Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tests For Food Intolerance


roxnhead

Recommended Posts

roxnhead Rookie

HELLO, I'VE NOTICED THAT QUITE A FEW OF YOU HAVE CASEIN INTOLERANCE AS WELL! I'VE BEEN TRYING MY BEST TO BE GLUTEN-FREE, BUT STILL FEEL---STRANGE. I BELEIVE THAT MY PROBLEM MIGHT BE CASEIN. I'VE HAD ALL ALLERGY TESTING DONE-ALL NEGATIVE. HOW DOES ONE GET TESTED FOR FOOD INTOLERANCE-SIMPLY ELIMINATION DIET---OR? ALSO-MY SYMPTOMS ARE MORE NUER0- EYE PAIN,HEADACHE,BRAIN-FOG, FEET PARESTHIAS,FATIGUE-OF COURSE DIARRHEA-BLOATING NO STOMACH PAIN! SHOULD I GO TO AN ALLERGIST-G.I.-INTERNIST-ALTERNATIVE? THANX SO MUCH!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

Mother of Jibril Enthusiast

I went casein-free in April for my son's benefit. I was having a lot of abdominal pain, gas and bloating and I thought the new diet might help me too (it didn't). Going off gluten made a HUGE improvement, but I was still having a little cramping, bloating and gas. Two weeks ago I stopped eating corn to see if it would get rid of my son's eczema (which it did)... and I was surprised to find that it got rid of my remaining intestinal problems! :lol:

Both of these foods are forbidden on the SCD diet... I started reading "Breaking the Vicious Cycle" and it makes a lot of sense to me. You could use that book as a guide.

One other thought... I wasn't as careful as I needed to be in the beginning with cross-contamination. I'm still learning, but I think I'm getting better because now I really notice when I have a bit of gluten (the constipation comes back along with a headache and general "fuzzy" feeling). I stopped using the toaster and checked my medications for gluten.

AliB Enthusiast

I would vouch for that. So many find that just dropping gluten only answers part of their problems. Those of us who have issues with other foods may well be suffering from gut dysbiosis and bacterial overgrowth. That's where the Specific Carbohydrate Diet works as it cuts out the foods that feed the little beasties and helps the body heal.

Check out our SCD thread on this section, plus the 'breaking the vicious cycle' and 'Pecanbread' websites for more info.

roxnhead Rookie
Welcome to the board!

I would recommend you going to a Neurologist for a full work up and evaluation.

You can always try a casein free diet to see if your symptoms improve. I will mention that "trying" to be gluten-free does not work. You really have to make sure that you are 100% gluten-free for awhile to see if it gets rid of your symptoms. I wouldnt eat out for a few months and once better only at restaurants with a gluten-free menu. Check all cosmetics, hair care etc. for gluten. No kissing someone who just ate gluten. No old Teflon pans, cutting boards, toasters in the kitchen, etc.

Many who do not tolerate gluten also do not tolerate dairy. So cutting both is a smart bet.

Hope you feel better soon!

roxnhead Rookie

I am feeling much better after going both gluten-casein free! I will be going to a new Dr. soon that is an alternative/integretive/complimentary I'm hoping that he will advise me on the nuero. I've been to one already quite dissapointing! Must admit it has been a challenge to go casein-free. My symptoms that were recurring that I thought were gluten caused -were actually caused by casein. Caramel flavoring and coloring is the one ingredient that appears quite often! Thanks so much for the support!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,811
    • Most Online (within 30 mins)
      7,748

    doodlebubbles
    Newest Member
    doodlebubbles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.