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Tests For Food Intolerance

roxnhead

By roxnhead
in Food Intolerance & Leaky Gut

Recommended Posts

roxnhead Rookie
roxnhead
Posted

HELLO, I'VE NOTICED THAT QUITE A FEW OF YOU HAVE CASEIN INTOLERANCE AS WELL! I'VE BEEN TRYING MY BEST TO BE GLUTEN-FREE, BUT STILL FEEL---STRANGE. I BELEIVE THAT MY PROBLEM MIGHT BE CASEIN. I'VE HAD ALL ALLERGY TESTING DONE-ALL NEGATIVE. HOW DOES ONE GET TESTED FOR FOOD INTOLERANCE-SIMPLY ELIMINATION DIET---OR? ALSO-MY SYMPTOMS ARE MORE NUER0- EYE PAIN,HEADACHE,BRAIN-FOG, FEET PARESTHIAS,FATIGUE-OF COURSE DIARRHEA-BLOATING NO STOMACH PAIN! SHOULD I GO TO AN ALLERGIST-G.I.-INTERNIST-ALTERNATIVE? THANX SO MUCH!

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ShayFL Enthusiast
ShayFL
Posted

Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

I went casein-free in April for my son's benefit. I was having a lot of abdominal pain, gas and bloating and I thought the new diet might help me too (it didn't). Going off gluten made a HUGE improvement, but I was still having a little cramping, bloating and gas. Two weeks ago I stopped eating corn to see if it would get rid of my son's eczema (which it did)... and I was surprised to find that it got rid of my remaining intestinal problems! :lol:

Both of these foods are forbidden on the SCD diet... I started reading "Breaking the Vicious Cycle" and it makes a lot of sense to me. You could use that book as a guide.

One other thought... I wasn't as careful as I needed to be in the beginning with cross-contamination. I'm still learning, but I think I'm getting better because now I really notice when I have a bit of gluten (the constipation comes back along with a headache and general "fuzzy" feeling). I stopped using the toaster and checked my medications for gluten.

AliB Enthusiast
AliB
Posted

I would vouch for that. So many find that just dropping gluten only answers part of their problems. Those of us who have issues with other foods may well be suffering from gut dysbiosis and bacterial overgrowth. That's where the Specific Carbohydrate Diet works as it cuts out the foods that feed the little beasties and helps the body heal.

Check out our SCD thread on this section, plus the 'breaking the vicious cycle' and 'Pecanbread' websites for more info.

roxnhead Rookie
roxnhead
Posted
  • Author
Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

roxnhead Rookie
roxnhead
Posted
  • Author

I am feeling much better after going both gluten-casein free! I will be going to a new Dr. soon that is an alternative/integretive/complimentary I'm hoping that he will advise me on the nuero. I've been to one already quite dissapointing! Must admit it has been a challenge to go casein-free. My symptoms that were recurring that I thought were gluten caused -were actually caused by casein. Caramel flavoring and coloring is the one ingredient that appears quite often! Thanks so much for the support!

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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