Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migrating Pain


Green Eyes

Recommended Posts

Green Eyes Rookie

When I was first diagnosed I "thought" I had absolutely no symptoms at all. Now, as I read more I realize there are many things that I can attribute to celiac. Now that I am gluten free my headaches have reduced to almost none, had problems with teeth (3 root canals, sensitive teeth, etc.), and now I'm wondering about other things. Like my hysterectomy could in some way be attributed to the celiac.

I am also having problems with a pain inside my left leg that moved to the back of my leg. An MRI has shown it is not related to my back (or believed to be). Even though I am gluten free I am still having problems, but can this some way be related to the celiac?

I have an appointment with a neurologist this week and I'm certain he will have no clue what I'm talking about when I say "celiac." Any thoughts, suggestions, or similiar problems?

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amber M Explorer
When I was first diagnosed I "thought" I had absolutely no symptoms at all. Now, as I read more I realize there are many things that I can attribute to celiac. Now that I am gluten free my headaches have reduced to almost none, had problems with teeth (3 root canals, sensitive teeth, etc.), and now I'm wondering about other things. Like my hysterectomy could in some way be attributed to the celiac.

I am also having problems with a pain inside my left leg that moved to the back of my leg. An MRI has shown it is not related to my back (or believed to be). Even though I am gluten free I am still having problems, but can this some way be related to the celiac?

I have an appointment with a neurologist this week and I'm certain he will have no clue what I'm talking about when I say "celiac." Any thoughts, suggestions, or similiar problems?

Jennifer

I have pain in my legs, and everywhere. (3 months gluten free except a few slips) I have charlie horses that won't quit some times. My allergist has me taking 1000 mg of magnesium for this. It is helping. I saw a neurologist too for many other neurological symptoms. She diagnosed me with hyperventalation syndrome, saying it caused all the symptoms. Upon reading further about that, I discovered that she may have been partly right in the sense of "Malabsorption" causing the "hyperventalatin syndrome". I didn't realize I had it. I learned "yoga breathing" which does help the nervousness of not feeling well, but honestly, The neurological symptoms get better and then when I slip, they return 10 fold, yoga breathing or not. I think this neurologist would have let me "slip through the cracks" without finding out the"root cause." I don't think most of the doctors I have seen know much about it. We have to be our own advocates. Good Luck, Amber

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,624
    • Most Online (within 30 mins)
      7,748

    RLReynolds1993
    Newest Member
    RLReynolds1993
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.