Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Having Some Trouble, Need Advice.


Bucsfan11

Recommended Posts

Bucsfan11 Rookie

Hey all, its been awhile since ive been on here, dang school keeping me busy. Anyway, I was never diagnosed with Celiac, I have been tested and came back normal, but after having diarrhea for years and always being told I have IBS i was no longer willing to take that diagnosis.

Anyway, I have been gluten free for about a year now and all my symptoms went away. I was feeling great! and I actually enjoyed gluten free food. Well for the past two weeks my symptoms have all returned. Diarrhea after I eat, going about 5-8 times a day. Extreme urgency, etc. I have double and tripple checked all the thing is I have been eating and there are all gluten free, bought from a gluten free store.

So I talked with my GI and he wants to put me on cholestyramine (qustran, sp?). I still have my gallbladder!! so I was just wondering if any other people on here have tried this or any advice on in.

Has anyone gone gluten free to find out it stopped working down the road?

Any help would be greatly appreciated.

Thank you all so much, Sean.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Have you checked all nonfood sources for gluten? Your shampoos, toiletries, craft supplies etc? Have you done any remodeling or home improvement projects? Many things used for that are not safe. Have you added any new supplements? Are you on any meds that are generics? Generics can change their binders at will so one that was safe last refill may not be with todays. Look around and try to figure out what is new and changed. Keep in mind also that not everything is gluten so do have your doctor do stool testing to make sure you have not picked up something in the way of a food borne illness like salmonella etc.

ShayFL Enthusiast

Have you considered dairy? Intolerances can show up at anytime.

New girlfriend or boyfriend whom you kiss that may have eaten gluten prior to your kissing them?

dilettantesteph Collaborator

How about a transglutaminase blood test? It could tell you if you getting gluten by accident. How about hay? Some "gluten free" food isn't actually all that gluten free and will make some people sick. Check if it was made in a facility that also processes wheat. Double check anything new. Try eliminating all processed foods and see if that helps. Good luck, hope it doesn't happen to me.

Bucsfan11 Rookie

Thanks for all of the advice and support all!! I really do appreciate it. I have not added anything new to my diet is the thing! I eat basically the same stuff every day, it gets old, but is way worth it because I dont get the Diarrhea anymore, well untill lately.

I will do what Ravenwoodglass has said about checking with the meds. I take a generic version of medicine for seizures, and I take it three times a day so that could be it. Even though, today was a lot better today, so I will see how tomorrow goes. Thank you all for the support it is greatly appreciated and helpfull. Have a good weekend!!

Sean.

Janessa Rookie

If you are eating the same things everyday then it is very likely you would get additional intolerances. I developed more intolerances about a year after going gluten free because I was eating a lot of the same things everyday too.

Talk to your doctor about doing an elimination diet to figure out if other things are bugging you, you eliminate all major allergens plus anything else you eat on a daily basis and then one by one add them back and see if you react.

sbj Rookie

Have you considered some likely causes other than glutening?

Viruses? ... Viral diarrhea spreads easily.

Bacteria and parasites? ... Diarrhea caused by bacteria and parasites can be common when traveling

Medications? Many medications can cause diarrhea. The most common are antibiotics.

Lactose, fructose, or artificial sweeteners?

Hope you feel better!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    3. - knitty kitty replied to pilber309's topic in Related Issues & Disorders
      11

      Burning Sensation in the small intestine

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,884
    • Most Online (within 30 mins)
      7,748

    Dexterlaundyatgmail.com
    Newest Member
    Dexterlaundyatgmail.com
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      You should be fine.  You may start feeling better within a few days.  Someone who is very low in thiamine may notice improvement within hours.   Did you get the NeuroMag  or another magnesium supplement?
    • xxnonamexx
      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
    • knitty kitty
      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
    • knitty kitty
      You may want to skip the oatmeal.  I believe you're trialing a gluten free diet while waiting for an appointment with your doctor in the new year and doing a gluten challenge then.  Some people with Celiac disease react to the protein in oats called avenin the same as to gluten.  Cross contamination between oats and gluten containing grains is possible.  Are you consuming certified gluten free oats?   I would hate for you to have a reaction to the oats and blame it on the vitamins. Yes, it will be fine to take them all together.  I take mine all together, B Complex, Benfotiamine and TTFD Thiamine with breakfast. If you're really anxious about it, just take the B Complex and Benfotiamine at breakfast and the Thiamax at lunch.  You won't have to take a second B Complex with the Thiamax.  
    • xxnonamexx
      So I purchased the Life Extension Benfotiamine with Thiamine along with the Thiamax. I will take along with my Super B Complexes. I stopped taking the multi vitamins. Should I take all 3 vitamins/supplements together with my morning oatmeal breakfast? Do you think I will experience any bad symptoms when taking them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.