Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seafood And Celiac


Swimmr

Recommended Posts

Swimmr Contributor

Hi new here. I'm 26 and found out about a year ago that I may be intolerant to wheat and gluten products. My mother definitely has it and reacts violently at times to anything. Especially iodine.

My topic here is mainly to get info on Seafood and being intolerant. I have yet to go to the doctor to see if I have celiac. I don't think that I do since I have caught it earlier than my mother. She doesn't have celiac, just extremely intolerant. I recently discovered (through her) that I cannot have iodized salt. I started using sea salts...for as long as I've been going gluten/wheat free because apparently idodine affects those who are intolerant. I have yet to find more information on that particular thing. I recently had purchased a container of celtic sea salt and starting itching around my chest and neck area and didn't think anything of it until my mom called me at work only to tell me NOT to use the celtic sea salts because it's rich in iodine. The itching ceased.

I do know that both times I've eaten boiled crab (prepared at home), not at a restaurant that I had a REALLY bad reaction. Mostly intestinal. It was bad bad diahrea and it was watery and greenish. So I decided to NOT ever eat crab again. It was my first and LAST time. So if shellfish are a risk to eat (as I had later found out), will regular fishes such as salmon and tilapia be a risk? Is it specifically idodine or is it other metals. I have heard that iodine will affect you IF you have ingested something with wheat and/or gluten. But if you do not have it in your system then iodine won't make you react.

Now to my real question. Would regular fish like salmon, tilapia, or tuna also have a similar affect as the crab did? I have not eaten salmon in about 7 or 8 months and I had 10 oz of it yesterday evening for dinner. It was at Logan's Roadhouse restaurant and I even had the manager come to my table so I could ask if it was gluten and wheat free and any of the seasings they used were as well. He said they use crushed pepper and lemon juice to season it. I decided to get it. I squeezed lemon all over it and went to it. It was delicious.

Later in the evening I started feeling extremely wierd. Dizzy, a little nauseated, a strange headache that felt like it was coming from the base of my skull and branching to my eyeballs. It wasn't bad like a cluster headache, but definitely more annoying than anything. It was dull, but constant. I was really dizzy and any position I layed in just didn't feel good. Also had bad indigestion which I've found to be a SURE sign of something I didn't need to eat. Usually I just bloat up, have gas/indigestion and a migraine or all of them at once if I've gotten ahold of something.

I have called into work this morning because I'm still nauseated, slight indegestion, headache and dizzy. But I'm scared to eat anything due to me having indigestion. Drinking or eating anything causes it to be worse no matter what it is. So I don't know if my headache that I still have is from not eating yet or lingering from last night.

Everyone's symptoms are different, I just need to know if the metal content in salmon would make me react.

Thankyou for any opinions or facts that could help me in the future! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Most salmon in restaurants is "farm raised" unless it specifically says "wild caught'. But wild caught is soooo expensive that most restaurants do not serve it. Logan's wouldnt. Farm raised will not have high iodine levels. There is ALWAYS the chance of CC in a restaurant setting. You might have gotten gluten even though you checked. IT has happened to me.

Hope you feel better soon.

Swimmr Contributor
Most salmon in restaurants is "farm raised" unless it specifically says "wild caught'. But wild caught is soooo expensive that most restaurants do not serve it. Logan's wouldnt. Farm raised will not have high iodine levels. There is ALWAYS the chance of CC in a restaurant setting. You might have gotten gluten even though you checked. IT has happened to me.

Hope you feel better soon.

Thankyou. The symptoms are starting to go away. The headache much better, but dizzy and not going to drive to work like this.

I suppose it was CC, however, I've not had serious reactions (like my mom does) with CC. Maybe I just can't have seafood anymore...who knows why. Shrimp sometimes will do it to me too even though it's boiled at home with no seasonings...just melted butter made with canola oil.

Thankyou for your input!! :)

lovegrov Collaborator

Iodine can be a problem for people who have celiac and DH -- but not for folks who have celiac without the DH. The iodine keeps the blisters coming back longer. Generally, those people can consume iodine again after being gluten-free for a number of months.

Your crab reaction sounds like you might be allergic to shellfish.

richard

chatycady Explorer

My book on celiac says shell fish is a problem, crab, lobster and shrimp. I love them all but can't eat any of them anymore. Don't know why, maybe' it's harder to digest.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,813
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.