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Symptoms

Lauriann

By Lauriann
in Coping with Celiac Disease

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Lauriann Rookie
Lauriann
Posted

Hello,

I am relatively new to this site. I dont often reply to anything, I just read and get information. I was diagnosed with Celiac in July of 08.

I have noticed in this forum that people sometimes try and out do each other with symptoms. I found that very odd. And also I find that alot of people on this site self diagnose themselves with the disease. I look at it the more we dwell on being sick it just makes us sicker. People are very gloom we still have our lives in tact we just have to live them a little differently than others thats all.

thats really all I wanted to say... :)

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ShayFL Enthusiast
ShayFL
Posted

This forum is filled with all sorts of people. People like you who just "lurk". People who come in here only when they feel like crap to vent. People who are new to the disease and need valid help. People who find Celiac/Gluten intolerance interesting even though they dont have it. And people who are doing well, but come in here just to help others and offer support.

It is a living breathing organism like anything else. You will not appreciate everything about it. But you do not need to. You can still benefit from it even though you do not like how each member behaves.

We are all lucky a forum like this exists. :)

Lauriann Rookie
Lauriann
Posted
  • Author
This forum is filled with all sorts of people. People like you who just "lurk". People who come in here only when they feel like crap to vent. People who are new to the disease and need valid help. People who find Celiac/Gluten intolerance interesting even though they dont have it. And people who are doing well, but come in here just to help others and offer support.

It is a living breathing organism like anything else. You will not appreciate everything about it. But you do not need to. You can still benefit from it even though you do not like how each member behaves.

We are all lucky a forum like this exists. :)

I dont consider my self a " lurker" so I take a little offense to that statement. Thats fine with people if they want advise...obviously that is why I am here. But I still believe that alot of people really do try and out do each other with their symptoms. That is my opinion thats all. I have no problem ginving out information as I have done in the past. So dont need to be so angry with my point. Thats what this forum is for as you have stated for venting...

Lisa Mentor
Lisa
Posted

Hi Laurianne,

My name is Lisa and I've been active on this site for over three years. You will find a wide variety of people here. But, there is one thing we all have in common. For the most part, many of us have been very, very ill and in searching for a path to good health, we landed here.

Celiac Disease has over 200 symtoms and the group of us vary in all manners. We gather here because we all have Celiac Disease, gluten intolernace or gluten sensitivities, or associated illnesses caused by it. Some people come here because this is the only place that they could be understood. Some people come to this place for the best information around and others find a hand to hold in a terrible time of their lives. Others are healed and stay to "pay it forward" so to speak.

So, there are many reasons that people find themselves here. I hope you have reason enough to stay. We learn from everyone here. And everyone is welcome! ;)

melmak5 Contributor
melmak5
Posted

I can see your point, that sometimes it can appear that people are trying to one-up each other when they are explaining/listing symptoms. I cannot speak for anyone but myself here, but as a person who was told by the western medical community that almost all of my "symptoms" were either in my head or could not possibly be celiac disease... I have found this forum a place to ask questions and see what other people deal with.

I was told that regurgitating food was not a classic symptom of the disease, but by talking about it here, I found that some other people deal with it too. My personal list of symptoms is over 20 "things" that happen to my body when I get glutened, so when someone new asks what happens to my body it may appear that I am trying to "out do" the person that posted before me, but really I am just trying to share my information in hopes that it will help someone else.

Like Momma Goose mentioned, there are so many different symptoms that do not happen to everyone, it is complicated.

I am grateful for the forum because it helped give me answers to a myriad of my symptoms that kept confounding medical doctors and myself and by reading other people's lists, I was able to start to put the peaces together and finally start healing.

I hope that you find the site useful!

melmak5 Contributor
melmak5
Posted

*pieces together

Archived

This topic is now archived and is closed to further replies.

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      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      Bob red mill gluten free oats

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