Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tests For Food Intolerance

roxnhead

By roxnhead
in Food Intolerance & Leaky Gut

Recommended Posts

roxnhead Rookie
roxnhead
Posted

HELLO, I'VE NOTICED THAT QUITE A FEW OF YOU HAVE CASEIN INTOLERANCE AS WELL! I'VE BEEN TRYING MY BEST TO BE GLUTEN-FREE, BUT STILL FEEL---STRANGE. I BELEIVE THAT MY PROBLEM MIGHT BE CASEIN. I'VE HAD ALL ALLERGY TESTING DONE-ALL NEGATIVE. HOW DOES ONE GET TESTED FOR FOOD INTOLERANCE-SIMPLY ELIMINATION DIET---OR? ALSO-MY SYMPTOMS ARE MORE NUER0- EYE PAIN,HEADACHE,BRAIN-FOG, FEET PARESTHIAS,FATIGUE-OF COURSE DIARRHEA-BLOATING NO STOMACH PAIN! SHOULD I GO TO AN ALLERGIST-G.I.-INTERNIST-ALTERNATIVE? THANX SO MUCH!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

I went casein-free in April for my son's benefit. I was having a lot of abdominal pain, gas and bloating and I thought the new diet might help me too (it didn't). Going off gluten made a HUGE improvement, but I was still having a little cramping, bloating and gas. Two weeks ago I stopped eating corn to see if it would get rid of my son's eczema (which it did)... and I was surprised to find that it got rid of my remaining intestinal problems! :lol:

Both of these foods are forbidden on the SCD diet... I started reading "Breaking the Vicious Cycle" and it makes a lot of sense to me. You could use that book as a guide.

One other thought... I wasn't as careful as I needed to be in the beginning with cross-contamination. I'm still learning, but I think I'm getting better because now I really notice when I have a bit of gluten (the constipation comes back along with a headache and general "fuzzy" feeling). I stopped using the toaster and checked my medications for gluten.

AliB Enthusiast
AliB
Posted

I would vouch for that. So many find that just dropping gluten only answers part of their problems. Those of us who have issues with other foods may well be suffering from gut dysbiosis and bacterial overgrowth. That's where the Specific Carbohydrate Diet works as it cuts out the foods that feed the little beasties and helps the body heal.

Check out our SCD thread on this section, plus the 'breaking the vicious cycle' and 'Pecanbread' websites for more info.

roxnhead Rookie
roxnhead
Posted
  • Author
Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

roxnhead Rookie
roxnhead
Posted
  • Author

I am feeling much better after going both gluten-casein free! I will be going to a new Dr. soon that is an alternative/integretive/complimentary I'm hoping that he will advise me on the nuero. I've been to one already quite dissapointing! Must admit it has been a challenge to go casein-free. My symptoms that were recurring that I thought were gluten caused -were actually caused by casein. Caramel flavoring and coloring is the one ingredient that appears quite often! Thanks so much for the support!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748
    Stacy M
    Newest Member
    Stacy M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      Food Allergies

      By Ginger38 · Posted

      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
×
×
  • Create New...