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Ate Something Baaaddd This Weekend...


givenupgluten

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givenupgluten Explorer

I must have had something to eat on Friday that threw my stomach off..although I'm not sure what it was. Anyway, i'm pretty darn careful when it comes to eating gluten free and rarely eat things that I don't cook myself (out of convenience more than anything else.) However, I do get bloated alot still...and most of the times it goes away eventually. However this weekend, after what I'm assuming was a bad food episode, I was gassy and disgusting all weekend. It hurt to sit up straight and I was so scared to leave the house the few times it did ease up, that I was homebound most of the weekend. In the past, before going gluten free I had ALOT of anxiety surrounding taking the train to work, or being in any place/position where a restroom wasn't near by. Some of this has carred over into my new gluten free existence, simply out of habit...although I'm trying hard to break it. I guess my question is, is there anything for the bloat that works? I've used gas x which doesnt even begin to touch it. Is there anything else? This doesnt happen alot...but it still happens - especially after eating certain foods (of which i havent' pinpointed yet) and everytime I travel. It's very embarrassing to be so bloated you can go out when you travel. I'm so sick of this...Will this be something I just have to live with?


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Mother of Jibril Enthusiast
This doesnt happen alot...but it still happens - especially after eating certain foods (of which i havent' pinpointed yet) and everytime I travel. It's very embarrassing to be so bloated you can go out when you travel. I'm so sick of this...Will this be something I just have to live with?

I still had some gas, bloating, and abdominal pain after I stopped eating dairy and gluten. When I stopped eating corn it disappeared. Wow! I never would have guessed. :lol:

Is there anything you started eating a lot more of when you went gluten-free? Corn was my substitute. Maybe I always had a corn problem, but I didn't notice because I wasn't eating such large quantities. Or maybe it was just too irritating for my overworked digestive system... and I'll eventually be able to eat corn again. Keeping a diary of your diet and symptoms could really help you pinpoint the culprit.

Also... how diligent have you been about gluten? I had to stop eating Clif bars after I realized they have brown rice syrup and they were making my symptoms worse. Have you checked your medications and supplements?

YoloGx Rookie

Apart from herbal suggestions to help heal your intestines and liver from undigested food proteins (marshmallow root, yellow dock and dandelion root) I suggest taking a teaspoon or two of baking soda in a glass of water and then chase with another glass of water. It works miracles!

I also suggest taking bromelain/papain caps with your meals to help digest them--and pancreatin if you eat any meat or other heavy protein. Milk digesting enzymes could be important too... And for some they need HCL if they don't have enough stomach acid.

Bea

jerseyangel Proficient
Is there anything you started eating a lot more of when you went gluten-free?

This is a very good point. I began to have food intolerances a few months after going gluten-free. A huge source of symptoms for me (gas, bloating, eczema, cramping) were legumes. Other things to consider are corn, as was suggested, soy, dairy and eggs. I also have problems with tapioca which I never would have known about except that it's in so many gluten-free baked goods and mixes.

If you use artificial sweeteners, they can cause gas, bloating and D--even Splenda in some people (me).

My GI suggested Phazyme for gas--the softgels are gluten-free. (the chewable is not) Once I figured out that the legumes were the culprit, I didn't need to take it anymore :)

givenupgluten Explorer

Wow, great advice from everyone! Thank you so much...

I have started to eat more corn (in the form of tortillas and chips) since going gluten free. I'm a vegetarian, basically vegan, so I eat very little cheese/dairy and no meat products. However, I do drink soy milk once in awhile. I try to eat very little processed food and avoid 'fake meats' like the plague. I do feel I'm pretty deligent about avoiding gluten, but it seems like almost anything will set off the bloating. I have noticed a little trouble after eating corn tortillas. It doesnt happen every time I eat them, so I'm not quite sure whether that's the culprit or not. Seems like corn is a big issue for alot of people, so that's very possible. When I started having the MAJOR bloat this past weekend, it was after eating falafel (homeade, gluten free) with rice. I made a large batch and had been eating it for dinner all week. It's quite spicy though, so perhaps the spice was the problem? I guess I need to keep a very specific food journal in order to get to the bottom of it.

I do have some bromelain at home -I bought it awhile back as an herbal anti-inflammatory of sorts, but I had no idea it was good for digestion too! I'm going to start taking it..it's been sitting on my shelf just going to waste!

Also, is the Phazme your dr. recommended something you can get over the counter? I have never heard of it, but would be interested in having it around for really bad situations like I experienced recently..

Thanks again for everyone's help!

jerseyangel Proficient

I think a food diary is an excellent idea--that should help you detect a pattern.

Yes, Phazyme is over the counter. :)

missy'smom Collaborator

If it was me, I would check all the ingredients in the falaffals and make sure there was no chance for cross-contamination, in the flours, spices etc. That would be enough to give me symptoms. I have had problems with spices purchased in bulk at an Indian market because they were processed on shared equipment. If there's a little, I might react right away but especially if I ate the same thing several days in a row. I've run into this with products that were labeled gluten-free and tested to be less than 5PPM. I figured it out because that was the only new thing I'd had and I called the company to get info.


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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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