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My Turn To Post Test Results W/ Questions

sugarsue

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sugarsue Enthusiast
sugarsue
Posted

She is almost 6 with multiple celiac symptoms but also very mildly on the autism spectrum.

Her IgA tests on the celiac panel are all Negative or normal.

Her AGA IgG was 85 with a range of <11 negative 11-17Equivocal and >17 Positive.

From what I've read, a positive IgG with normal IgA does not show strong signs towards celiac but since it's so elevated could be more significant. As those who are dealing with this already, what are your thoughts about these test results? Would it be worth getting the stool testing? I have left a message with her neurologist to get his take on it.

Also, what does Reflex to Titer mean?

Thanks.

Susan

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lizard00 Enthusiast
lizard00
Posted

Was her total IgA serum within range? I make very little IgA and therefore all of the IgA based tests came out negative. Unfortunately, my PA didn't know better and thinks that you always carry the anitbody for gluten in your blood. So, my dx was dietary rxn and genetics.

But, a number that high out of range would def be worth looking into.

mftnchn Explorer
mftnchn
Posted

Is AGA referring to antigliadin? If so, it is a strong response to gluten and when you finish testing, whatever other results you get, it warrents a dietary trial. However, the test isn't so specific for celiac.

I agree with checking total IGA.

Your doctor may not place credence in the stool testing, if he does you are one of the lucky ones. But you can do this on your own anyway, so it is up to you.

sugarsue Enthusiast
sugarsue
Posted
  • Author
Is AGA referring to antigliadin? If so, it is a strong response to gluten and when you finish testing, whatever other results you get, it warrents a dietary trial. However, the test isn't so specific for celiac.

I agree with checking total IGA.

Your doctor may not place credence in the stool testing, if he does you are one of the lucky ones. But you can do this on your own anyway, so it is up to you.

Thank you, yes, it appears that AGA is antigliadin. Total IGA says "Normal"

TTG IGA AB result was <3 with negative lab range of <5

AGA IGA result was <3 with negative lab range of <11

IGA result was 64 with the range of 33-235 mg/dl (maybe this is the total?)

EMA IGA AB (this is the one that says Reflex to Titer and says Negative but has no numbers)

Since the AGA IgG test is not specific to Celiac, do you think that means it's specific to a gluten reaction or could be to some other reaction too? Our neuro will not be open to stool testing but our Pedi may.

Thanks again!

sugarsue Enthusiast
sugarsue
Posted
  • Author
Was her total IgA serum within range? I make very little IgA and therefore all of the IgA based tests came out negative. Unfortunately, my PA didn't know better and thinks that you always carry the anitbody for gluten in your blood. So, my dx was dietary rxn and genetics.

But, a number that high out of range would def be worth looking into.

Hi and thanks for your response! How did you find out that you make very little IgA? I don't exactly know what to do as far as looking into the IgG out of range but maybe it's the stool testing. Maybe it's just trying the diet. So many questions!

Susan

lizard00 Enthusiast
lizard00
Posted
Hi and thanks for your response! How did you find out that you make very little IgA? I don't exactly know what to do as far as looking into the IgG out of range but maybe it's the stool testing. Maybe it's just trying the diet. So many questions!

Susan

My IgA was under range. The lab's range that did my bloodwork started at something around 85 or 90 for total IgA serum, and my number was 19. So, while I make some, it's low enough that it throws all the subsequent testing off.

My GI told me that it was very important for them to test my son's IgG tTg in addition to the IgA based tests to make sure all the bases were covered until they established whether or not he made a sufficient amount of IgA. (He's 3)

Did the doc suggest a biopsy? I know that's hard to face with a little one, but that may be the answer for your particular situation. Have you tried having your daughter be gluten free? A positive dietary response is just as, if not more, crucial in the Celiac diagnostic process.

Jestgar Rising Star
Jestgar
Posted
Hi and thanks for your response! How did you find out that you make very little IgA?
Thank you, yes, it appears that AGA is antigliadin. Total IGA says "Normal"

TTG IGA AB result was <3 with negative lab range of <5

AGA IGA result was <3 with negative lab range of <11

IGA result was 64 with the range of 33-235 mg/dl (maybe this is the total?)

EMA IGA AB (this is the one that says Reflex to Titer and says Negative but has no numbers)

While still technically within the "normal" range, your daughter doesn't make a lot of IgA. It might be enough to skew the reports.

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