making for him has yeast and egg and the gluten free waffles I've been making have egg. On a positive note, for the last week he has had 1/2 as many bowel movements and they have been solid and he has gained weight. I have to email enterolab but thought I would ask here as well:

I know the gluten intolerance is a life long issue but has anyone had Enterolab testing and then follow up testing that shows the other intolerances were outgrown? Does anyone feel their positive Enterolab results were off target?

Does anyone else with a child with these same intolerances have any food advice? I'm overwhelmed about the yeast but don't want to ignore it because it's linked to Crohn's Disease.

Also, does anyone know of an all natural flouride free toothpaste that doesn't contain these ingredients(Tom's of Maine has soy!)

I am debating getting tested myself now...

Thanks for any replies or words of encouragement!

Lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I just received my 2 year old's Enterolab results today. I was shocked to see that he tested positive for egg, yeast, casein, gluten and soy! He has been soy, dairy and gluten free for the last several weeks (except I just realized today his all natural toothpaste has oat beta-glucan(gluten) in it...) which has been enough of a challenge(especially the whole cross contamination issue)! The gluten free bread I have been making for him has yeast and egg and the gluten free waffles I've been making have egg. On a positive note, for the last week he has had 1/2 as many bowel movements and they have been solid and he has gained weight. I have to email enterolab but thought I would ask here as well:

I know the gluten intolerance is a life long issue but has anyone had Enterolab testing and then follow up testing that shows the other intolerances were outgrown? Does anyone feel their positive Enterolab results were off target?

Does anyone else with a child with these same intolerances have any food advice? I'm overwhelmed about the yeast but don't want to ignore it because it's linked to Crohn's Disease.

Also, does anyone know of an all natural flouride free toothpaste that doesn't contain these ingredients(Tom's of Maine has soy!)

I am debating getting tested myself now...

Thanks for any replies or words of encouragement!

Lisa

Don't debate get yourself tested. All of his first degree relatives should be tested, you, Dad, brothers and sisters. If you or Dad are positive then your brothers, sisters, Mom and Dad should be tested. And so on.

It is going to be tough with the number of intolerances he has and hopefully someone who has been through this with a little one will be able to help. You may find the section on Other Intolerances on the board helpful also.

Ener-g makes a egg replacement. It is powdered and you could use that in place of eggs in your baked goods. Be sure to try Chebe also. It is a yeast free bread mix that can be used for a lot of different things.

mftnchn Explorer

You might take a look at the Specific Carbohydrate Diet, because other than the egg, all the other intolerances are taken into account. Especially on the site www.pecanbread.com where it is mostly kids and many are casein sensitive. Lots of recipes plus ideas for someone who is very sensitive.

SCD is gluten free, but stricter to help heal the gut issues.

I haven't retested Enterolab for casein sensitivity but have been able to reintroduce it in small amounts, and to use goat milk yogurt without much trouble. I did recheck my Enterolab absorption levels.

My Enterolab results were right on. I didn't have the other food intolerances done though, just milk.

feedmykids Rookie

We have Multiple food allergies as well as celiac in our family. Use Baking powder instead of yeast and make more sweet batter breads like banana or zuchinni. Replace the eggs with applesauce , for binding and moisture, or unflavored gelatin powder, for binding, use 1 tsp per 2 C. flour mix.

For my kids teeth we pour a flouride rinse over the brush part instead of using water, they get the flouride and the scrubbing and we floss and rinse good. It has been working well. HTH! Also , trz using spectrum shortening for baking, it is made from palm oil so it is dairy and soy free. It works wonders!

  • 1 month later...
eeyore Collaborator

I've been tested by EnteroLab...I am gluten- and casein-sensitive. I am also wondering what the difference is between being gluten-sensitive or gluten-intolerant. I would appreciate it if anyone could help!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.