Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron


num1habsfan

Recommended Posts

num1habsfan Rising Star

i've been on iron pills for a few days now (because of my level being dangerously low).

Maybe it is just my body trying to get used to it, but I really don't feel well..I feel warm (which is NOT at all normal!), worse dry mouthed even though i've been drinking more fluids on purpose, tiredness, shakiness, sore stomach, bad "urgency"...

Anyone else have this problem when starting to take iron?? Or can it be something else acting up?

Do you think this is extreme iron deficiency is connected with Celiac which has not been liking me lately, either??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MollyBeth Contributor

This may be a stupid question...but do the pills have gluten in them?

I took Iron pills several years ago before I was diagnosed and they made me so sick I have to quit taking them. Then I switched brands and it got a little easier. You should talk to your doc.

ShayFL Enthusiast

Try either Floridix iron (liquid) they make a gluten-free bottle and it says it on the label or Solgar's Gentle iron. Both are very absorbable and easy on the body.

num1habsfan Rising Star

I am on some sort of generic brand stuff...later today I'll dig out the bottle and tell you which one specifically.

num1habsfan Rising Star

All that it says is "Apo-Ferrous Sulfate, 300 mg"..."Generic Alternative"..."Canadian Made".

ShayFL Enthusiast

THE ABOVE POST IS SPAM!!!

O.k. you are on one of the hardest to absorb and digest Iron tabs.

Floridix Iron (liquid) gluten-free formula or Solgar's Gentle Iron......no upset tummy and absorbs very well.

num1habsfan Rising Star

Maybe my doctor is just trying to get my level up ASAP?? It was at 6...and from what I've been told that's very, very low.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

But you'll have a hard time getting it up with those pills. They are HARD to digest. :(

You can ask your Doc. for intravenous if he wants to get it up fast.

Otherwise, you will be taking those pills for A LONG time and they are an irritant.

Google "iron supplements" and learn about them. The ones I have mentioned arent costly and are better absorbed. But do whatever you feel is right for your body.

num1habsfan Rising Star
But you'll have a hard time getting it up with those pills. They are HARD to digest. :(

You can ask your Doc. for intravenous if he wants to get it up fast.

Otherwise, you will be taking those pills for A LONG time and they are an irritant.

Google "iron supplements" and learn about them. The ones I have mentioned arent costly and are better absorbed. But do whatever you feel is right for your body.

Blah, yeah they are very painful. Even when I take them with food and at the same time as the Vitamin C pills.

He also told me to try BC for a few months, because he believes that will increase it.

*sigh* I wonder what even caused such a drastic drop in the first place!

ShayFL Enthusiast

Celiac and Hypothyroid can both lower the Ferritin dramatically. So can heavy periods, surgery and and bleeding ulcers.

happygirl Collaborator

The post that was spam has been removed.

The correct way to deal with spam is the hit the report button and issue a report to moderators. They are able to deal with issues like this quicker.

num1habsfan Rising Star
Celiac and Hypothyroid can both lower the Ferritin dramatically. So can heavy periods, surgery and and bleeding ulcers.

Interesting...because I did have very, very swollen thyroids...even the doctor saw that (yet somehow bloodwork showed they were normal). Also around the same time I had gotten over a severe bladder/kidney infection (which my doctor was convinced there was blood present judging by the descriptions I gave).

ShayFL Enthusiast

Get a copy of your Thyroid labwork and make sure they tested TSH (3rd generation), Free T4, Free T3 and BOTH antibodies. If they didnt test these you didnt get proper evaluation. And even if they did, many of us (including me) were told we were "normal" for years (me 12 years) when in fact I was very hypothyroid. Finally got a new doctor that used the new TSH range and got me on thyroid meds. It was like someone switched a light on in the dark.

Read here:

www.stopthethyroidmadness.com

num1habsfan Rising Star

I remember him checking off more than just the TSH, so i don't know. This isn't the first time that i've had a thyroid attack and the tests turned out normal.

By the way, I think I may go home this weekend. Talk to one of my pharmacists about what they suggest I do. I am not enjoying these tummy aches or the fact I can't keep food in my gut.

Di-gfree Apprentice

The gluten-free formula of Floradix is Floravit. It's what I've been taking for 3 months now. Also very important, to absorb iron, is an optimal B12 level. Both my ferritin and B12 are/were low, so I take the Floravit and sublingual B12 tablets. My ferritin was 21 back in July; I started taking Floravit twice a day - my ferritin went up to 31 after a month, or so; and now it's at 45 (my highest ever-recorded). I'm trying to get it up to 70 or 80 (it needs to be optimized to utilize my thyroid replacement, for one thing).

ShayFL Enthusiast

I had heard the Floravit was very good at getting the Ferritin up, so I switched about 2 weeks ago to it from the Solgar Gentle Iron. So glad to hear how fast it is working for you. It makes me hopeful!! Cant wait to retest next month. :)

Di-gfree Apprentice

Shay, I was really surprised. My ferritin hadn't really improved in 10 years since being gluten-free - well, I started at basically zero, and it finally went up to 21, but never higher. I'd never put much effort into taking iron supplements, though - I gave up on pills because they upset my stomach. I hope the Floravit keeps working. Let us know if the Floravit helps you.

Very pretty dog. :)

ShayFL Enthusiast

I took the Solgar Gentle Iron for 3 months (3 pills a day 75 mg Iron) and my Ferritin went from 10 was the lowest to 18. So based on what you are telling me about the Floravit, I can hope for much better results this time. I am taking twice a day as well.

Thank you. That is my Gracie...our first dog that is a "Momma's Girl". She is a rescue.

num1habsfan Rising Star

Blah, I talked to one of my pharmacists. He said that nothing can really be done about it, just have to deal with it and continue taking it with food. Sucks :(

Wonka Apprentice
I remember him checking off more than just the TSH, so i don't know. This isn't the first time that i've had a thyroid attack and the tests turned out normal.

By the way, I think I may go home this weekend. Talk to one of my pharmacists about what they suggest I do. I am not enjoying these tummy aches or the fact I can't keep food in my gut.

I tried all sorts of iron supplements and I couldn't tolerate any of them until I tried the Floravit. I've been on it since April and I'm no longer anemic but I'm still taking it because I'd like my ferritin to get a bit more in the midrange (between the celiac and my heavy periods I ended up with iron deficiency anemia, Floravit has been a great find for me).

  • 4 weeks later...
num1habsfan Rising Star

Just to update, I'm still getting the major side effects like the cramps...Only a few more weeks, then I need to have bloodwork done to test how much it has changed. Lets hope that it has so I can go on a lower strength, or something??

Oh, and I discovered something interesting: eating red peppers helps deal with the cramps, better than ANY other food. I guess because of the super high vitamin C content in them??

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    2. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    3. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    4. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA

    5. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.