Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chemical Sensitivities


mslee

Recommended Posts

mslee Apprentice

For those of you with Chemical Sensitivities how did you narrow it down to a specific chemical or additive? Is There some sort of testing for this or is it learned through trial and error???

Thanks!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mftnchn Explorer

My allergist did testing but I don't think all allergists do.

Michi8 Contributor

I had patch testing done through my dermatologist. Found out that I'm allergic to potassium dichloride (chromium), nickel, cobalt...which are found in many products such as adhesives, cosmetics & hair/body products, paints, cements, etc. Also allergic to neomycin.

Michelle

For those of you with Chemical Sensitivities how did you narrow it down to a specific chemical or additive? Is There some sort of testing for this or is it learned through trial and error???

Thanks!!!

Lisa16 Collaborator

I had a "scratch test" done long ago and the only part that came back positive was the histamine control. I think it was worthless. But somewhere I read that it tests for only one type of allergies (acquired maybe?)

For food sensitivities, I have a strong immediate reaction in the form of a red rash that creeps up my neck and outlines my lips and bursts on my face to MSG, sulfites/ sulfates (these also make my joints swell) and nitrites/ nitrates. That is pretty easy to see/ deduce. Feed me a piece of bologna with nitrites in it and I will "blotch out" in less than 20 minutes. Same with wine or dried fruits preserved qith sulfates. And msg? Call the fire squad! I look like I got a really bad sunburn.

But the gluten took me years to figure out. In fact, I never really did. All I knew was that it was either everything making me sick or something so pervasive that I had no chance at figuring it out. I even suspected my morning tea at the lowest point. And I would eat spaghetti and get sick and think-- Oh, it is the tomato sauce. Ha! And I would quit eating tomatoes. And towards the end I was only eating "simple starches" and it nearly killed me. How stupid was I? But that is what conventional wisdom says is the easiest to digest. The headaches alone were the most painful things I have ever experienced and I know pain well.

For chemicals in things like shampoo, deoderants, lotions, creams and the like it can take the form of anything from a hot red, itchy rash to an outbreak of actual blisters. Sometimes whatever is doing it is a mystery. Sometimes I think it is the alcohol or the fragrance or some plant extracts. For sure I know SLS will do this to me. Once some pistachio foot cream really zapped me and it was organic (from desert essence!) Quite frequently (and ironically) hypo-allergenic creams get me. I have given up trying to understand it and just avoid stuff that is new. And I try something new with extreme caution. I try to keep track of suspicious ingreedients. It is my final frontier.

Good luck. Try to keep a record. And be careful.

Michi8 Contributor

Just an FYI... patch testing is different from scratch/skin prick testing. Many samples of allergens (typically different items than for food testing...such as metals, chemical ingredients, etc) are placed on your back (can range from 25 samples to over 100), covered up and left for a couple of days. They are then checked, recovered and left for another day or two. Not being able to bathe your back for a few days isn't fun, but the test can reveal some good information.

Michelle

I had patch testing done through my dermatologist. Found out that I'm allergic to potassium dichloride (chromium), nickel, cobalt...which are found in many products such as adhesives, cosmetics & hair/body products, paints, cements, etc. Also allergic to neomycin.

Michelle

mslee Apprentice

Thank You Guys!

Will be keeping a record of what bothers me...

I am going into the Allergist tomorrow, will post how it goes

:)

mslee Apprentice

:huh: oh that was just the preliminary let me take your cash and talk about it apt.

testing tomorrow am, will go from there


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mslee Apprentice

Yes he started with food allergies 75 tested

slight allergic responses to

soy, rice, corn, milk,coconut there were others but those were the worse

he said he could do patch testing, but again he is an old fashioned doc and didn't place much importance on it (the $ holds me back for now)

best bet is probably to avoid as much chemicals as possible.

he did say having any sort of allergy issues automatically makes you more sensitive to dyes, perfumes, chemical smells.

Thanks for the input, now I know about the arsenic hair test and can bring these issues up whenever I get into an alternative type Dr.

Thanks Again!!! :D

Lisa16 Collaborator

MsLee--

One of the greatest things I ever did was to see a dietitian with a list of allergies in hand as well as about three weeks of food diaries.

I am now pretty much down to down to fresh fruits and veggies, fresh chicken and minimally packaged/processed shrimp. It is a huge amount of work at first, but I make my own sauces from fresh ingredients whenever I can. Organic when possible.

I but my flours (Bob's usually), my peanut butter, pamela's pancake mix, hellman's mayo, heinz ketchup and mustard. gluten-free soy sauce and fish sauce are staples, as well as harissa (mustapha's is gluten-free.) I also buy my spices carefully, as well as oils and baking ingredients like cream of tartar, baking soda and vanilla. I try to get the simplest list of ingredients possible. I avoid as many chemicals as I can.

For toiletries, I use a mix of products from Tom's, LUSH, sundari, korres, caudalie, burt's bees and dessert essence. I like 100% pure cosmetics (online.) For laundry detergent I go with all free and clear or arm and hammer or seventh generation. I cop to using NARS mascara, but that is the only one I have found so far that is gluten-free.

Good luck.

Lisa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.