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Reading And Learning


Durntootinnoglutin

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Durntootinnoglutin Rookie

Hello people....

glad to have found this place.

i am self diagnosed for celiac disease, maybe i have a fool for a patient but i have had too many fools treating me in the past.

Apologies for sounding so negative, but my experiences in the field of health care have not been so positive.

Generaly my health has been good up to about 18 months ago when i slowly began to lose weight with short bouts of symptoms. The reason i am here is i noticed when trying to put weight on by diet, certain things triggered the symptoms. First i went dairy free, well, lactose free milk, and no other dairy products. Felt a little better. But still weight loss and bowel problems kicking up.

i think the thing that decided me was a growing repugnance to wheat. i have always loved bread, but it got to the point i could hardly stomache it while eating it...could not explain this aversion, and i felt full all the time.

So thought i'd try celiac free for awhile and see what happens. Have had varied luck with it and suspect i may be allergic to soy as well.

Am going to try the paleo diet for awhile. It seems healthy enough. In the meantime will be reading and learning here.

Tho the above is wordier, my main reason for being here is to express my appreciation for the people here who generously give of thier time to teach and share and help. This place is a heap of knowledge on the subject and i've learned a lot. Thank you.


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ShayFL Enthusiast

Welcome. :)

Also look into the SCD diet as it has helped MANY in here including me.

Make sure you are 100% gluten-free. No wheat, barley, rye or oats.

Make sure you do not use old scratched teflon pans, cutting boards, wooden spoons, etc. as they can harbor gluten and contaminate you.

Make sure all of your toiletries are gluten-free (toothpaste, lotions, anything that goes on your lips, etc.)

Soy may be a problem, but it may be that you are till getting small amounts of gluten without knowing it and cannot heal fully.

Wishing you well.

Durntootinnoglutin Rookie

Thanks for the response ShayFL, and the sharing of your knowledge.

Yes, this is a maze for now... learning diet and cooking all over again.

What is a SCD free diet? Everytime i've run across it on these threads it's been abbreviated Am guessing the S is Soy and the D is dairy, but what is the C? Will prolly slap my self in the forehead when i find out. :lol:

Re the other grains you mentioned, am learning to read lables on everything, and i do mean everything. Emphesis is because i cannot believe the things i am finding wheat and wheat products in.

The latest was imitation crab meat. i love it and thought it surely must be safe for me, reading the label was a shock. Gave the whole bulk package to my friend, hope my lip didn't tremble when i did. :(

ShayFL Enthusiast

It's the Specific Carbohydrate Diet. :)

www.pecanbread.com

Durntootinnoglutin Rookie

ShayFL

So it is NOT soy c? Dairy free diet! :)

Thank you so very much i have it bookmarked. There is quite a bit of information to cover.

For ages i have said modern people do not eat enough tree nuts, tho lately i've had to leave them out of my diet.

After reading the info i will probably be back with questions.

Thank you. :wub:

terreemc Newbie

I agree, the learning curve for this is rather steep. I try to learn a little something each day. Af first I was overwhelmed!

Also it seems that, as you heal you will be more sensitive to gluten and perhaps other foods. I started out with just getting rid of wheat and then found all sorts of other gluten in my kitchen and that I could not digest soy very well and then out went tomatoes and peppers..... I am still learning just how careful one needs to be. But in spite of all the mistakes, I am feeling better. I hope you will also.

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    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
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    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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