Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron

num1habsfan

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

i've been on iron pills for a few days now (because of my level being dangerously low).

Maybe it is just my body trying to get used to it, but I really don't feel well..I feel warm (which is NOT at all normal!), worse dry mouthed even though i've been drinking more fluids on purpose, tiredness, shakiness, sore stomach, bad "urgency"...

Anyone else have this problem when starting to take iron?? Or can it be something else acting up?

Do you think this is extreme iron deficiency is connected with Celiac which has not been liking me lately, either??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MollyBeth Contributor
MollyBeth
Posted

This may be a stupid question...but do the pills have gluten in them?

I took Iron pills several years ago before I was diagnosed and they made me so sick I have to quit taking them. Then I switched brands and it got a little easier. You should talk to your doc.

ShayFL Enthusiast
ShayFL
Posted

Try either Floridix iron (liquid) they make a gluten-free bottle and it says it on the label or Solgar's Gentle iron. Both are very absorbable and easy on the body.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I am on some sort of generic brand stuff...later today I'll dig out the bottle and tell you which one specifically.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

All that it says is "Apo-Ferrous Sulfate, 300 mg"..."Generic Alternative"..."Canadian Made".

ShayFL Enthusiast
ShayFL
Posted

THE ABOVE POST IS SPAM!!!

O.k. you are on one of the hardest to absorb and digest Iron tabs.

Floridix Iron (liquid) gluten-free formula or Solgar's Gentle Iron......no upset tummy and absorbs very well.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Maybe my doctor is just trying to get my level up ASAP?? It was at 6...and from what I've been told that's very, very low.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

But you'll have a hard time getting it up with those pills. They are HARD to digest. :(

You can ask your Doc. for intravenous if he wants to get it up fast.

Otherwise, you will be taking those pills for A LONG time and they are an irritant.

Google "iron supplements" and learn about them. The ones I have mentioned arent costly and are better absorbed. But do whatever you feel is right for your body.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
But you'll have a hard time getting it up with those pills. They are HARD to digest. :(

You can ask your Doc. for intravenous if he wants to get it up fast.

Otherwise, you will be taking those pills for A LONG time and they are an irritant.

Google "iron supplements" and learn about them. The ones I have mentioned arent costly and are better absorbed. But do whatever you feel is right for your body.

Blah, yeah they are very painful. Even when I take them with food and at the same time as the Vitamin C pills.

He also told me to try BC for a few months, because he believes that will increase it.

*sigh* I wonder what even caused such a drastic drop in the first place!

ShayFL Enthusiast
ShayFL
Posted

Celiac and Hypothyroid can both lower the Ferritin dramatically. So can heavy periods, surgery and and bleeding ulcers.

happygirl Collaborator
happygirl
Posted

The post that was spam has been removed.

The correct way to deal with spam is the hit the report button and issue a report to moderators. They are able to deal with issues like this quicker.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Celiac and Hypothyroid can both lower the Ferritin dramatically. So can heavy periods, surgery and and bleeding ulcers.

Interesting...because I did have very, very swollen thyroids...even the doctor saw that (yet somehow bloodwork showed they were normal). Also around the same time I had gotten over a severe bladder/kidney infection (which my doctor was convinced there was blood present judging by the descriptions I gave).

ShayFL Enthusiast
ShayFL
Posted

Get a copy of your Thyroid labwork and make sure they tested TSH (3rd generation), Free T4, Free T3 and BOTH antibodies. If they didnt test these you didnt get proper evaluation. And even if they did, many of us (including me) were told we were "normal" for years (me 12 years) when in fact I was very hypothyroid. Finally got a new doctor that used the new TSH range and got me on thyroid meds. It was like someone switched a light on in the dark.

Read here:

www.stopthethyroidmadness.com

num1habsfan Rising Star
num1habsfan
Posted
  • Author

I remember him checking off more than just the TSH, so i don't know. This isn't the first time that i've had a thyroid attack and the tests turned out normal.

By the way, I think I may go home this weekend. Talk to one of my pharmacists about what they suggest I do. I am not enjoying these tummy aches or the fact I can't keep food in my gut.

Di-gfree Apprentice
Di-gfree
Posted

The gluten-free formula of Floradix is Floravit. It's what I've been taking for 3 months now. Also very important, to absorb iron, is an optimal B12 level. Both my ferritin and B12 are/were low, so I take the Floravit and sublingual B12 tablets. My ferritin was 21 back in July; I started taking Floravit twice a day - my ferritin went up to 31 after a month, or so; and now it's at 45 (my highest ever-recorded). I'm trying to get it up to 70 or 80 (it needs to be optimized to utilize my thyroid replacement, for one thing).

ShayFL Enthusiast
ShayFL
Posted

I had heard the Floravit was very good at getting the Ferritin up, so I switched about 2 weeks ago to it from the Solgar Gentle Iron. So glad to hear how fast it is working for you. It makes me hopeful!! Cant wait to retest next month. :)

Di-gfree Apprentice
Di-gfree
Posted

Shay, I was really surprised. My ferritin hadn't really improved in 10 years since being gluten-free - well, I started at basically zero, and it finally went up to 21, but never higher. I'd never put much effort into taking iron supplements, though - I gave up on pills because they upset my stomach. I hope the Floravit keeps working. Let us know if the Floravit helps you.

Very pretty dog. :)

ShayFL Enthusiast
ShayFL
Posted

I took the Solgar Gentle Iron for 3 months (3 pills a day 75 mg Iron) and my Ferritin went from 10 was the lowest to 18. So based on what you are telling me about the Floravit, I can hope for much better results this time. I am taking twice a day as well.

Thank you. That is my Gracie...our first dog that is a "Momma's Girl". She is a rescue.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Blah, I talked to one of my pharmacists. He said that nothing can really be done about it, just have to deal with it and continue taking it with food. Sucks :(

Wonka Apprentice
Wonka
Posted
I remember him checking off more than just the TSH, so i don't know. This isn't the first time that i've had a thyroid attack and the tests turned out normal.

By the way, I think I may go home this weekend. Talk to one of my pharmacists about what they suggest I do. I am not enjoying these tummy aches or the fact I can't keep food in my gut.

I tried all sorts of iron supplements and I couldn't tolerate any of them until I tried the Floravit. I've been on it since April and I'm no longer anemic but I'm still taking it because I'd like my ferritin to get a bit more in the midrange (between the celiac and my heavy periods I ended up with iron deficiency anemia, Floravit has been a great find for me).

  • 4 weeks later...
num1habsfan Rising Star
num1habsfan
Posted
  • Author

Just to update, I'm still getting the major side effects like the cramps...Only a few more weeks, then I need to have bloodwork done to test how much it has changed. Lets hope that it has so I can go on a lower strength, or something??

Oh, and I discovered something interesting: eating red peppers helps deal with the cramps, better than ANY other food. I guess because of the super high vitamin C content in them??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    3. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      20

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Gluten-Free Grains and Flours
      18

      Cricket Flour Makes Really Good Gluten-Free Bread

      Your concern about certified gluten-free cricket powder is completely valid, as cross-contamination in both feedstock and processing is a real issue. Currently, the availability of certified gluten-free options is limited, but brands like Chapul and Entomo Farms, which I believe have offered products processed in dedicated facilities and labeled gluten-free...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,541
    • Most Online (within 30 mins)
      7,748
    Sally Garber
    Newest Member
    Sally Garber
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.