Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Too Late For Me?


miss vivian

Recommended Posts

miss vivian Newbie
Hi Viv,

I was 57 when I was diagnosed, I suppose I had symptoms all my life without realising it.

I have had 'Acid Reflux' for ever, always seemed tired, susceptible to flu and chest infections,

'mouth ulcers', dry skin, all the classic symptoms.

.

I'm 61 now and a lot happier if not a little too 'rotund' from eating all my gluten-free creations, but that's another story!

.

My Friend who is also a Coeliac had his mother checked and she was biopsy diagnosed at 83, she is so much better in herself now on the gluten-free diet.

.

So in answer to your question: Is it too late for me??

.

The answer is a resounding!! It's NEVER too late!

.

Best Regards,

David

Thanks - it's good to know that you're better and so is your mom! I am hoping to recover from the damages I may have inside. I will find out more after the biopsy tomorrow...

Take care and thanks again... Viv

oops. I meant your friends' mom! Sorry for the error... Great to hear the good news that someone a little older can mend.. it gives me hope that I might be ok.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miss vivian Newbie
My mom was finally diagnosed at 45 or so. She nearly died, because this was the mid 1960's and hardly anyone knew a thing about celiac disease. She was truly almost dead of starvation, I think: 85 or so pounds, couldn't keep anything down, and doctors kept telling her it was "in her head." Finally, thankfully, she got a new doctor who asked her if she had ever lived in certain tropical places, thinking her symptoms sounded like tropical sprue. He tested her, did a biopsy which showed her villi to be GONE, her stomach lining was nearly destroyed, lots of other things, and he was smart enough to figure out she had celiac disease. She went gluten free, and was better within a few months, had regained all her lost weight, felt great. They did a re-test of her biopsy and found the villi had mostly regenerated.

She is now almost 88, in great health, no problems at all!

So once you know the facts, eat carefully and avoid all gluten.

Great to hear that the damage can be reversed! :) thank you... glad your mom is well.

Amber M Explorer
Amber you are most welcomed here. I try to catch "newbie" threads everyday so people dont get overlooked. :)

Thanks Shay, I have read a lot of your postings. I have learned so much. I am recovering from last weeks mistake gluten poisoning. I'm doing much better, but I have a question. When does the nasea go away? I get naseated off and on out of the clear blue, and dizzy. I feel like if I thought about it much, I would puke! Did you? Any suggestions? (I was still getting it when I was gluten free before the mistake) Thanks, Amber

Lori Park Newbie

All of this sounds so familiar. I have been gluten free for 7 months and was 36 when I was diagnosed. I had decided that I was a big baby and a hypo-condriac. I thought I must be crazy, because they could not find anything wrong with me. I feel alot better, but recently I have been feeling some of the old symptoms. Has anybody ever just suddenly slowed down in their healing?

mslee Apprentice

welcome welcome!

Just wanted to add since my dx my Mom is in the process of being dx'ed she is in her 50's and symptoms she has had her whole life are healing since going gluten free. It is a little scary at first but we will be so much healthier once we heal & that part is empowering & exciting!

Amber M Explorer
All of this sounds so familiar. I have been gluten free for 7 months and was 36 when I was diagnosed. I had decided that I was a big baby and a hypo-condriac. I thought I must be crazy, because they could not find anything wrong with me. I feel alot better, but recently I have been feeling some of the old symptoms. Has anybody ever just suddenly slowed down in their healing?

I think I am going on 4 months gluten free, with a couple of slips. I have good days and bad days. Just when I think I am free of the symptoms, they re-appear with a vengence. It sets me into a panic going back over ingredients again and again only to discover I have NOT eaten gluten. So I am in the same delima. My Allergist said that I sould see better results after 6 months, but some adults take a few years to get better. After your 7 months, I would make sure that you are not eating something with gluten. One thing I learned last night after watching the UCLA lecture on Celiacs is that when the label says "wheat free" instead of "gluten free", it could still have "barley, malt, or rye" in it and you need to check the full ingredient list. Holy Bananas! I did not realize that. I have mostly eaten fresh food or baking with gluten free ingredients, so I don't think I ate any gluten, but I did not know this. I am just learning. Double check your stuff! Good luck. Amber

miss vivian Newbie
welcome welcome!

Just wanted to add since my dx my Mom is in the process of being dx'ed she is in her 50's and symptoms she has had her whole life are healing since going gluten free. It is a little scary at first but we will be so much healthier once we heal & that part is empowering & exciting!

Yes! You're so right about that! It is very empowering to know that we can do the right things and change the way we feel.. I had my biopsy yesterday, and it went easy - but I still have pains, in spite of being gluten free for almost one month. My gastro told me that she thinks it will take more time for me to feel better. She thinks I should not feel pains in a few months.

I don't know. I looked at the pics of my insides once I woke up - and I couldn't make any sense of it. Heck, I'm no doctor, but I am trying to learn all I can.

Thanks for you response... Everyone here and everyone that I've met since being diagnosed have been wonderul and helpful. It's such a comfort.

:) Peace!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,201
    • Most Online (within 30 mins)
      7,748

    Karen LK
    Newest Member
    Karen LK
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.