Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Abdominal Symptom


lotusgem

Recommended Posts

lotusgem Rookie

Hi Everyone! Before I get into my question, I want to say how impressed I am with all the caring and informed people in this group. Wow! I'm fast becoming addicted to this message board. :)

My question has to do with a symptom that I had as a pre-teen, more than 30 years ago. You see, until I had learned about Celiac disease and begun the diet several months ago, I had forgotten all about these unpleasant spells that I used to endure from time to time as a child. I feel certain that they were directly a result of Celiac, and wondered if anyone knows what they were. I used to sometimes feel my lower abdomen start to stiffen and get hard and I would hobble into my bedroom and lay down on my back. I could feel and see the outline of my innards start to swell or inflate and push out from what would normally be a flat stomach. It would continue to get worse and worse for a couple of minutes or so. I remember reaching out and touching the area and it was hard as a rock, and the part that was raised resembled the shape of a hose. I was vaguely aware of anatomy and decided that from the looks of the form, that it was probably my intestines. It was very scary for me as a child, not to mention painful. I was always afraid that something would burst. But after a few minutes the stress would subside and whatever was going on down there would relax and my stomach would flatten out again. Odd, but I never told anyone about it, either family or doctor. Can anyone tell me what was going on there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Hmm...I don't know--I used to have a strange abdominal symptom--not sure if it was celiac or the malrotation, but when I felt sick, all the muscles in my stomach would tense up completely--making it look I had really amazing abs :lol: and my stomach would....get sucked inwards--without me trying to or anything....I think that was malrotation, not celiac, but another weird stomach thing. Sorry I can't help with your situation, cause mine was basically the opposite.

lotusgem Rookie

Thanks, celiac3270 for taking the time to reply. I wonder if it was malrotation. After I read your post, I did a little research on the subject. If what I understand is correct, the right side of the abdomen is where the action takes place, and that's the side that was most affected in myself. What I wonder now is if there is a connection between Celiac and this birth defect. Seems like I've noticed a few people participating in this message board that say they have both. Well, I saw your earlier post about your recent operation; I hope that you stay well and happy!

Paula :)

celiac3270 Collaborator

Thank you :)--it's been 19 days now w/o getting sick--I haven't gone that long in over a year!

Really? Who else has this? Also, I'm not trying to suggest that you have that-- do you still get that symptom or was it just in the past? If you no longer get the symptom, I think it would effectively rule out malrotation. If not--well, you said it started as a child...so who knows?

lotusgem Rookie

Way to go, celiac3270! 19 days and counting! You're on a roll (mal-ROLL-tation :D )

Gosh, I wish that I could tell you who I thought I saw that had both Celiac and malrotation, but I have no idea. I've been all over this message board and just don't remember, but could swear there were others. I realize that you are not suggesting that this could be the problem, but still, it is interesting and I had decided to research it but had forgotten the name. So you did me a nice favor by reminding me! No, I haven't had any other symptoms like that since childhood. That means that I can rule it out, huh? I had wondered about that. Well, good. Maybe we'll talk again sometime.

Take care.

Paula

celiac3270 Collaborator

Yes--your intestines wouldn't be twisting as a child and then all of a sudden stop--this is ongoing and will not be present without symptoms of some sort--which is why they usually find it at birth--often a baby has a problem, such as projectile (or green) vomiting. So yes--you can rule out malrotation. Congratulations, your intestines aren't messed up structurally :lol::D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,892
    • Most Online (within 30 mins)
      7,748

    Evagaline
    Newest Member
    Evagaline
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Alibu
      MY BIOPSY WAS NEGATIVE!!!  HOW?? Obviously I'm thrilled it was negative, but I'm so confused now.  
    • trents
      First, I hope you know that celiac disease is not an allergy to gluten. It is an autoimmune disease reaction that is triggered by gluten consumption. Allergies don't trigger immunes responses whereby the body attacks it's own tissues but this is what is actually happening with celiac disease and what distinguishes celiac disease from NCGS (Non Celiac Gluten Sensitivity).  Second, though I think your question other question has already been answered. Since the tTG-IGA antibody test is only 90 to 98% specific, elevated values for this test will be have non-celiac disease causes in 2 to 8 out of 100 cases. I realize that is addressing your question in a general way but the non-celiac causes have also be covered in this thread, though not to  the granularity of giving percentages to each non-celiac cause. Not sure why that is important to you at this point. First, you need to separate whether it is due to celiac disease or not. If not, then start sorting out what the other cause is. But as I stated above, by far the most likely cause is celiac disease so that is the place to start. Sure, we get it. Having  to eliminate gluten from your life spells huge culinary and social changes and challenges. But it's still better than facing cancer or host of other diseases that less definitive antidotes and outcomes. With celiac disease you don't even have to worry about taking medications because, as of now at least, there are none. The treatment is very straightforward. Avoid gluten.
    • Shining My Light
      @trents This info is so helpful and I’m absorbing it all. My blood tests were almost a month ago and I feel like it came out of left field. I never even heard of term “silent celiac.” I thought celiac gave you violent diarrhea when you consumed a tiny bit of gluten. That’s it. Not that it damages your small intestine, not that it made the absorption of vitamins and minerals compromised. None of it. To me it was just an allergy to gluten.  My close family and friends think I’m crazy for even giving it a second thought because “no symptoms, no worries.”  It’s unfortunately hard for me to let something go that I don’t know enough about. Therefore all the research came into play.  I’m glad I’ve joined this forum. It’s more helpful to talk things through with people than looking through cases studies without being able to ask questions. I’m on the fence right now on what my odds are. I don’t know enough about the other variables and probability of why a TTG level would be raised.  The questions I still have lingering are:  -what are the odds that these levels are raised in something other than celiac? For instance of all positive TTG tests that have been done how many of those are from celiac? I know it’s a big ask but to me that’s something that is super unclear to me.  - what are the TTG levels in something other than celiac? (I.e. in things like type 1 diabetes, rheumatoid arthritis, hepatitis, viruses, NCGS, etc, are the TTG levels the same as those that have celiac, higher or lower?)  - even if it’s not celiac and it’s NCGS, if my body is “responding” to gluten, and creating antibodies to it, wouldn’t that be something to avoid anyway? Maybe not doing the damage but still my body doesn’t like it?  -could I really possibly follow a gluten free life as close as I follow Jesus?  Definitely understand now that key piece of needing an EGD. It’s looking at things from another angle. Also with all the other associated blood work, more angles.  I would like to say please forgive me if any of my questions seem as though I’m trying to be difficult. Making lifelong decisions is hard.  I do have decisions to make as you have said. I clearly will need convinced in order for this to be something to be committed to.  I would hope that there will be something in the future that comes out that will offset gluten in bodies the same was it does for sugar in diabetics.  My compassion is far greater for anyone carrying the burden of celiac than it was a month ago knowing what I know now.  I appreciate you helping me work this out, in real time. It’s been lonely up to this point. Only me talking about what I’ve read to people who don’t think I should be bothering with it any further. 😆 So thank you! 🙏            
    • trents
      Lot's of folks would trade places with you with regard to the unintentional weight loss. Seriously, though, I would be concerned about vitamin and mineral depletion due to malabsorption in the small bowel. One thing you can do now to address that which will not jeopardize the accuracy of further testing for celiac disease would be to start taking some high potency vitamin and mineral supplements. Make sure they are all gluten free if you will continue to use them - after diagnosis, that is. Wheat starch is sometimes used as a filler in pills. A multivitamin may not be potent enough. So, I would go for a B-complex, magnesium glycinate (the form of magnesium is important for good absorption and to prevent a laxative effect), zinc picolinate, and D3 (around 5000IU daily). These are supplements we routinely recommend on this forum to newly diagnosed celiacs and in view of your dramatic weight loss it would likely be appropriate for you as well. It often takes around 2 years for the villous lining of the small bowel to fully heal after going gluten free and until then, nutrient absorption will be compromised. The small bowel is the section of the intestines where all of our nutrition is taken up. Keep us posted.
    • terrymouse
      I'm 5'2" so it's weight I could afford to lose. I guess what's concerning is that it's not on purpose, I haven't been active because I don't have much energy, and it's been steadily going down since I started keeping track of it. So I'm not too worried about where I'm at right now, but it's something I'm keeping an eye on.
×
×
  • Create New...