Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How I Know I Got Glutened...

mamaesq

By mamaesq
in Coping with Celiac Disease

Recommended Posts

mamaesq Rookie
mamaesq
Posted

My mom and I were diagnosed three weeks ago and have been gluten-free ever since. Tonight we went out to dinner. We talked to the chef who would be cooking our meal and she said that we should be ok with our meal (we got the same thing). She made sure to clean the grill before she cooked our meal. Well, a little while ago, I got major stomach cramps and ran to the bathroom and had diarrhea. On my way, I grabbed my cell phone, and when I got setted, I called my mom to warn her. Turns out, she was in the bathroom doing the exact same thing.

It was pretty funny, but we realized that even though we thought the meal was gluten-free (chicken over onions, peppers, and cheese), there must have been something in the seasoning that did us in. Now we know not to get that again!

How long does this last? This is the first time I have had anything with gluten since I went gluten-free. I feel pretty yucky, I am really cold and my stomach is in knots.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

JNBunnie1 Community Regular
JNBunnie1
Posted
Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

It depends on the person. I'm sick for a month, some people for a day. You'll see hwat happens as things go on.

Jestgar Rising Star
Jestgar
Posted

I feel bad for a few hours

mysecretcurse Contributor
mysecretcurse
Posted

For me it lasts a month. But I get Dh, not D.

The initial stomach problems last 2-3 days. Then the DH continues to break out throughout the next month.

Sucks. It's why I basically live in constant fear. And I NEVER eat out. Not worth it. I can't even enjoy the meal because of the fear.

jsb727 Newbie
jsb727
Posted

I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

JNBunnie1 Community Regular
JNBunnie1
Posted
I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

You haven't been gluten free that long. You may find that the longer you are gluten-free, the more you react on the occasion you do get glutened. It happens that way for a lot of people.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaesq Rookie
mamaesq
Posted
  • Author

My digestive issues seem to have improved, fortunately, but oh, the headache I now have...

Restaurants make me nervous, although this has been a good thing for my bank account...I've saved a lot of lunch money so far this month! :lol:

luvthelake21 Rookie
luvthelake21
Posted

To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

mamaesq Rookie
mamaesq
Posted
  • Author
To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

With this particular restaurant I feel ok, my brother and sister both work there. That night my brother requested one specific cook make our dinners and then he went back and watched. After I got sick, I went online and looked at the allergy information and think that it was something in the mushroom and onion combo because the steak topper has wheat in it, and I'm wondering if they used the same stuff.

It's definitely a learning process...I'm feeling much better, the diarrhea is gone, my headache isn't as bad as it was, but I am developing two canker sores. :angry:

And I'm going out to dinner again tonight, this time with my in laws (who don't yet know about my celiac, aren't they in for a treat when we order...), and I really don't trust this place. I suspect I won't be eating much.

gadgetgirl Newbie
gadgetgirl
Posted
but I am developing two canker sores. :angry:

Canker sores are my latest sign that I've gotten glutened, too. I have a one on the roof of my mouth because I ate some Twizzlers licorice that the secretary had in her candy dish on Friday. :(

I also noticed a major change in my temperament that same evening. I flew into a rage over something that I shouldn't have. I used to have a really short-temper before I discovered I was gluten intolerant. I've been pleased that I'm so much more even-keeled since giving it up.

Other than the canker sore, I was pretty much back to normal in 24 hours. The canker sores always take 7 days to heal.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Sometimes my symtoms range from canker sores to D to feeling like I have the flu. Depends on how bad i get it. Last night went to applebees and they sprinkled bread crumbs on my meal (WTF!) so all i could eat was the steak, i didn't see any crumbs on it, but alas today I have a canker sore.

One Time I ordered a dip with veggies that was usally served in bread bowl, and i guess they put flour or something itte dip it'sself... I was sick for 4 days.

wilem008 Contributor
wilem008
Posted

My symptoms generally last a few days. Initially I will have a few hours of stomach aches/cramps followed by two-three days of headaches, irritability and depression. I'll also have constipation for a week.

Does anyone else find this? My biggest symptom (aside from stomach aches and constipation) is depression.

I know if ive been glutened becuase the next day I feel totally down and sad...for no explainable reason!

Its awful. I do my best to stick to my diet. Luckily there are quite a few resturants and cafes in my town that cater for a gluten-free diet. Im a big fan of Thai and Indian restaurants! :-)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748
    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.