Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes I Can Tolerate Carrageenan, Sometimes I Can't?

Pyro

By Pyro
in Coping with Celiac Disease

Recommended Posts

Pyro Enthusiast
Pyro
Posted

Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Right after I posted this, I read the health concerns found here:

Open Original Shared Link

Hmmmm... Still I wonder why we do fine with it at least some of the time.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jnclelland Contributor
jnclelland
Posted
Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

sickchick Community Regular
sickchick
Posted

I can't tolerate soy lecithin OR carageenan... and it makes me crazy! :) HAHAHA

Pyro Enthusiast
Pyro
Posted
  • Author
Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

Wow, maybe! Though soy sauce, soy ice cream, tofu, and lechitin don't seem to bother me.

mslee Apprentice
mslee
Posted

I'm wondering about these too.

Seems like they both cause problems, I've been using rice milk and it seems ok

this is so weird, really we just experiment with all these things until we can tell what exactly is the problem ingredient???

I tried making an allergist apt and they had never heard of celiac, the lady wanted to know if it was something they put in food. They other office I called said they had never heard of it either and that if any of my allergy tests came back neg. my insurance would not cover them.

guess I have more phone calls to make.

Is there any other option???

RiceGuy Collaborator
RiceGuy
Posted

There's also the possibility of CC, which can vary from batch to batch. So one time it might bother you, and the next time not.

But anyway, if you have a blender, you can make your own nut/rice/soy milks. It'll save you money, and you get to choose the ingredients. Some xanthan gum or guar gum works fine in most cases. I've done this many times.

  • 2 years later...
Austin Guy Contributor
Austin Guy
Posted

I got glutened this morning and paid the price in the bathroom, but started feeling better more quickly than usual. Then I had canned soup late in the day that contained carrageenan, which I knew nothing about. I was in the bathroom several times within 25 minutes just as if I had been glutened again.

I have had the same soup when feeling non-glutened a couple of weeks ago and was fine. Is my reaction to this stuff perhaps turned up a notch because of accidental gluten ingestion? Can getting glutened make people more sensitive to other food products? Seems like it would.

Still so very new to this - some adventure!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748
    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.