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2 Yr Old -neg Blood, Dr Wants Biopsy

MomJDL

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MomJDL Newbie
MomJDL
Posted

I am VERY new to all of this. Here is what is going on with my 2 yr old son.

Even though my son's celiac blood test came back negative the GI doctor said it isn

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TracyB Apprentice
TracyB
Posted
I am VERY new to all of this. Here is what is going on with my 2 yr old son.

Even though my son's celiac blood test came back negative the GI doctor said it isn

djmom Newbie
djmom
Posted

I will put in my 2 cents as a mom too. You decide about the test-more people on the forum and your doctor can help you decide if it is necessary.

But I will share that my daughter was sedated (all the way) for a bronchoscopy as an infant. I was sick with worry, but it was over so fast. They keep those little ones under for such a short period of time.

Find out how long it takes to do it. That might make you feel better.

I felt so silly when I went into recovery. She was crying a bit, but was back to her old self in about 10 minutes.

I am not saying to do the test, but just find out how long it takes. I bet it will be done in a snap.

djmom Newbie
djmom
Posted

I will put in my 2 cents as a mom too. You decide about the test-more people on the forum and your doctor can help you decide if it is necessary.

But I will share that my daughter was sedated (all the way) for a bronchoscopy as an infant. I was sick with worry, but it was over so fast. They keep those little ones under for such a short period of time.

Find out how long it takes to do it. That might make you feel better.

I felt so silly when I went into recovery. She was crying a bit, but was back to her old self in about 10 minutes.

I am not saying to do the test, but just find out how long it takes. I bet it will be done in a snap.

djmom Newbie
djmom
Posted

One more thing. It might be best to get it over with (in hindsight)

BUT

You do NOT have to decide by Friday!!!!!!

You can wait and do it when you are ready.

He (the doctor) would LIKE you to decide now. But if you are not sure, then wait until you are ready.

Don't ever be pressured into something like this, you have time. You boy is 2 years old and unless he is going "downhill", you have time to make up your mind and schedule the test at a later date.

imagine22 Contributor
imagine22
Posted

statistically 10% of people with celiac disease had negative blood results :)

the blood tests are just a screening test which finds 90% of celiac disease cases - but that means 10% are missed.

If the dr thinks its a good idea id do it.

can you investigate the video pill version of the endoscopy instead maybe? (sorry dont remember technical name for the test but it can be used for celiac disease and then there is no General anan.got to go...

MollyBeth Contributor
MollyBeth
Posted

I had a negative blood test and a positive Biopsy.

Also, I agree with djmom. You need to decide what to do with your own child on your own time. You don't have to decide anything by Firday. What's going to happen if you don't? All the Doctors of the world are going to stop doing Endoscopies? I think not. Tell your Doc to cool it.

I'm happy I decided to get the Biopsy after my neg blood test. I wanted a confirmed diagnosis...I knew I'd stick to the diet better if I had the diagnosis....otherwise, knowing myself, I would have convinced myself I could still et gluten sometimes.

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