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Symptoms


Lauriann

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Lauriann Rookie

Hello,

I am relatively new to this site. I dont often reply to anything, I just read and get information. I was diagnosed with Celiac in July of 08.

I have noticed in this forum that people sometimes try and out do each other with symptoms. I found that very odd. And also I find that alot of people on this site self diagnose themselves with the disease. I look at it the more we dwell on being sick it just makes us sicker. People are very gloom we still have our lives in tact we just have to live them a little differently than others thats all.

thats really all I wanted to say... :)


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ShayFL Enthusiast

This forum is filled with all sorts of people. People like you who just "lurk". People who come in here only when they feel like crap to vent. People who are new to the disease and need valid help. People who find Celiac/Gluten intolerance interesting even though they dont have it. And people who are doing well, but come in here just to help others and offer support.

It is a living breathing organism like anything else. You will not appreciate everything about it. But you do not need to. You can still benefit from it even though you do not like how each member behaves.

We are all lucky a forum like this exists. :)

Lauriann Rookie
This forum is filled with all sorts of people. People like you who just "lurk". People who come in here only when they feel like crap to vent. People who are new to the disease and need valid help. People who find Celiac/Gluten intolerance interesting even though they dont have it. And people who are doing well, but come in here just to help others and offer support.

It is a living breathing organism like anything else. You will not appreciate everything about it. But you do not need to. You can still benefit from it even though you do not like how each member behaves.

We are all lucky a forum like this exists. :)

I dont consider my self a " lurker" so I take a little offense to that statement. Thats fine with people if they want advise...obviously that is why I am here. But I still believe that alot of people really do try and out do each other with their symptoms. That is my opinion thats all. I have no problem ginving out information as I have done in the past. So dont need to be so angry with my point. Thats what this forum is for as you have stated for venting...

Lisa Mentor

Hi Laurianne,

My name is Lisa and I've been active on this site for over three years. You will find a wide variety of people here. But, there is one thing we all have in common. For the most part, many of us have been very, very ill and in searching for a path to good health, we landed here.

Celiac Disease has over 200 symtoms and the group of us vary in all manners. We gather here because we all have Celiac Disease, gluten intolernace or gluten sensitivities, or associated illnesses caused by it. Some people come here because this is the only place that they could be understood. Some people come to this place for the best information around and others find a hand to hold in a terrible time of their lives. Others are healed and stay to "pay it forward" so to speak.

So, there are many reasons that people find themselves here. I hope you have reason enough to stay. We learn from everyone here. And everyone is welcome! ;)

melmak5 Contributor

I can see your point, that sometimes it can appear that people are trying to one-up each other when they are explaining/listing symptoms. I cannot speak for anyone but myself here, but as a person who was told by the western medical community that almost all of my "symptoms" were either in my head or could not possibly be celiac disease... I have found this forum a place to ask questions and see what other people deal with.

I was told that regurgitating food was not a classic symptom of the disease, but by talking about it here, I found that some other people deal with it too. My personal list of symptoms is over 20 "things" that happen to my body when I get glutened, so when someone new asks what happens to my body it may appear that I am trying to "out do" the person that posted before me, but really I am just trying to share my information in hopes that it will help someone else.

Like Momma Goose mentioned, there are so many different symptoms that do not happen to everyone, it is complicated.

I am grateful for the forum because it helped give me answers to a myriad of my symptoms that kept confounding medical doctors and myself and by reading other people's lists, I was able to start to put the peaces together and finally start healing.

I hope that you find the site useful!

melmak5 Contributor

*pieces together

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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